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Coping With Fatigue
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8 posts in this topic

Hi,

I have looked through the forum and could not find any threads relating to this , I am sure there some. I was diagnosed a Celiac a few years back and I believe I cope very well but the fatigue really bothers me. I have tried all different kinds of diets, I am currently on a fruit and veg only, "Arnold Ehret mucusless diet" and I feel great most of the time, going without any grains, meats or dairy products. I have tried all different energy shakes and foods that supposedly increase energy levels but they rarely work for me.

I have also tried Multivitamin pills, protein shakes designed for energy but still I feel tired throughout the daytime.My skepticism regarding multivitamins has grown as I believe eating the right amount of foods should allow your body to get the required nutrition. Playing sports and the few hours after is the only time when I feel energetic but unfortunately I cant play sports everyday due to work.

What am I missing in my diet? I would be really grateful if someone would share the secret of overcoming fatigue!

Michael

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Hi,

I have looked through the forum and could not find any threads relating to this , I am sure there some. I was diagnosed a Celiac a few years back and I believe I cope very well but the fatigue really bothers me. I have tried all different kinds of diets, I am currently on a fruit and veg only, "Arnold Ehret mucusless diet" and I feel great most of the time, going without any grains, meats or dairy products. I have tried all different energy shakes and foods that supposedly increase energy levels but they rarely work for me.

I have also tried Multivitamin pills, protein shakes designed for energy but still I feel tired throughout the daytime.My skepticism regarding multivitamins has grown as I believe eating the right amount of foods should allow your body to get the required nutrition. Playing sports and the few hours after is the only time when I feel energetic but unfortunately I cant play sports everyday due to work.

What am I missing in my diet? I would be really grateful if someone would share the secret of overcoming fatigue!

Michael

Have you discussed it with your Doctor? I'd wonder if maybe there is a secondary problem, or maybe just Cross contamination, I know CC is generally what kills my energy level's

you could always try B12 shots or sub-linguals

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Have you discussed it with your Doctor? I'd wonder if maybe there is a secondary problem, or maybe just Cross contamination, I know CC is generally what kills my energy level's

you could always try B12 shots or sub-linguals

I did discuss it briefly with my doctor. It was one of those typical " thats just the way it is" for you Celiacs : /

You could be right though, im not sure what other secondary problem. Excuse my ignorance but cross contamination causing fatigue? I only associated CC with with reactional pains and discomfort rather than fatigue. I only eat fruit and vegetables, weekly dose or rice and foods rich in b12, meaning CC is quite unlikely.

Thanks for the advice though, will look into some of these b12 shots and sub-linguals

Michael

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Michael, how about a well-balanced diet to include meats and fish, as well as fruits and veggies? Is the only protein you're getting from the shakes? Maybe you're not eating enough??? (I'm not familiar with the Arnold Ehret diet.)

If you're newly diagnosed, it's going to take time to repair all the damage that has been done by celiac. Hopefully others can chime in and give you more ideas.

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Thank you Syliva. That is kind. I am quite a skeptical person when it comes to which foods should be included within a "well balanced diet", personally I dont believe humans require meat and fish to maintain a healthy body, we can rely on other foods for nutrition and vital amino acids. A very bold statement! Maybe I should start a new thread in another section.

I was diagnosed around four years ago, recently I stopped eating any grains, flours or processed foods and escaped any uncomfortable feelings or symptoms I had previously. Again, the only problem I have is fatigue some days which does have an impact on my life.

Michael

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I know we have some vegan and vegetarian members on the forum, who obviously don't eat meat. You might want to use the google button on the top right corner of your screen and search for vegetarian or vegan diets. I'm sure I've see some posts about it that may be helpful to you.

Or for more personal suggestions, you might want to see a dietitian for more guidance.

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While it sounds like you've eliminated the potential for CC from foods, it's possible you're getting it from your environment. Are you using old cutting boards, cookware, etc that may have been in contact with gluten?

I won't go so far as to say you require meats and such (although I am a firm meat-atarian) but are you getting enough protein in general? Have you called the manufacturer of your shakes to be sure what you are using is gluten free? The vitamins as well? Also, your doctor is a quack. We don't have to be walking zombies. Any medical professional who tells you that it's fine to just spend your life feeling that way isn't worth the paper his/her degree is printed on.

It's easy to say you believe you should be getting everything you need from a well balanced diet but obviously you are either getting something you shouldn't, are missing something you need or have an additional underlying health problem. While I also like to believe that I should get what I need from a well balanced diet, there is nothing wrong with a vitamin as a backup plan. It will fill the gaps for you when they need to be filled and you'll never have to worry if you find yourself having a too busy day and you don't eat as well as you know you should.

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Welcome Michael!

Depending on the level of celiac damage to your small intestine, perhaps you are not absorbing enough nutrients as it sounds like you have a good grasp on what nutrients you should be obtaining from your food. I'd vote for getting your vitamins and minerals tested to find if you are low. Perhaps you will need supplements of some kind while healing that can be discontinued once healed. Lack of B12 can cause fatigue as can lack of iron, magnesium and others.

Have you trialed removing nightshades (tomato, peppers, potato and eggplant)? Many with Celiac Disease are intolerant of these along with dairy, grains, legumes, etc. - at least until full healing can take place.

Good Luck!

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    • Thank you for going through my long post and responding. I have been both dairy and gluten-free free for 10 months now. Yes, even I was worried about other food allergies. I mentioned it to my GI doc and asked if I need food allergy test to eliminate other allergens. He said, food allergy tests give a lot of false positives and are not accurate. He said: not everything is because of food allergy and it's refractory celiac which is causing issues as the jejunum biopsy, done recently, is showing villous flattening.

      My doubt: 1. If I have so much damage in my small intestine (villous flattening) then how was I keeping fine for 6-7 months ( eating eggs, soy, rice and meat) - was constantly losing weight though - but was able to work out regularly - not much fatigue. 2. If it is other food allergens ( out of mentioned allergens, I take eggs, soy chunks, almonds only) why does it happen only few times and not always - I keep well for 7-8 days and then fall sick again - this without any change in diet.  
    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
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