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Posted 10 August 2004 - 08:45 PM
You're right...but the problem is that the doctor (specifically an Internist, which is what we call them in America [you're German, right? ], which are the doctors responsible for testing patients and referring them to specialists, such as Gastroenterologists--Gut doctors) only has symptoms to rely on--so the unfortunate part, which makes me as angry as it has made you, is that this doctor takes part in what I'd like to call for lack of a better phrase, "educated guesswork." For example, if your symptoms are nausea/vomiting, an Internist will test you for any illness/disease/whatever which falls under the nausea/vomiting category, such as pregnancy tests (morning sickness), the flu, anemia...but then the test results are normal. I have shared your frustration prior to my diagnosis, and I feel your pain.
Statements such as "you're too skinny to be a Celiac" are just plain insensitive and ignorant on a doctor's part. I say, do the job! Doctors should use their knowledge wisely, not make wise-@$$ comments like that. I must admit, that ranks right up there with "if this is what I think it is, it'll go away."
I guess that while doctors can be frustrating at times, you have to get a feel for their indecisiveness, because it's mostly because they're scrambling to find a diagnosis if they're not familiar with celiac disease--there are wide range of symptoms, physical and psychological, so sometimes the doc may not get the big picture and diagnose one symptom (depression=manic depression, constipation/gas = IBS).
Above all, I think it's best for all of us, diagnosed or undiagnosed, to take full control of our health. If you believe it's celiac disease, and the doc is refusing to test, don't back down...it's YOUR health, and only YOU can preserve/protect it.
Just my thoughts--thank you for listening.
Posted 14 August 2004 - 06:18 PM
I too had a frustrating time diagnonsis gluten sensitivity. My primary at the time was cluless. I found celiac.com, then enterolab.com. I sent in a stool test and it came back "significant gluten sensitivity". Then i sent in for the gene test and it came back that I did not have the main gene for celiac disease but had 2 copies of the gluten sensitivity gene. A gluten-free diet helped tremendoulsy. I urged my parents to be tested but their doctors refused. One year later after my mom had 1/2 her stomach removed due to stomach cancer the oncologist finally agreed to test her and she came back positive for celiac disease!
I don't know what it will take to wake these doctors up...
Check out Enterolab, Dr. Fine was right..
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