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Pre-Celiac?
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2 posts in this topic

My naturopathic Dr. had told me to get off gluten earlier this year. I did so - on and off. :-) You know how that goes right?

Well, one reason was because of adrenal fatigue. Another was because of persistent dizziness and numbness in my left leg. It used to be a lot worse - in my left hand all the time and even loss of some muscle control. It is better, but the symptoms come on so randomly.

I took an (Company Name Removed - They Spammed This Forum and are Banned) blood test and guess what? It came back SEVERE intolerance to wheat and a MODERATE REACTION to gluten/glaidin.

I've sen the results to my regular MD to see if they will allow me to take a celiac test.

I'm so upset today. Honestly. The drastic food changes I'm sure are a part of it, but more importantly just not knowing where this odd ball neuropathy comes from. The regular Dr.'s have done brain scans, thyroid testing, blood sugar, and other overall workups.

Has anyone been through this?

And, does this sound like Celiac?

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Have the doctors done a B12 level on you? If not it might be a good idea. If your under 500 some sublingual B12 might help. Make sure you see the test results as some doctors go by 250 as the lower cut off and that has been shown recently to be too low.

If you still on gluten it isn't going to hurt to have them do a celiac panel on you. We can show negatives on tests even on a full gluten diet and if you have been gluten free or gluten light you should go back on gluten for a couple of months before you get tested.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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