Except for my doctor. He is wonderful! Thorough, empathetic, knowledgable, understanding and he does not make me feel rushed at all. He loves it that I bring a list of questions to ask. All this plus he is HOT! Wow. And the good thing is he has no idea!Isn't that the truth! In the dictionary, I think the words Doctor and Arrogant are synonymous
They like use that insulting word too... Psychosomatic... when they have NO idea what else to say.
|
|
Celiac.com Sponsor: |
Losing Hope...
#76
Posted 10 August 2012 - 05:40 PM
Confirmed celiac disease February 2011 from biopsies (had both gastroscopy and colonoscopy). Strictly gluten free March 18 2011.
Diagnosed with fibromyalgia April 13 2011.
3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.
Osteoarthritis in back and hips.
Chronic insomnia mostly due to chronic pain.
Aspartame free May 2011.
Dairy free August 15 2011. Can tolerate aged cheese Jan. 2012. Cannot tolerate much cheese at all 2013 so am eating lactose free cheese and drinking lactose free milk.
When our lives are squeezed by pressure and pain, what comes out is what is inside.
Ads By Google: |
#77
Posted 10 August 2012 - 05:49 PM
Clone him - quickExcept for my doctor. He is wonderful! Thorough, empathetic, knowledgable, understanding and he does not make me feel rushed at all. He loves it that I bring a list of questions to ask. All this plus he is HOT! Wow. And the good thing is he has no idea!
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe ![]()
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#78
Posted 10 August 2012 - 05:51 PM
Clone him - quick
Yeah! If we could only clone all the good docs. Sigh.
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
#79
Posted 10 August 2012 - 06:17 PM
My physical is in two weeks (shudder) - I'll try then and see if he notices he is being cloned.Clone him - quick
Confirmed celiac disease February 2011 from biopsies (had both gastroscopy and colonoscopy). Strictly gluten free March 18 2011.
Diagnosed with fibromyalgia April 13 2011.
3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.
Osteoarthritis in back and hips.
Chronic insomnia mostly due to chronic pain.
Aspartame free May 2011.
Dairy free August 15 2011. Can tolerate aged cheese Jan. 2012. Cannot tolerate much cheese at all 2013 so am eating lactose free cheese and drinking lactose free milk.
When our lives are squeezed by pressure and pain, what comes out is what is inside.
#80
Posted 11 August 2012 - 08:59 AM
My physical is in two weeks (shudder) - I'll try then and see if he notices he is being cloned.
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
#81
Posted 11 August 2012 - 09:24 AM
He won't miss one little hairMy physical is in two weeks (shudder) - I'll try then and see if he notices he is being cloned.
-Lisa
Undiagnosed Celiac Disease ~ 43 years
3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive
10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration
maybe one good hour per day for ~17 months
8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods
only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE
3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.
11/15/12 - Improving once again - Almonds back - Eggs gone
12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...
...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.
6/1/13 - Slowly trialing a few of the items above - haven't gotten any back, but some reactions have been less severe ![]()
If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!
This stubbornly tenacious feisty optimist is vertical once again.
Celiac.com - Celiac Disease Board Moderator
#82
Posted 11 August 2012 - 09:25 AM
Would he notice my asking him for a cheek swab for his DNA?
Confirmed celiac disease February 2011 from biopsies (had both gastroscopy and colonoscopy). Strictly gluten free March 18 2011.
Diagnosed with fibromyalgia April 13 2011.
3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.
Osteoarthritis in back and hips.
Chronic insomnia mostly due to chronic pain.
Aspartame free May 2011.
Dairy free August 15 2011. Can tolerate aged cheese Jan. 2012. Cannot tolerate much cheese at all 2013 so am eating lactose free cheese and drinking lactose free milk.
When our lives are squeezed by pressure and pain, what comes out is what is inside.
#83
Posted 11 August 2012 - 06:58 PM
Tell him we're fans!
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
#84
Posted 11 August 2012 - 07:35 PM
Except for my doctor. He is wonderful! Thorough, empathetic, knowledgable, understanding and he does not make me feel rushed at all. He loves it that I bring a list of questions to ask. All this plus he is HOT! Wow. And the good thing is he has no idea!
Do we have the same doc?? Cause I feel like you just described mine! Haha love it! 😃😃😃
#85
Posted 12 August 2012 - 05:05 AM
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
#86
Posted 14 August 2012 - 08:49 AM
May not be celiac but it sure is intolerance.
Given that Celiac is an autoimmune disease - is it treated differently than gluten intolerance?
#87
Posted 14 August 2012 - 10:14 AM
Sorry you fell like &*^%. (((HUGS)))
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012
#88
Posted 14 August 2012 - 01:07 PM
I took a gluten-challenge for just one day. I was hesitant but did it. Thought I would do it for at least 3 days. No way! I was fine for about 8 hours. Then stomach cramping, PAIN, and achy all over. Today I am weepy for no reason and feeling anxious as well. I hate this feeling. I'm back to eating only gluten, soy and lactose free today although I don't feel like eating at all.
May not be celiac but it sure is intolerance.
Given that Celiac is an autoimmune disease - is it treated differently than gluten intolerance?
I went through 4 months of testing by 3 different doctors. I had multiple blood tests, genetic tests and a biopsy. They all agree that I do not have Celiac disease but 2 out of the 3 doctors believe I am Gluten Intolerant. I was told again today by my primary dr to stop eating it. I seem to not be bothered by cross contamination, and since I dont have Celiac disease, I dont worry about trace amounts, or food touching. But what I feel when I ingest a good amount of bread, or pasta, or baked goods and stuff is enough to send me to bed in pain and like you, I weep for no reason.
For both Celiac and Intolerance, the only treatment is to live gluten free. I feel better after 2 days of being gluten free again (tried it before for 3 weeks and OMG I felt so good!) than I have felt in months. It is very worth it. here it is 5pm and I dont need to take a nap, that doesnt sound like much but for me it is AMAZING. I am usually useless by 7pm.
#89
Posted 17 August 2012 - 05:56 PM
I don't have problems with the almond milk and if I eat eggs I sometimes get a rash but haven't had any problems eating food with eggs in it.
Any thoughts?
#90
Posted 17 August 2012 - 06:20 PM
I've read of ppl here w/ specific xanthan gum issues & of course we can have rice, potato, or corn problems but at least those are easy to check & you probably already know they're fine or wouldn't have tried the mix.(?)
How about the pan? Anything less than brand new has to be questioned at this point. Or maybe the muffins were in cupcake ....uhh .. .cups?
Not sure what's a good type of product to test xanthan gum with. I'd think ideally w/ a short list of other status-known ingredients. Hoping others have some ideas/experience.
Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.
Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users







