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Another One Via The Scabies Route
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Hi friends. Just wanted to introduce myself as a newly diagnosed coeliac. I have been reading the forums for weeks while I was treated for scabies (sure that it wasn't scabies), and am so thankful for all the help I received just from you all being open. It gave me the knowledge and confidence to keep pressing on despite the initial scabies diagnosis ('no, it's definitely not DH"), and negative blood test results. Thank you. So much more helpful than medical sites! I am an Aussie living in India and was diagnosed by skin biopsy with DH yesterday. Looking forward to actually contributing from now on!

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Hi jlaw and welcome to the board. Let us know how we can help:)

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Hi friends. Just wanted to introduce myself as a newly diagnosed coeliac. I have been reading the forums for weeks while I was treated for scabies (sure that it wasn't scabies), and am so thankful for all the help I received just from you all being open. It gave me the knowledge and confidence to keep pressing on despite the initial scabies diagnosis ('no, it's definitely not DH"), and negative blood test results. Thank you. So much more helpful than medical sites! I am an Aussie living in India and was diagnosed by skin biopsy with DH yesterday. Looking forward to actually contributing from now on!

Hello..and welcome! Congratulations on pushing for the tests you needed to know what to do to keep yourself healthy. :D

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Hello Friends,

This is just my second post but I saw this topic and had to post this because I too was diagnosed with scabies but only tried that treatment once. I was adamit with my doctor that it had to be something else because i have a family and none of them had any symptoms. I hope my journey to diagnosis can help a little!

I have been diagnosed for just over 3 months. I was diagnosed via blood work, biopsy, then another biopsy, immunofluorescence biopsy and upper GI. LOL it has been quite a journey. I had DH so bad that I was initially diagnosed with scabies (Treatment bombed), then Chicken pox , after 2 weeks of more pox breakouts my Doctor decided to do further testing

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    • I sit in an ice bath after a long training (running or riding).  It speeds my recovery, I swear!  
    • Oh, one last thing..... ICE PACKS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! You'll feel better. Hey, you have a tub? Want to join the polar bear club in the privacy of your own home? Fill that thing with cold water & dump a 5 or 10 lb bag of ice in there. I'm serious.
    • I don't care what she specializes in, you MAKE her do a dh biopsy. I'm not being mean. Please understand that. It's just that I've heard this a thousand times before - no, a thousand one hundred!  Here's another thing ~~~ get her to order a eTG aka TG3 serum (blood test). That is specific for dh.  Oh gosh! Don't you just hate the ones in your ears???!!!!! Nah, we hate ALL of them! I swear though, when those suckers get going in & on your ears it just drives you stark raving mad!!!!! You've convinced me there is more than ample reason to strongly suspect it's dh.  Here's a tip..... the patterning the lab will be looking for is very easily destroyed by scratching so pick you out some prime places that are new & maybe, just maybe you haven't scratched them to smithereens thus far, and make some super thick gauze bandages & place them over those places so even if you reach to scratch (& we know you will! right?) the gauze will remind you & hopefully help to protect it. The biopsy needs to be taken from a clear area adjacent to a fresh lesion. No steroid creams okay? Not till after the biopsy. BTW, if she wants to put you on steroids after the biopsy be warned, 99% of the time there is such a backlash of the rash the moment you go off the steroid that you will wish you were never born. A dx of dh IS a dx of celiac disease & no further testing is needed. Please come back & update us after you see her tomorrow. In the meantime you have my heartfelt sympathy. Take those cold showers & grit your teeth. Hopefully you will soon be able to go gluten free & start getting some relief.   
    • Extremely itchy and keeps me up at night to the point I was taking cold showers at 3am.   Currently my ears, scalp, feet, and chin just will not stop itching, my elbows have the rash and look purple. Eventually the rash will heal and leaves scars that seem to be purplish in color. I have not tried gluten free diet yet.  Waiting for all the testing to stop.  The new allergist i am seeing tomorrow specializes in skin disorders.
    • I am so sorry for your suffering.  Your story drives home the point that having Celiac Disease drives us all to do our own research and try to find a doc to help--if we are lucky. I wish you a speedy recovery and my most earnest wish that you are NEVER cross-contaminated again! You are a real trooper (little comfort, I know).  Wish I could do more.
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