Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Feeling Low
0

10 posts in this topic

Hi,

I feel like i just need someone to talk to who understands and doesnt think i'm a hypercondriac.

I found out I have Celiacs 3 months ago. I instantly went Gluten Free and have stayed that way. Before finding out I was always tired and had no motivation, never really depressed but very low and also over weight with lots of stomach cramps.

When i went Gluten Free I did feel better at first, i had more energy and no stomach cramps although I didnt feel 100% I felt an improvement.

Now I still remain without the stomach cramps but for the last week or so I have been back to feeling tired and low and just cannot motivate myself. i am finding doing my job daily difficult and I seem to have no time for my boyfriend I have paid him no attention at all because I just dont feel like I want to.

Is anyone else feeling like this or has anyone else felt like this? Am i going mad? Is this something not related to Celiacs?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I had about one week of feeling physically great and then lapsed into difficulties and depression. I reacted forcefully to smelling allergens and accidental contact with gluten. Now, after 3 months I am usually feeling okay. I have bloating issues, but my mind is clear and not dizzy except some days. I am struggling to understand how to get even better. I am having trouble making everyday decisions. The diet is causing stress in my family. But I think that this will pass and I have hope for better times ahead.

I hope you have hope too.

DT

0

Share this post


Link to post
Share on other sites

I went seriously gluten free (was gluten light for a long time beforehand) about three months ago as well. Like you, I felt a lot better at first, and felt very hopeful. However, over time I started developing more food intolerances and things weren't improving as quickly as I wanted. The rational part of me realizes that healing takes time and to be patient, but it is so hard to be patient when you have been struggling with something for so long.

Motivation is a problem for me too, which is bad, as I'm trying to complete a Ph.D. right now. Every day feels like a battle and my life basically consists of making sure my schoolwork doesn't fall apart, cooking (because now I need to make a lot of things from scratch), trying to eat when I can (because I've lost so much weight being sick), resting, and trying to find some time to spend with my boyfriend so he doesn't get even more frustrated with me.

You are not going mad. Life is just really hard sometimes and it takes its toll on us. Just keep moving forward like you have been doing, and try to feel good about the improvements you do see -- I find that helps a lot. Take care :)

0

Share this post


Link to post
Share on other sites

It takes a while to figure out how to really avoid all cross contamination and to customize your food choices so you can function. Do not forget, you have an auto immune disease, and many people with the kind that needs to be medicated are given a sort of "pass" by society to be .... less than energetic, yet we are supposed to be "normal" other than the food selection thing. :blink:

For me to pass as "normal" in some activities I have to do a ridiculous amount of planning (make sure food is packed to take along, plan what times to snack to maintain energy) and then I have to do a ridiculous amount of physical conditioning and exercises. Carefully, so I don't injure myself. Plus I have to remember to still take vitamin and mineral supplements. And then I have to allot "recovery time" the day after. This is normal for me, and many people here, but actual normal healthy people have no freaking clue.

0

Share this post


Link to post
Share on other sites

Hi,

I feel like i just need someone to talk to who understands and doesnt think i'm a hypercondriac.

I found out I have Celiacs 3 months ago. I instantly went Gluten Free and have stayed that way. Before finding out I was always tired and had no motivation, never really depressed but very low and also over weight with lots of stomach cramps.

When i went Gluten Free I did feel better at first, i had more energy and no stomach cramps although I didnt feel 100% I felt an improvement.

Now I still remain without the stomach cramps but for the last week or so I have been back to feeling tired and low and just cannot motivate myself. i am finding doing my job daily difficult and I seem to have no time for my boyfriend I have paid him no attention at all because I just dont feel like I want to.

Is anyone else feeling like this or has anyone else felt like this? Am i going mad? Is this something not related to Celiacs?

Yes, for me the emotional symptoms were and remain the most powerful. After the first 2 weeks I felt really good and felt like I was making strides. Then it hit me again and i felt so dissapointed and discouraged, and I went into a deeper hole than i was even before i found out. It is a roller coaster ride, i would say even now 5 months into the diet it is challenging and has its ups and downs. If you remember math class my feelings go up and down like a wave, but the trend line is pointing up, if you know what i mean.

After 5 months I can objectively see how much better I feel, but in the moment, when something bad happens, or you eat a little gluten and react, it can feel like the whole effort was for nothing and you are a failure. You have to resolve to push through the tough moments. I still fight that battle most days.

It is nice to be able to come to the forum and get reassurance and support. You are headed in the right direction.

0

Share this post


Link to post
Share on other sites




Hi there,

Sorry you are feeling low. One thing I wanted to mention is you may want to have your Dr. check all of your vitamin levels if you have not already. I was diagnosed two years ago and was doing great is at first then felt miserable again on and off for the past year. I had thought maybe I was getting accidently glutened or even worse maybe this was what my life was going to be like going forward. I finally went to my endocrinologist and had her run a full blood panel and we uncovered that I have a B12 deficiency. I am now being treated for that and most all of my symptoms are better. My symptoms were stomach pain, extreme fatigue, neuropathy, strange rashes on my legs, and tachycardia. I was also feeling anxious and depressed which was really unusual for me. So while it takes time for sure to heal and deal with everything with this diagnosis make sure you are not overlooking something else that may be causing some of your symptoms. Hope you start to feel better soon!

1

Share this post


Link to post
Share on other sites

It takes a while to figure out how to really avoid all cross contamination and to customize your food choices so you can function. Do not forget, you have an auto immune disease, and many people with the kind that needs to be medicated are given a sort of "pass" by society to be .... less than energetic, yet we are supposed to be "normal" other than the food selection thing. :blink:

For me to pass as "normal" in some activities I have to do a ridiculous amount of planning (make sure food is packed to take along, plan what times to snack to maintain energy) and then I have to do a ridiculous amount of physical conditioning and exercises. Carefully, so I don't injure myself. Plus I have to remember to still take vitamin and mineral supplements. And then I have to allot "recovery time" the day after. This is normal for me, and many people here, but actual normal healthy people have no freaking clue.

What kind of mineral supplements do you take?
0

Share this post


Link to post
Share on other sites

It is normal to have ups and downs. After two or three weeks I felt fantastic, then I started sliding back downhill. Some of it was due to other intolerances rearing their ugly heads, and some of it I'm sure was due to unintentional glutenings. Have you read the newbie thread? It will point out the places gluten hides, such as scratched teflon pans, your toaster, collanders, and even cosmetics and shampoos. Also, you must make sure supplements and medications are gluten-free.

But even if you are 100% gluten-free and have no other intolerances, you are still healing and are bound to have setbacks. It took me a year before I started feeling consistantly good, and even now there are days when I wonder where my energy went.

But hang in there and know that this is normal, and that you're not alone. We are all here for you. :)

0

Share this post


Link to post
Share on other sites

Definitely have your B12 and your vitamin D levels checked. A deficiency in both of these can affect your mood as well as cause other symptoms. Also, it is normal to have good and bad days. I went grocery shopping Saturday afternoon. Half way through my trip I decided it was not the best day to go to the grocery store since I was feeling sorry for myself because of all the yummy things I can no longer eat, which humans really should refrain from eating. Of course it could be PMS. :)

0

Share this post


Link to post
Share on other sites

So sorry to hear that you're not feeling great - I think I'm in the same place as you right now.

I was diagnosed in May and was doing pretty good and was starting to feel more confident. At this point, I'm pretty sure that I was glutened 2 weeks ago, because ever since then I have been falling asleep on my desk at work every day and its horribly embarrassing. In fact, one of my coworkers asked me today if I was ok - I was mortified. My GI system has been a bit funny so I've been taking it easy. I feel like the upswing is coming soon.

From reading other posts on here, it sounds like we will go through our ups and downs for a while before we stabilize. I just keep reminding myself that there IS a light at the end of the tunnel and I'm doing the best that I can - it sounds like you're doing a great job too. Keep hanging in there and come onto the forum whenever you need support!!

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,675
    • Total Posts
      921,694
  • Topics

  • Posts

    • Thank you everyone! Good to know I am not alone with this. I am asking for a referral to a new cardio. Hopefully it will all go away the longer I am gluten-free. It started up in February/March after a gluten challenge and mostly vanished until July when I had a lot of shortness of breath. It absolutely was CRAZY just a few days after the glutening. I was gasping for breath and the beats were all over the place just walking through a parking garage and I was only mildy anemic at the time.   But it seems to "quiver" and do funny things for a bit still. I sort of theorized maybe it was inflammation in the heart because after this last glutening, my head felt like it was in a vice and my eyes would sting or get stabbing pain hurt (that is finally going away thankfully...knock on wood).  The head/eye pressure I learned also happens to my sibling who has celiac and his naturopath told him that sometimes the brain gets inflamed. Hopefully I can meet the new cardio soon and feel confident that he is taking me seriously. It is sort of difficult to feel confident in the opinion of a doctor that your ticker is ok when they are not really listening and end up making you cry. LOL. A friend of mine in the mental health field recently listened to my story of doc after doc and test after test and said that it was akin to the folk story of blind men describing an elephant. A group of blind men all feel one part of an elephant (tusk, tail, ear, tail) and then compare notes only to find they all disagree.  In some  versions they argue intensely. In other versions they have to collaborate and listen to each other in order to "describe" an elephant.    
    • Good afternoon! I am new to this board and fairly new to researching Celiac Disease, although I had a general idea what it was. My health has become a huge mystery to me, and it's one that I am desperate to solve. The biggest issue right now is horrible, life affecting fatigue. I have been dealing with it for several years now- as many as 5 to 6. It has gotten progressively worse, and nothing at all helps. Sleep apnea has been ruled out. Intestinal issues are something I have dealt with for almost two decades. I'm 45, but I've already had two colonoscopies as well as two endoscopies. My first endoscopy was as a child for persistent, severe stomach pain. My last colonoscopy and endoscopy was two years ago. The only thing that has come from those is an Irritable Bowel type condition and GERD, which is pretty bad. My bowel movements have always been crazy. They can be very normal and healthy to completely crazy. I've had periods of persistent diarrhea to occasional constipation, which is a fairly new thing within the last year. Last week, I went from having diarrhea that morning to hard, round balls of stool by that evening. My most common stools here lately, though, are not quite diarrhea, but more fluffy, large piles. Gas is an ongoing, daily issue for me. I have copious amounts of gas every day no matter what I eat or drink. Most of the gas in non-odorous but it can be very loud. I am currently on a total of 60 mg of Ritalin per day just to function. I often add energy pills, purchased from places such as GNC, because the Ritalin isn't working. Yesterday, I took both doses of Ritalin and two energy pills, and I passed out on the couch after work. I work from 7:30am to 3:30pm, and my work day is nothing too crazy. I try to keep very consistent sleep hours and could easily sleep to 1:00pm or longer if I don't have to get up for something. I sometimes have short periods of energy in the mornings, but that is usually over by noon. The quality of my life is greatly affected. I don't want to go anywhere or do anything because I am way too tired. I'm trying to keep up with my exercising, but that is also a struggle.  I have a history of clinical depression for practically all my adulthood, but it has been very well managed for the last four years. The fatigue is currently causing a great deal of depression, but it is very different from the clinical depression that I use to deal with. When I don't feel sleepy and tired, I don't feel depressed. When the fatigue sets in, I feel very irritable and sad. I realize that the stimulants can cause irritability, but I don't feel irritable or sad when I'm not feeling fatigued.  I've only recently began to explore that the fatigue and the intestinal issues could be related. I have always accepted that I have a sensitive, cooky digestive track. The increasing, unrelenting fatigue is what has lead me to exploring the possibility that everything could be related. I did have blood work last November. My doctor did not test for anything Celiac Disease specific, but she did do a Vitamin D, ferritin level and overall metabolic panel. All of that is normal. My thyroid level is also normal, and I do take thyroid hormone because I had half of my thyroid removed 11 years ago due to what turned out to be a benign thyroid tumor.  I just saw my doctor two weeks ago, and she increased the dosage of my Ritalin. That has not helped at all. She has never mentioned Celiac Disease to me before. I made an appointment for this Friday afternoon to talk about it, but I keep wondering if I'm even heading in a direction that makes sense. I decided to post here for some guidance. I'm sorry this has been so long. I'm not really into cutting something totally out of my diet just to see what happens. I also feel like that if I have something that is poisoning my system, I need a real clinical diagnosis of that. I feel like maybe I'm grasping at straws now and imagining a correlation that isn't there. I am not looking for a quick fix, but right now I have no idea what needs to be fixed. I am open to any information and/or suggestions. Thanks so much!   Jennifer
    • Celiac disease sufferers or those who embrace a life without gluten can check out Canada's Gluten-Free Market when it makes stops in London and ... View the full article
    • I too have heart palps, flutters, skips whatever you want to call them. Ecg shows nothing. I was told by my doctor it is due to my low iron which is due to celiac. They pretty much went away after being gluten-free. But occasionally do come back. I've actually been having them for the past 3 days. But I was glutened with really severe reaction about a week ago so not sure if its due to that. Or if iron is low right now. I am on supplements but it still goes up and down. I hear you about doctors. It seems if you don't do research yourself or ask questions they don't say or do or test for anything. 
    • For a number of years pre diagnosis I had irregular heartbeats - anything from a fluttering type thing to seemingly skipping one or more beats to rapid beats to something like a short drum riff. I had multiple ECG's which didn't find anything odd. It never did it when I was at the doctors or getting the ECG's. Sometimes it seemed to pound very hard & rapid, at these times I discovered if I just laid down flat on my back, it would restore normal rhythm almost instantly. These things happened at random whether I was at rest, sitting, standing, running or working hard. It was always short lived -- lasting only 1 to several seconds, perhaps the longest was close to a minute. I too have little faith in docs as I've had my share of being blown off, to misdiagnoses. The whole heart thing quit after I had been gluten-free for a while but if I get glutened, it returns.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,671
    • Most Online
      3,093

    Newest Member
    Youngmama
    Joined