Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Testing Younger Sibs
0

6 posts in this topic

So what are your thoughts all?

My DS is 5.5 and has food allergies and Celiac. Because of safety (crumbs plus his anaphylactic reaction possibility) his 3.5 yo sister is on the same diet here at home. My 9 month old will be gluten-free till at least a year but most likely longer for the same reasons my daughter is. She started preschool last spring and her teachers has all the same allergies and gluten issues, she was also DS's teacher so she knows our drill so it's not a really big deal now. I am wondering if/when would you consider a gluten challenge? Would you even? Should we do the genetics? I am guessing they'll be + since gee, the kids are genetically linked so wouldn't the chances be pretty high? I am just thinking out loud here.

0

Share this post


Link to post
Share on other sites


Ads by Google:

My kids are in the process of testing now because I have celiac. Two of my boys have symptoms that could be celiac but I'm unsure if that's it. They are 9,7 and 5. I am switching everyone over to gluten-free this summer because like you, I think it's better safe than sorry... and it's easier. :P

While they live with me, they'll have to be gluten-free even if they test negative. As teens, if they start to stray from the diet to eat the junk that teens like, then I will push them to be tested after 6 months to a year. (I've heard that after being gluten-free for years you need to consume gluten a long time before any tests will be positive.) They are all so young now, that I have a few years to drill the seriousness of the disease and the need for testing, into their heads... hopefully it will stick. ;)

So I guess, no. I won't put them on a gluten challenge if they test negative, but if they do it them selves when they are older, I'll support their decision... but I won't serve gluten in the house.

0

Share this post


Link to post
Share on other sites

I guess I am wondering too if I should get he baby tested as he may be getting some gluten via breastmilk. I am thinking maybe before kindergarten for DD as I am not going to be able to get a 504 for her unless we have a dx.

I wish ere were an accurate way to test without having to be on gluten :P

0

Share this post


Link to post
Share on other sites

I think it's hard to get an accurate test for babies and toddlers... This is tricky when they are so small...

Have you been tested for celiac? I just ask because I read an article, can't remember where now - darn, and it discused how undiagnosed celiac mothers could possibly pass on celiac (triggers) to their kids because the antibodies could be in the milk... I'm not sure of the validity or reliability of the paper but it's something to consider. I know it sure disturbed me. :(

Best of luck with your decision. I hope it goes smoothly for you all either way. :)

0

Share this post


Link to post
Share on other sites

I have been tested (celiac panel but not genetics) and I was negative. DH refuses to get tested <_<

Like I said I just wish there were an easier way.

0

Share this post


Link to post
Share on other sites




((HUGS))

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,142
    • Total Posts
      919,559
  • Topics

  • Posts

    • Mnoosh,    Can you give us a link to the article you read about the increased risk after being diagnosed and maintaining a strict gluten-free diet??       IMO,   You are over reacting to a misprint or most likely a misread article.
    • Yes!  With dairy, celiacs can often have a temorary lactose intolerance due to damaged intestinal villi (where the enzymes normally are released to digest lactose).  Of course you could be naturally lactose intolerant based on race or age.  It is best to stick to a whole foods diet while you are healing.  Really, is ice cream or potato chips going to provide you with nutritional value?  Stick with naturally gluten free foods like meat, fish, fats,  veggies (even those with carbs like sweet potatoes or winter squash) and fruit.  Avoid that processed junk as you may react to the additives right now.  Later, you can add back in dairy (test) and other foods you miss and crave.   Good luck!  
    • Take a deep breath and calm down!    The incidence of cancer with Celiac Disease is rare.......it can happen but the vast majority of people never have that experience.  You may have somewhat enlarged lymph nodes due to inflammation from undiagnosed Celiac but that will all calm down and go away once you get going on the diet.  Believe me, there are many of us that have things happen during the diagnosis and early recovery period and everything turned out just fine.  There is an elevated risk for some cancers with Celiac but that risk goes back to that of the general population after a couple of years on the gluten-free diet. I cannot remember the exact time frame but it is somewhere between 2-4 years, I think.  So many of us went years without a diagnosis and when it was all figured out, we have gone on to be healthy with little complications.  Really...do  not worry about this.  Concentrate on learning all the ins and outs of this disease and how to live gluten free happily.  We are here to help you and guess what? The diet is not as bad as some make it out to be. Many things can be made gluten free and are every bit as good as their gluten counterparts. The diet may not be convenient but it is not hard. I would not lie to you!   
    • Well....one common symptom that most celiacs have when they are diagnosed (or undiagnosed) is anxiety.  So, there is a risk of cancers, but science has demonstrated that that risk goes down on a gluten free diet (if you have celiac disease).  In goes down to the same risk as those without celiac disease.   I kind of was a basket case.  I drive my family a bit crazy because I was anxious.  I felt a bit stupid too.  I guess I had a little brain fog going on too.  All that resolved after I healed. Welcome to the fourum.  Read our Newbie 101 thread under "Coping" (pinned at the top of the page) and learn about hidden sources of gluten and cross contamination.  I think most of us do not worry about cancer. We mourn the freedom to eat anything anywhere!   I did not have swollen lymph nodes, but I am sure others have and they did not have cancer.  Hopefully, they will chime in and set your mind at ease.  If not, you can search for "lymph nodes" at the top of the page (little magnifying glass).  There are lots of members with the same issue!  
    • I was recently diagnosed as having celiac and to be honest the part I'm having the most trouble with isn't the change in food or lifestyle. I'm really upset about what I've read about the risk of cancer increasing with celiac disease. I think this is playing into my fears because I currently have lymph nodes all over my body-my Doctor says they are not considered swollen or concerning, but I don't usually feel nodes. The lymph nodes and horrible diarrhea for the last 3 weeks were what got me into the the doctor for lab work. My blood work came great so I'm wondering if anyone else experienced lymph nodes reacting when they found out they were celiac? Also how do you deal with anxiety surrounding the increased risk of cancer? Thanks!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,174
    • Most Online
      1,763

    Newest Member
    Mnoosh
    Joined