Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

New To Celiac
0

6 posts in this topic

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I feel your pain. I just got diagnosed yesterday with Celiacs Disease. I feel very discouraged and scared to eat anything because a lot of foods contain gluten. I am meeting with a nutritionist who can give me more information about gluten free diets. All I know is that I must try my hardest to stick to gluten free living because the abdominal pain is unbearable.

I bought my first gluten free cracker yesterday to see how it tasted. It wasnt bad, tasted kind of bland and super dry but, it went down (with some water and prayer)... I guess I can get use to it. Keep hope, just remember that there is someone somewhere that has it way worse then us.

FYI Try looking into gluten free pastas and rices. They sell at whole foods. They are a lil more pricy but hopefully that will make your transition a little easier.

0

Share this post


Link to post
Share on other sites

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

I completely understand what you are going through. The first few months are extremely hard, but your taste buds do get used to eating gluten free foods. Gluten free pasta is amazing and has helped me get through this a TON. It tastes almost exactly the same as regular pasta (my family can't even tell the difference). You can find it in most major grocery stores in the pasta section (I use Walmart/Publix). Also, something else you can look into is seeing if there is an actual gluten free section in the grocery store. My Walmart does in the chip/snacky area. They have granola bar-like things, sweet mixes (brownies are my personal fave), other pastas, cereals (Chex cereal is amazing), and other nice things to have. I hope this helps! It just takes some time to adjust to this new life style but it is well worth it!

P.S. - I have been gluten free now for around 5 months

0

Share this post


Link to post
Share on other sites

I know it is a huge loss when you have to totally change the way you eat. You will be grieving for a while. But I think you are in for a nice surprise as soon as you start trying gluten free pasta's. They are excellent. My son says they are better than "Regular Pasta" and he really liked his pasta! That is the one thing we had no trouble replacing on the gluten free diet. Wish you the best of luck. We like Ancient Harvest pasta, but there are a whole lot of brands to try. Good luck! :)

0

Share this post


Link to post
Share on other sites

I'm a 17 year old girl and I was told about two weeks ago I have celiac and have to live gluten free if I want the pains I get to stop. The problem is my family is Italian and my fav food is pasta and seeing all my fav foods that I can't eat is killing me inside and it's really messed with my emotions and I haven't really been happy since I've had to be gluten free and I don't know what to do to get out of this upsetting state. I guess I just really need someone to talk to about it because my boyfriend thinks he understands cuz his dad has celiac but it's not the same and it's just been hard trying to ajust and I would really just like someone to talk. Thanks.

Hi im a 16 year old guy and im sorry you feel so bad. I just recently found out im allergic to gluten and i love pasta type foods too but i cant have it anymore either lol :P but there is gluten free noodles you can buy which i am going to try asap

0

Share this post


Link to post
Share on other sites




Welcome to all of you young new celiac people.. Now, I'm an old celiac person but my two grandkids are 11 & 14 both celiac.. So I go to extremes to find "REAL " tasting gluten-free goodies plus I test market gluten-free goodies. So within this forum there are many conversations for newbies to celiac..All very good & Very helpful.

Here are some of the better gluten-free things..

Pastas:

Bi Aglut ( our fav)

Tinkyada

Le Veneizane ( sp may be off)

Schar

``````````````````````````````````````````````````````````

Egg noodles:

The best to date is Seitenbacher gluten-free egg ribbons...

``````````````````````````````````````````````````````````````````````

Cont'e:

pierogi's

ravioli

`````````````````````````````````````````````````````````````

English muffins, bagels pizza & much more

Joan's gluten-free great bakes

`````````````````````````````````````````````````````````````````````

Egg rolls, Asian dumplings

Feel Good Foods

``````````````````````````````````````````````````````````````````

Gravy mixes & sauces

Full Flavor Foods

``````````````````````````````````````````````````

Donuts, crossiants & more

Celiac Specialites

````````````````````````````````````````````````````

cakes brownies & such

123 gluten free

Betty Crocker

King Arthur

Namaste

many more available

```````````````````````````````````````````````````````

Ready belnded gluten-free flours

Better Batter

Jules

meister's

omata living flour

Tom Sawyer

many more

``````````````````````````````````````````````Breaded fish & Shrimp

Starfish

```````````````````````````````````````````````````````````

Depending where you all live these items may need to be ordered by mailorder....

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,132
    • Total Posts
      919,526
  • Topics

  • Posts

    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    jen4az
    Joined