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GFreeMO

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Gemini Experienced

You wanna see super sized, come to Kansas and Missouri! I get what you mean though. It's odd how people from different parts of the country are into different things.

We are going to Colorado in late august. We rented a condo this time so the cooking and meals will be easier. I told my husband that I may be a squatter there and just stay in the condo forever. :P

My brother-in-law lives in Fort Collins. I could easily live there but my husband wants to stay in New England. We'll see what happens when we go to retire......New England is expensive and that can be an issue on retirement income. I fit in much better in Colorado than I do here in Mass and I've lived here my entire life. The people are just so nice and friendly and I love the fact that people are fit and into hiking. I won't even blather on about the mountains there.....the wilderness is beyond anything I have ever seen. The hiking trails are awesome too. Guess it's time to visit my brother-in-law....

I need a fix! :lol:

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Gemini Experienced

It seems that many of us here have so many things besides celiac in common. I wish we could all live in the same state. The celiac state. :P

I don't work outside of the home but my husband travels for his job and is gone a lot so I need to be here to hold down the fort. I use to be a teacher though and loved it.

Yes, I agree..thanks goodness for the internet. :)

The Celiac State! Brilliant! It has to have good food and hiking trails.....and a Whole Foods! :P Think of the gluten-free parties we could have....

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bartfull Rising Star

Another bookworm and birdwatcher here.

In the Celiac State there will be libraries that are open 24 hours a day, lots of lakes and ponds full of the waterfowl to watch, wheat, corn and soy will be permanently banned, and Luv2Travel will be our official chef.

The temperatures will always stay between 60 and 80 degrees, and those who love winter sports will be provided with artificial snow that will never melt. There will be beautiful mountains to hike in, gorgeous meadows to loll around in, plenty of maple trees to provide color in the fall, a crystal blue ocean with no sharks or jellyfish, rivers with whitewater to raft in and waterfalls aplenty.

There will never be a traffic jam in the Celiac State, and even the teenagers will be polite. When we lose something, we will find it right away. When we drop something, it will not break. All of our pets will get along, and they will all live as long as we do.

In the Celiac State, everyone will be able to play a musical instrument and we will all have beautiful voices to sing with. There will be fabulous malls with low prices for those who love to shop, but clothing and other items will never wear out for those of us who don't like to shop. There will be violent thunderstorms for those of us who like interesting weather, but they will do no damage. And those who would prefer to skip those storms need only walk across the street where the sun shines every day.

Am I forgetting anything?

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GFreeMO Proficient

Another bookworm and birdwatcher here.

In the Celiac State there will be libraries that are open 24 hours a day, lots of lakes and ponds full of the waterfowl to watch, wheat, corn and soy will be permanently banned, and Luv2Travel will be our official chef.

The temperatures will always stay between 60 and 80 degrees, and those who love winter sports will be provided with artificial snow that will never melt. There will be beautiful mountains to hike in, gorgeous meadows to loll around in, plenty of maple trees to provide color in the fall, a crystal blue ocean with no sharks or jellyfish, rivers with whitewater to raft in and waterfalls aplenty.

There will never be a traffic jam in the Celiac State, and even the teenagers will be polite. When we lose something, we will find it right away. When we drop something, it will not break. All of our pets will get along, and they will all live as long as we do.

In the Celiac State, everyone will be able to play a musical instrument and we will all have beautiful voices to sing with. There will be fabulous malls with low prices for those who love to shop, but clothing and other items will never wear out for those of us who don't like to shop. There will be violent thunderstorms for those of us who like interesting weather, but they will do no damage. And those who would prefer to skip those storms need only walk across the street where the sun shines every day.

Am I forgetting anything?

LOL!!!! Love it!

:P:lol::D

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bartfull Rising Star

I thought of a few others:

In the Celiac State there will be no dust. Our pets will not shed, and all the dishes and clothing will be self-cleaning.

There will be no junk mail.

Telemarketers in the Celiac State will be able to find decent jobs that don't require annoying people at dinner time. There will be no email spam, and every website will have good information and no viruses.

In the Celiac State, all cars will be prohibited from breaking down EVER, and each automobile will get at least 100 miles per gallon.

Any more?

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love2travel Mentor

I rarely check out the sensitive section as I am not BUT happened upon this particular thread as it looked very intriguing. The Celiac State must have:

- NO MOSQUITOES, slugs or aphids

- no ridiculously noisy and incomprehensibly insane neighbours - only kind quiet ones allowed

- no temps above 75F or below 50F with regular rainfall so things stay lush and green year round

- no snow or ice

- perfect growing conditions (I am a gardener, too) for anything - I am currently gardening in a Zone 1B which is not quite the best!

- no chronic or other pain

- access to all the spices on the planet

- access to wonderful fish and seafood from the sea that must be near by

- amazing unique, uncommon and incredibly interesting ingredients with which to cook - never running out, either. I need my Umami paste #5.

- gigantic kitchens equipped with all the appliances and toys imaginable

- bread that tastes like bread - no crumbling, falling apart, or disappointment. Oh, and someone to clean up and do the dishes.

- no FB so everyone must socialize as we used to - in person!

- I agree with libraries that are open 24 hours a day. Must have thousands and thousands of culinary books as well as others.

- as mentioned, beautiful lakes, streams, mountains...

- charming old stone houses with shutters, climbing roses, stone walls with English gardens and views to the ancient castles in the background.

- no busy industrial cities - just quiet villages yet with all the amenities of a city! :P

Not asking for much, are we??? :lol:

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squirmingitch Veteran

I'm in!

In the celiac state there will be no poisonous snakes.

No poisonous spiders.

No lyme disease ticks --- well, what do we need ticks for at all? NO TICKS or fleas.

There will be a bounty of wildlife of all manner but there will never be an overpopulation of any species & there will be no disease among the wildlife.

There will be bees & butterflies aplenty as well as hummingbirds.

No gnats or houseflies, bottle flies, deer flies, no horse flies & yellow jackets, wasps & hornets will be banned from stinging any human or animal. No scorpions.

There will be honeybees without disease or hive collapse.

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ShannonA Contributor

I am a super sensitive celiac who reacts to trace gluten. With that said, I can't seem to tolerate anything labeled gluten free anymore. I use to be able to enjoy Chex, Frito Lay products, Betty Crocker mixes, pizza crust mix, dairy and chocolate, etc. You get the drift.

I have developed a severe reaction to corn and all of the mixes have corn in them or I react to them.

I am really getting tired of eating only meat, fruit and veg. I eat nothing else. I drink black coffee and water only. Heck, even some spices make me react.

It's gotten really bad to the point where I will cry if I see a commercial on TV for ice cream or pizza. I canceled all of my magazine subscriptions because half of the magazine is about food that I can't eat. I don't really enjoy TV or movies anymore because they are always eating pizza or doughnuts or just being so carefree about food. I'm going to a Birthday party this weekend that is a pizza party. Pizza and cake. I know I can bring my own but it's driving me crazy. Literally.

I am a totally depressed about this. I don't know how to pull myself out of it.

Any words of wisdom?

Thanks,

MO

The exact thing is happening to me since going gluten free 7 weeks ago. I'm only eating soups and fruits and believing my gut is trying to heal by rejecting everything else.
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1desperateladysaved Proficient

I don't do it well sometimes. My family took a trip. I was afraid to get in the car with the yeast bread they had along. I ate my meals either down wind from them or at the next table. I sent them in to the traditional annual visit at a Duluth restaurant as I ate cold food in the parking lot. I felt so lonely, but I don't want to control their whole lives. I have been withdrawing from all food events. I don't know if I have much of a choice since I seem to be reacting to smell.

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Pac Apprentice

I don't know if I have much of a choice since I seem to be reacting to smell.

If it was the smell itself, at least you'd have a clue which place to avoid. ;) Soo often I only know it's time to run when I'm already dizzy with blurred vision and itchy all over... :(

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    1. - cristiana replied to Larzipan's topic in Related Issues & Disorders
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    • cristiana
      Thank you for your post, @Nedast, and welcome to the forum. There have been many posts on this subject on the forum, it is interesting to read of your experiences. Although I've not had TMJ, except from time to time have had a bit of mild tension in my jaw, I have had issues with my trigeminal nerve.  I read that sometimes a damaged nerve in coeliacs can heal after adopting a gluten free diet.  I try to keep out of cold winds or wear a scarf over my face when it is cold and windy, those conditions tend to be my 'trigger' but I do think that staying clear of gluten has helped.   Thank you again for your input.
    • Julie Riordan
      I am going to France in two weeks and then to Portugal in May   Thanks for your reply 
    • Nedast
      I made an account just to reply to this topic. My story resembles yours in so many ways that it is truly amazing. I also suddenly became lactose intolerant, went a little under 10 years attributing all my symtoms to different body parts, never thinking it was something systemic until much later. I had the same mental problems - anxiety, depression, fatigue, etc. In fact, the only real difference in our story is that I was never formally diagnosed. When I discovered that my myriad symtoms, that had been continuous and worsening for years, all rapidly subsided upon cessation of consuming gluten, I immediately took it upon myself to cut gluten out of my diet completely. I live in America, and had lost my health insurance within the year prior to my discovery, so I could not get tested, and I will never willingly or knowingly consume gluten again, which I would have to do in order to get tested now that I have insurance again. But that is not the point of this reply. I also had extreme TMJ pain that began within months of getting my wisdom teeth out at - you guessed it - 17 years old. I was in and out of doctors for my various symptoms for about 5 years before I gave up, but during that time I had also kept getting reffered to different kinds of doctors that had their own, different solutions to my TMJ issue, an issue which I only recently discovered was related to my other symptoms. I began with physical therapy, and the physical therapist eventually broke down at me after many months, raising her voice at me and saying that there was nothing she could do for me. After that saga, I saw a plastic surgeon at the request of my GP, who he knew personally. This palstic surgeon began using botox injections to stop my spasming jaw muscles, and he managed to get it covered by my insurace in 2011, which was harder to do back then. This helped the pain tremendously, but did not solve the underlying problem, and I had to get repeat injections every three months. After a couple of years, this began to lose effectiveness, and I needed treatments more often than my insurance would cover. The surgeon did a scan on the joint and saw slight damage to the tissues. He then got approved by insurance to do a small surgery on the massseter (jaw) muscle - making an incision, and then splicing tissue into the muscle to stop the spasming. It worked amazingly, but about three months later it had stopped working. I was on the verge of seeing the top oral surgeon in our city, but instead of operating on me, he referred me to a unique group of dentists who focus on the TMJ and its biomechanical relationship to teeth occlusion (i.e. how the teeth fit together). This is what your dentist did, and what he did to you was boderline if not outright malpractice. There is a dental field that specializes in doing this kind of dental work, and it takes many years of extra schooling (and a lot of money invested into education) to be able to modify teeth occusion in this manner. Just based on the way you describe your dentist doing this, I can tell he was not qualified to do this to you. Dentists who are qualified and engage in this practice take many measurments of your head, mouth, teeth, etc., they take laboratory molds of your teeth, and they then make a complete, life-size model of your skull and teeth to help them guide their work on you. They then have a lab construct, and give you what is called a "bite splint." It looks and feels like a retainer, but its function is entirely different. This is essentially a literal splint for the TMJ that situates on the teeth. The splint is progressively modified once or twice per week, over several months, in order to slowly move the joint to its correct position. The muscles spasm less, stress is taken off the joint, as the joint slowly moves back into its proper position. The pain reduces each month, each week, sometimes even each day you go in for a visit. The joint has to be moved in this manner with the splint BEFORE the modification to the teeth begins. They then add to your tooth structure with small bits of composite, to keep the joint in its proper place after it has been sucessfully repositioned. Subtracting from your teeth, by grinding down bits of your natural tooth structure, is done very conservatively, if they have to do it at all. This process worked for me - after six months, my face, jaw, neck all felt normal, and I had no more pain - a feeling I had not had in a long time. It also made my face look better. I had not realized the true extent that the spasming muscles and the joint derangement had effected the shape of my face. The pain began to return after a few months, but nowhere near where it had been before. This immense reduction in pain lasted for a little over two years. The treatment still ultimately failed, but it is not their fault, and it is still the treatment that has given me the most relief to this day. Later on, I even went about three years with very, very good pain reduction, before the joint severely destabilized again. This field of dentistry is the last line treatment for TMJ issues before oral surgery on the TMJ. There aren't as many denists around who practice this anymore, and the practice is currently shrinking due to dentists opting for less espensive, additional educations in things like professional whitening, which have a broader marketability. Getting this treatment is also very expensive if not covered by insurance (in America at least). My first time was covered by insurance, second time was not, though the dentist took pity on me due to the nature of my case and charged like a quarter of usual pricing. Most cases seen by these dentists are complete successes, and the patient never has to come back again. But occasionally they get a case that is not a success, and I was one of those cases. A little over a year ago, I began seeing the second dentist who keeps my TMJ stable in this manner. The first dentist retired, and then died sadly. A shame too, because he was a truly amazing, knowledgable guy who really wanted to help people. The new dentist began to get suspicious when my joint failed to stay stable after I was finished with the bite splint and his modifications, so he did another scan on me. This is ten years after the first scan (remember, I said the surgeon saw "slight" damage to the tissue on the first scan). This new scan revealed that I now no longer have cartilage in the joint, on both sides - complete degeneration of the soft tissues and some damage to the bone. The dentist sat me down and had a talk with me after these results came in, and said that when he sees damage like this in cases like mine, that the damage to the joint is most likely autoimmune, and that, in his experinece, it is usually autoimmune. He has sent patients with cases like mine to Mayo Clinic. He said he will continue to see me as long as the treatment continues to offer me relief, but also said that I will probably have to see a dentist for this type of treatment for the rest of my life. He is not currently recommending surgery due to my young age and the fact that the treatment he provides manages my symptoms pretty well. I still see this dentist today, and probably will see this kind of dental specialist for the rest of my life, since they have helped with this issue the most. I did not inform him that I am 100% sure that I have celiac disease (due to my complete symptom remission upon gluten cessation). I didn't inform him because I thought it would be inappropriate due to not having a formal diagnosis. I was disappointed, because I had believed I had caught it BEFORE it had done permanent damage to my body. I had never suspected that my TMJ issues may be related to my other symptoms, and that the damage would end up complete and permanent. Luckily, I caught it about 6 months after my other joints started hurting, and they stopped hurting right after I went gluten free, and haven't hurt since. I of course did the necessary research after the results of the second scan, and found out that the TMJ is the most commonly involved joint in autoimmune disease of the intestines, and if mutliple joints are effected, it is usually the first one effected. This makes complete sense, since the TMJ is the most closely related joint to the intestines, and literally controls the opening that allows food passage into your intestines. I am here to tell you, that if anyone says there is no potential relationship between TMJ issues and celiac disease, they are absolutely wrong. Just google TMJ and Celiac disease, and read the scientific articles you find. Research on issues regarding the TMJ is relatively sparse, but you will find the association you're looking for validated.
    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
    • SuzanneL
      I've recently received a weak positive tTG, 6. For about six years, I've been sick almost everyday. I was told it was just my IBS. I have constant nausea. Sometimes after I eat, I have sharp, upper pain in my abdomen. I sometimes feel or vomit (bile) after eating. The doctor wanted me to try a stronger anti acid before doing an endoscopy. I'm just curious if these symptoms are pointing towards Celiac Disease? 
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