Accidental Gluten-Ing, No Reaction?
Posted 01 August 2012 - 05:55 PM
Fast forward 4 years, and I find that her blood sugar still tends to have wild unexpected swings. She still complains of stomach and also head aches and overall not feeling well fairly often. Her bowel movements have improved and her teeth still seem to have some issues. She is also still very small for her age. Every additional Celiac blood panel has shown levels below that of a person without Celiac (always attributed to our vigilance with the gluten free diet).
Recently she went to a 6 day overnight camp through the Canadian Diabetes Association. She was not the only Celiac kid there and I was assured that they had a strict gluten free diet. I found out upon her return that one of her counsellors was clearly misinformed and on several occasions provided my daughter with a snack of Stoned Wheat Thins crackers (clearly NOT gluten free!!) My daughter said she had no reaction whatsoever any of the times she ate them. My question is could she possibly have been misdiagnosed??? Should I speak to my doctor about possibly challenging the gluten-free diet for a short period of time and then doing follow up testing? I can accept the fact that she has Celiac disease if she truly does, but I would hate for her to spend a lifetime on a very restrictive diet unnecessarily. Also, she has had a much harder time accepting the Celiac diagnosis than she did accepting diabetes. And of course if it's not Celiac I would like to know so we can find out what it is.
Apologies for the length of this post. I would appreciate any advice!!! Thanks.
Posted 02 August 2012 - 05:09 AM
Posted 03 August 2012 - 07:06 AM
If she is diagnosed with celiac and consumes gluten, the reaction will be triggered. You may see symptoms as a result - or you may not - but the reaction is taking place.
Posted 03 August 2012 - 07:32 AM
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