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Outrageous Things I Have Said And Done!


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24 replies to this topic

#16 squirmingitch

 
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Posted 30 July 2012 - 05:55 PM

I buy the envelopes that self seal. You know, they have that peel off strip. They really don't cost much more & I don't get glue all over a sponge nor have that awful taste on my tongue.

I have been enjoying the repartee but back to the OP's questions as I know it is truly a concern for her.

1D, I will admit that the things you proposed would sound weird to me if I didn't have celiac disease myself. I'll go one further & say that they would sound more than weird to me. I would call them over the top. All except for the last one --- the barley which gets your arms when you weed. That one would not sound odd to me at all.
However, if you were a family member or a dear friend & you explained things to me about the disease then they would not seem so weird. In fact I could understand them all except maybe the whiff of vinegar.

I think you have to have this disease or an anaphylactic reaction to some food or substance in order to truly understand how severely it can affect us. I think that's something we are just going to have to learn to live with.
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


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#17 1desperateladysaved

 
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Posted 31 July 2012 - 03:18 AM

"Does anyone else wash their hands after each cracked egg? Just wondering"



WOw! If I did that I would wash my hands 24 times just to make breakfast! :unsure: I wash mine before I start and when they get sloppy. My home-grown eggs are washed before they end up in the kitchen.
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#18 Razzle Dazzle Brazell

 
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Posted 31 July 2012 - 07:19 PM

Yep and with any ingredient change in the recipe and when I first get home and before I start cooking and when I am done. For me it doesn't have anything to do with gluten though as that was how my Mom taught me to cook.

I mean like press the bake button, wash my hands, open the oven, wash my hands touch raw meat, wash my hands, put food on foil wash my hands put in oven, wash my hands...open a cabinet, wash my hands! It is just that ppl put their gluten glutenous fingers all over everything!

I know that it's outrageous and crazy, but I won't shake hands with anyone or touch anything at church before the sacrament. If I'm going to touch something that is going in my mouth, I wash my hands then touch NOTHING. Everyone at church probably things I'm just a little bit nuts. :lol:


You keep sacrament! How do you do that? Isn't that like wine and crackers? Please forgive my ignorance and don't let the question offend you. I was thinking about Passover the other day. We usually do unleavened bread and all that but I will just be a sinner I guess b/c I am not so sure about suffering later. I don't think God would want that. I think it is mostly symbolic anyway. I guess I need guidance on that subject.
  • 0
Gluten and Oat Free 6/'12
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12

You only get one life so make it count.

#19 Razzle Dazzle Brazell

 
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Posted 31 July 2012 - 07:22 PM

"Does anyone else wash their hands after each cracked egg? Just wondering"



WOw! If I did that I would wash my hands 24 times just to make breakfast! :unsure: I wash mine before I start and when they get sloppy. My home-grown eggs are washed before they end up in the kitchen.


I suppose it would be easier if i was the only one who cooked in the kitchen. It wouldn't be saturated in gluten.
  • 0
Gluten and Oat Free 6/'12
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12

You only get one life so make it count.

#20 Razzle Dazzle Brazell

 
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Posted 31 July 2012 - 07:33 PM

Just for a moment imagine you were the healthy one and you heard or saw these things:

I accidentally licked an envelope, charged to the bathroom with my tongue out. Rinsed my tongue. Then I spent two days with fatigue.

Would you believe that?

I was in the same room where someone was using barley flour. I irritably complained that it made me dizzy and swollen.

Would you believe that?

I caught a wiff of vinegar and got dizzy, nauseated, and felt weak.

Yeah, right. Would you believe that? Doesn't it sound strange?

I planted the barley, which I could no longer mill and eat, in the garden for cover crop. Now each time I weed the garden my arms come in full of allergic rash.



Be honest would you believe this stuff?


I walked past the flour aisle at the store the other day and started choking and dry coughing uncontrolleably in the middle of the store. I could hardly breathe and took off running (okay maybe just fast walking) away from that area. It happens! Certainly believable.
  • 0
Gluten and Oat Free 6/'12
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12

You only get one life so make it count.

#21 Jestgar

 
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Posted 31 July 2012 - 08:00 PM

My home-grown eggs are washed before they end up in the kitchen.

Really? I don't wash mine unless they are really nasty.
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"But then, in all honesty, if scientists don't play god, who will?"
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#22 Razzle Dazzle Brazell

 
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Posted 01 August 2012 - 06:02 AM

Really? I don't wash mine unless they are really nasty.


I never thought about that but it kinda makes sense if we wash our pans to protect from cross contamination why not an egg shell that may have been sitting on hay or something idk. I guess it shows I don't have a basic knowledge in farming even though I live in the country. tee hee
  • 0
Gluten and Oat Free 6/'12
Dairy, Corn and Yeast free 7/'12
Nightshade Free, Candida diet & low salicylates 8/'12
Nightshades and carbs and sugars limitedly reintroduced, most salicylates now tolerated 9/'12
No longer Reacting to yeasty breads 10/'12
Test confirmed yeast overgrowth, back on Candida diet 11/'12

You only get one life so make it count.

#23 Jestgar

 
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Posted 01 August 2012 - 06:52 AM

My eggs are sitting on pine shavings. I only wash them if it's been a while since I cleaned the coop, and the eggs are also siting on poop.
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"But then, in all honesty, if scientists don't play god, who will?"
- James Watson

My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant

Leap, and the net will appear.

#24 cavernio

 
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Posted 01 August 2012 - 07:25 AM

Pretending I didn't know about celiac disease, or before I heard/knew about it really, I'll try to answer as best I can.

Just for a moment imagine you were the healthy one and you heard or saw these things:

I accidentally licked an envelope, charged to the bathroom with my tongue out. Rinsed my tongue. Then I spent two days with fatigue.


I'd believe you had fatigue all weekend, I'd be highly dubious as to the cause. I'd think that something else made you tired in conjuction with you thinking you'd be tired.

I was in the same room where someone was using barley flour. I irritably complained that it made me dizzy and swollen.

Would you believe that?


Swollen, I would've been dubious, dizzy, would believe. I have some very strong reactions to smells myself, dizziness has been one of those reactions, and inhaling particulates in the air seems to go hand in hand with smelling them.

I caught a wiff of vinegar and got dizzy, nauseated, and felt weak.


I'd believe it, again, due to my own seemingly lifelong sensitivities to smells, that I still think it separate from my celiac disease.

I planted the barley, which I could no longer mill and eat, in the garden for cover crop. Now each time I weed the garden my arms come in full of allergic rash.


Very believable, sounds like a 'regular' allergy, the type that I've known about all my life.
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diagnosed Jan 2012, bloodwork only
June 2012 positive visual of celiac disease from gastroscopy

#25 Bubba's Mom

 
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Posted 01 August 2012 - 10:33 AM

I walked past the flour aisle at the store the other day and started choking and dry coughing uncontrolleably in the middle of the store. I could hardly breathe and took off running (okay maybe just fast walking) away from that area. It happens! Certainly believable.

I've had this happen too. I got choken up when I passed through the bakery dept. (they were making bread) on my way to the seafood dept.

Another thing that my family thinks is crazy is..I won't go barefoot in the house. The gluten eaters drop crumbs all over, but more importantly, my whole house may be contaminated from straw that my hubby spread out all over in the back yard when it got muddy early in the Spring? He said as he was pulling the bale apart he noticed a lot of seed heads. If there was gluten, it got all over the soil. The dogs tromping through it and back and forth into the house..well who knows? I wish it would glow under black light or something!

It laid there for about a week before he said something about the seed heads. I freaked out and he and my son raked it up and burned it. The dogs walked through it a lot, and continue to walk through the area several times every day. :o
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