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Interesting Observation - Coffee
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This may be TMI for some so be warned LOL

I love coffee! But have always had a problem with it. It always made me gooooooooooooo! With in 5 min of a cup i would be running to the loo and while not having diarrhoea, it would certainly be classed as an emergency evacuation. Also if i had more than 2 cups a day (sometimes just 2 was enough) i would get symptoms like increased anxiety, electrical currents through the body things like that. I always put this down to too much caffeine.

BUT!

5 weeks gluten free this week. NO REACTION TO COFFEE AT ALL! No running to the loo, no anxiety, none of the things that would normally happen. 0. Ziltch.

This can not be a coincidence. But i have no answer as to why coffee and celiac could be linked in such a way. Its not the lactose in the milk because i switched to soy milk for a year a few years back and had the same reaction.

I was also told that coffee was a trigger for my GERD/GORD, but since gluten free GERD/GORD is gone too.

Its a mystery to me :-)

anyone have any insight?

thanks

troy

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Hey troy. So glad you can enjoy your morning caffeine, with pleasure.

Many times any food or drink will be a bother, gluten free or otherwise, until healing can take place.

Simple joys! :)

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Interesting. I know when I've eaten something I shouldn't my body holds on to a lot of water. Maybe the coffee was counteracting that for you, and when you changed your diet, your body didn't need the help any more?

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I think coffee does that for many people. I'm one of those who never gets D but always has C so coffee is vital for me to get me "going" each day. Without coffee I'm at a full stop even with huge amounts of fibre supplements.

Maybe coffee has more of an affect because our guts are damaged but now you are starting to heal so it has less effect? Just a theory.

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I've just been reading that some research is showing that the protein in coffee is cross reacting with the gluten antibody in our intestines. As your intestines heal the antibody levels drop and so the cross reactions slow and eventually stop.

Can this be true? I suppose it's possible. It would explain my mystery.

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This may be TMI for some so be warned LOL

I love coffee! But have always had a problem with it. It always made me gooooooooooooo! With in 5 min of a cup i would be running to the loo and while not having diarrhoea, it would certainly be classed as an emergency evacuation. Also if i had more than 2 cups a day (sometimes just 2 was enough) i would get symptoms like increased anxiety, electrical currents through the body things like that. I always put this down to too much caffeine.

BUT!

5 weeks gluten free this week. NO REACTION TO COFFEE AT ALL! No running to the loo, no anxiety, none of the things that would normally happen. 0. Ziltch.

This can not be a coincidence. But i have no answer as to why coffee and celiac could be linked in such a way. Its not the lactose in the milk because i switched to soy milk for a year a few years back and had the same reaction.

I was also told that coffee was a trigger for my GERD/GORD, but since gluten free GERD/GORD is gone too.

Its a mystery to me :-)

anyone have any insight?

thanks

troy

Say 5 Hail Marys and celebrate with a coffee cake.

Or. Chant for 10 minutes and make a coffee cake.

Or. Read Revolations and make a coffee cake.

Or. Knee toward Jerusalem and bow to Allah. Then make the coffee cake.

Or. Just make a coffee cake and eat it :D

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Say 5 Hail Marys and celebrate with a coffee cake.

Or. Chant for 10 minutes and make a coffee cake.

Or. Read Revolations and make a coffee cake.

Or. Knee toward Jerusalem and bow to Allah. Then make the coffee cake.

Or. Just make a coffee cake and eat it :D

LOL idiot. Not quite the insight I was looking for :-P

But you make a good point, I'm getting a coffee lol

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I've just been reading that some research is showing that the protein in coffee is cross reacting with the gluten antibody in our intestines. As your intestines heal the antibody levels drop and so the cross reactions slow and eventually stop.

Can this be true? I suppose it's possible. It would explain my mystery.

There is no such research. It's an urban legend that has cropped up on the internet recently. I have looked up all the supposed scientific references and they say that coffee allergies and reactions are actually quite rare. <_<

Coffee is a bit of a GI irritant and it's hard on folks with stomach trouble. It was probably too much for your system to handle. I used to be told to give up coffee because I had "gastritis". Pity my doctors never told me to give up gluten.

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Coffee/caffeine has been known to be inflammatory to the bowel as well as a laxative to many folks. Personally, I don't drink the stuff anymore since the colitis diagnosis. But that might be the problem for many people. I know even people with muscle/back problems/joint problems have been seen to improve on a caffeine free lifestyle.

B)

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I know I sound like those people who say they'd die if they couldn't have bread, but I will never give up my coffee! Nectar of the Gods! Greatest "invention" mankind has ever come up with! My reason for getting up in the morning! First thing on my list when I say my prayer of thanks every day! What makes life worth living!

Um...can you tell I like the stuff? :lol:

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Um...can you tell I like the stuff? :lol:

Umm....no, Bart! laugh.gif As I'm sitting here having a cup of decaf as I really do prefer sleeping at night. biggrin.gif

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...and to think I have not had coffee since my all-nighters at university! I absolutely abhor the stuff. But today I was making a practice run of a gluten-free wedding cake and used coffee in it. That is the closest I have been to it for a very long time! :P

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...and to think I have not had coffee since my all-nighters at university! I absolutely abhor the stuff. But today I was making a practice run of a gluten-free wedding cake and used coffee in it. That is the closest I have been to it for a very long time! :P

Hmmm...cake and coffee, score!! And I'll take a cup o joe on the side to wash it down! Let us know how that cake comes out!

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Hmmm...cake and coffee, score!! And I'll take a cup o joe on the side to wash it down! Let us know how that cake comes out!

And you know if it's a wedding cake, it must be huge...that means we should all volunteer to be the "official tasters". laugh.gif

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I used to be exactly the same way with coffee! Since being gluten-free, I too know longer have the effect! My husband still asks, "You o.k. in the bathroom?" before he uses the bathroom. However, in the end, when I got so sick; didn't matter what I drank or ate, I could never be far from a bathroom. I have since learned my electrical shocks are/were nerve damage caused from all the viruses in my body attacking my ncs...causing nerve damage. That is related to your body attacking the gluten in your body (good guys recognize it as a bad guy and trying to get rid of it). When this happens, the body is unable to keep viruses you have been exposed to down in your body (the good guys are calling in reinforcements to attack the gluten; other bad guys go unguarded) thus allowing viruses to become active in the body and floating around doing whatever damage they can; just happened to be my central nervous system. I take an anti-virual med to help my good guys! Since being dx the amount of meds I now take have been cut in half...it can be done, just takes patience, time, and being faithful to the gluten-free lifestyle! I also take olive leaf extract, just make sure it is at least 17% Oleuropein..natural anti-viral and it helps a lot with energy and keeping bad guys at bay!

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Only been about three weeks since going gluten free. I would kill be able to drink regular coffee again. I've been limiting myself to one cup decaf on Sundays for some time now. Like most folks whose posts I've read - I ain't cured. But have noted dramatic changes in digestion. No more bloating or constant gas. And no horrendous constipation. I lived in India for 10 years and there where everybody else who got sick would end up with the runs - I often suffered two month long bouts of constipation where with out strong laxatives - nothing was "going down".

Last week I ate one or two fists full of pistachios which I haven't touched in ages and got a little stuffed up - so I took a gentle stool softener and voila! All was good next morning. Previous to going gluten free - I'd be taking two or three softeners several times a day to rectify the problem. Still can't believe that after all the years of complaining to my doctors about my issues - that none of the dummies ever thought to test for celiac.

I'm generally a good healer and have high hopes of regaining a strong semblance of normal health. I so much want to return to friends and family in India - but have been afraid of doing so and have not been back for three years.

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Since going gluten-free I can't drink coffee anymore. I used to occasionally experience an over-caffeinated feeling with coffee, like jitters and trouble sleeping. But recently a single cup of coffee will make me feel ill, and the caffeine symptoms are so strong that they worry me. No more coffee for me.

Do you think this might be because my body is now absorbing things better, and more caffeine is getting through the system?

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And you know if it's a wedding cake, it must be huge...that means we should all volunteer to be the "official tasters". laugh.gif

Yes definitely! I'll get my fork!! 😄😄😄😄

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Yes definitely! I'll get my fork!! 😄😄😄😄

I think she must have eaten it herself! tongue.gif

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I really dont think I could ever give up coffee unless I knew it was something that would directly kill me. lol

I am a coffee drinker for the flavor though, not so much the caffine, so I would be willing to switch to decaf if needed. I think I have been drinking coffee so regularly, and for so long that I only notice when it is decaf. Meaning, that I dont notice a "perk" or caffine jolt when I drink it, but I get intense caffine withdrawl migraine headaches when I stop. Last time I made the switch to decaf was when I was pregnant and I did it slowly, but it could be done, and I didnt miss the caffine once I switched.

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I had to completely give up coffee during my time of getting more and more sick pre-diagnosis, but I am able to drink it in moderation now. I found that switching to cold-brew coffee (Toddy), which has significantly lower acidity, really helped me as well. I guess the acidity was a big factor in my trouble with it.

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I had the same response, less urination urges after coffee. I also used to get urinary tract infections frequently, all gone.

I recently had to stop eating corn. I had long associated urinary tract infections with high fructose corn syrup. Interestingly, my gastro just suggested that my corn intolerance isn't really to corn, it's to fructose. I'll soon see if she's right.

I think when you start to eat right, you can't help but elminate a lot of food that isn't good for you. In the end, you'll get better results from all over your body.

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Only been about three weeks since going gluten free. I would kill be able to drink regular coffee again. I've been limiting myself to one cup decaf on Sundays for some time now. Like most folks whose posts I've read - I ain't cured. But have noted dramatic changes in digestion. No more bloating or constant gas. And no horrendous constipation. I lived in India for 10 years and there where everybody else who got sick would end up with the runs - I often suffered two month long bouts of constipation where with out strong laxatives - nothing was "going down".

Last week I ate one or two fists full of pistachios which I haven't touched in ages and got a little stuffed up - so I took a gentle stool softener and voila! All was good next morning. Previous to going gluten free - I'd be taking two or three softeners several times a day to rectify the problem. Still can't believe that after all the years of complaining to my doctors about my issues - that none of the dummies ever thought to test for celiac.

I'm generally a good healer and have high hopes of regaining a strong semblance of normal health. I so much want to return to friends and family in India - but have been afraid of doing so and have not been back for three years.

@K

Hi K,

I hope you do get back to normal health. Our bodies do have an amazing capacity to heal. Whole foods are a good way to avoid many chemicals and cross-contamination issues. I gave up coffee several years ago myself after going gluten-free. It just didn't work anymore for me.

Since going gluten-free I can't drink coffee anymore. I used to occasionally experience an over-caffeinated feeling with coffee, like jitters and trouble sleeping. But recently a single cup of coffee will make me feel ill, and the caffeine symptoms are so strong that they worry me. No more coffee for me.

Do you think this might be because my body is now absorbing things better, and more caffeine is getting through the system?

@Kitty Same here Kitty, coffee and caffeine in any form bothers me. I don't drink sodas with caffeine either. Even chocolate has some caffeine in it. Not much but some. You probably are starting to absorb foods better, but I am not sure if that is the issue. Caffeine just has bad affects om some people it seems. I used to drink a lot of coffee before going gluten-free but now I can't handle it. I am not sure why, but it doesn't agree with me anymore.

And she probably did eat the whole cake! But she probably didn't get any sleep that night either.:)

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I have never been able to drink coffee. Always made me sick to my stomach, headaches and put me to sleep even the smell would nauseate me. What was interesting is cigarettes did the same thing. Found out a few years ago it was due to the tannins in the coffee and cigs.

Didn't like the taste of cigs or coffee anyway so no biggie.

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    • I just now saw the second reply and I see what you mean. Again, the issue is that I may have to go with the gluten until close to the end of the year.

      However, an idea did just come to mind, and that is, can my primary care doctor do such a test? I had normal blood work done, but they didn't really say anything about testing for celiacs. I can get an appointment with my primary care doctor much sooner than a GI.

      When I was talking to my PCP last, I asked her what I should expect as far as testing goes or what she may have been concerned about. Her reply was about a HIDA scan for the gallbladder but also any test needed in case of IBS or Celiacs. Just the way she threw that in there like an after thought and left me hanging kinda had me worried.
    • I am not a doctor that's for sure.  So, I can't even answer your questions.  If you know you have pre-diabetes, you probably are working with a doctor.  Can you email them and ask for a celiac blood panel?   You can work on the weight loss and diabetes -- that you can handle yourself now and take action.  I have diabetes and my glucose readings are fairly normal now without medication and I'm thin.  Being overweight does not cause diabetes.  It's either autoimmune (type 1) or you become insulin resistant (type 2).  You can cut out all sugar and  processed stuff ASAP to help take action and start walking 10,000 steps (helps with the insulin resistance).    But the prediabetes is not going to kill you in the next year.  Whatever's in your gut is more likely going to get you much sooner.  But heck, I'm not a doctor and I don't even know you!    
    • Hi Steph, Yes, celiac disease can cause a myriad of symptoms and damage to the body,  Have you completed all celiac disease testing?  Usually they do the blood antibodies test first and then do an endoscopy.   You shouldn't go gluten-free until all testing is completed. Gluten is in many processed foods.  But if you stick with whole foods it is not hard to avoid gluten.  Getting used to eating gluten-free may take some time, as we need to adjust our preferences in diet.  But there are many foods that are naturally gluten-free.  Gluten is the protein found in wheat, rye and barley.  Some celiac disease organizations recommend avoiding oats also for the first 18 months of the gluten-free diet. Celiac disease impairs the ability of the body to absorb nutrients (including vitamins).  That can make it hard for the body to maintain itself and heal/repair damage.  So celiac can easily impact any part of the body. Sardines, tuna, mackeral and salmon have good amounts of vitamin D in them.  There are supplements available also, but not all are good.  You can check them at the labdoor website.  Nature Made is a good one and not expensive.  Internal damage from celiac can cause liver issues.  Those will probably clear up after being on the gluten-free diet a while. Recovery from celiac can take  months, and can be a rocky road.  The more you stick with whole foods and avoid cross-contamination issues the sooner you will heal IMHO. You may find that dairy causes problems for your digestion at first.  But it make stop being a problem after you have healed up some. welcome to the forum!
    • Will this be dangerous considering how long I have to wait for any testing? I may not even get a blood test in November but here is hoping. I just worry having to wait so long will cause serious issues, not to mention delay of weight loss which I need for the pre-diabetes. Do ulcers have a chance to cause yellow stools though? I suppose a stool test will be needed for that for any signs of blood in stools but visually it does not seem so. The biggest issue is not knowing what else could be causing the yellow stools as this would not be a diabetic or ulcer thing. And without negative signs on the gallbladder or liver, it is narrowing down the list.

      At the very least this is making me assume I can wait on a final scan of gallbladder and attempt blood tests and endoscopy if they recommend it.
    • The first step is getting a celiac blood panel.   Any medical doctor can order one.  Live near Chicago?  They are do free screenings this month (check their website).  The cost is less than $400 for the complete panel.  If you get a positive on any one of them, then you should be referred to a GI for an endoscopy to obtain intestinal biopsies.   Here's more information from a reliable source and not just some lady on the internet: http://www.cureceliacdisease.org/screening/ Having had my gallbladder removed (probably ruined from undiagnosed celiac disease, but I don't know that for sure), I would recommend a HIDA scan.  I have no idea how expensive that one is.  It's a nuclear test that checks for functionality.  Basically, is your gallbladder squeezing bile into your small intestines when those fries or bacon come down the tube.  Mine happened to actually be rotting (infected).  ER suspected appendicitis, but it was a rotten gallbladder.  I never had any stones (that's what the CT or the ultrasound can find).  I am sorry that you are ill.  Keep eating gluten until all testing is complete.  This is important.  Go gluten free now?  Here's why you shouldn't..... http://theceliacmd.com/2013/04/six-reasons-to-test-for-celiac-disease-before-starting-a-gluten-free-diet/  
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