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Weight Loss..constant Struggle
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Hi everyone,

New to the board, fairly recent diagnosis (November 2011). I assume there are many people struggling with so many symptoms, so i was happy to find this forum. In my case the brain fog and weight loss is the most difficult to manage. Looking for suggestions from others with celiac disease. Thank you.

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Hi Amy. I'm new myself. The only advice I can give is to stay strictly with whole foods, naturally gluten free. No processed foods at all. This will also make sure trace gluten is not getting to you thru food (thinking of the brain fog) Also is Dairy or another ingredient causing you trouble?

Just things to think about. Good luck to you. :)

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Hi Amy. I'm new myself. The only advice I can give is to stay strictly with whole foods, naturally gluten free. No processed foods at all. This will also make sure trace gluten is not getting to you thru food (thinking of the brain fog) Also is Dairy or another ingredient causing you trouble?

Just things to think about. Good luck to you. :)

Thank you. Not sure about dairy. Im thinking i am not doing such a great job in managing this. I just avoid food. I was a 3000 a day eater and loved food and snacking. When i became sick last fall, my biopsy showed a raging case, yet i had no pain, and very few symptoms. It was quite strange, and docs were a little baffled as well. It seems this forum will be very helpful.

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I was just recently diagnosed (in May of 2012) and I was putting on a lot of weight before my diagnosis. All throughout college I was about 120lbs and just before diagnosis I topped out at 155lbs (I'm 5'3"). Just like you, never had any GI symptoms and the diagnosis was a total surprise. Diets and exercise never worked and I just kept packing on weight slowly but surely. Since going gluten free, exercising more, and being more conscious of what I eat, I've lost 15 pounds since May and I hope to lose some more! I also started seeing a nutritionist who is experienced with Celiac and that helped me a lot too. It seems that before I went gluten free, even though I ate a good amount of food (most of it contained gluten) my body went into starvation mode because it wasn't able to absorb any of the food I was consuming. Now that my body can absorb more, I think my metabolism has gotten much better and I'm able to start losing the weight.

My suggestion to you is eat whole foods - meats, fish, poultry, fruits, veggies, and nuts. I eat some gluten free substitute foods but I try to stay away from having too much because they often have too many carbs and calories which don't make the weight loss any easier. Drink a lot of water - I have about 12 cups per day, and that should hopefully help too....best wishes and let us know how you're doing!!

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You might also 'test' yourself for other foods your body cannot tolerate. I learned that here, at this site, and found many that I reacted to. When I keep those things out of my diet, I can drop 2 lbs a week, easy. I found I am extremely sensitive to corn in any form. A "contaminated" pill or a bit of citric acid (which is usually corn based in the USA, and seldom even listed on a label!) will shoot the scales right back up 5-10 lbs. And I am back to where I started in weight loss.

It can't hurt to test yourself, then you will know for certain.

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    • Hi Aly and welcome You may want to repost this in a new thread, that way more people will see it and can advise you.  I think you would be much better off getting the celiac test now, if you stay off gluten you will need to go back on it and that can be much harder. That said, loads of your symptoms look like they could be gluten related.  I had a persistent 'trapped nerve' for instance under my eye which would twitch like crazy. Since I went gluten-free doesn't happen any more.  Best of luck! Matt
    • Your scalp sounds like seborrheic dermatitis. I have that and although its better after going gluten-free its very persistent. The dermatologist recommended Nizoral shampoo for it and it does help. I think dairy has a big part to play with skin problems, for me at least. 
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
    • Just found this site today. Did you ever find one? I was diagnosed this year and I live on Oahu.
    • I was diagnosed this year and I live on Oahu. I have yet to meet another celiac, so that tells you something about our limitations here. I work in Waikiki and do frequent Rouffage. It is nothing fancy, small place, but keeps me fed when I need something. I also like Greens and Vines. It is a vegan restaurant and worth every penny. Greens and vines sets up at the KCC farmers market on Saturdays too. Places in Waikiki that do offer a gluten-free menu include, PF Changs, Dennys, Big City Diner and California Pizza kitchen. I do not trust those places due to the risk, but they "offer" gluten-free options. I did try and order a beer at Yard House in Waikiki. They label clearly states that it contained wheat, so yeah sent that back with the waiter. I have also tied Doraku in Waikiki. I called ahead and spoke with management. That went well and they offer gluten free soy sauce. There is a deli at Down to Earth Grocery store in Honolulu that has gluten-free options, but the whole foods here do not offer hot food that is gluten free. They do have a hot food bar, but you have to stick to the whole plain salad and veggie options. It's good to hear the hotels here are getting better, beyond Waikiki hotels there is no one really interested in being gluten free.
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