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Symptoms That Improved On Supplements And Gluten Free Diet
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To encourage you in your Diet and supplement program:

Here are some things that have improved for me. Please I would like others to list their improvements.

Sometimes I feel invigorated after excercise instead of devastated.

High blood pressure lowered to almost athletic level

Orthostatic blood pressure curve normalizes

Dry skin relieved

Dry hay stack hair turns to silky

Insatiable appetite slackened

Dizziness abates

Fatigue becomes infrequent or is based on activity level.

Age spots fall off neck.

Heavy eyes are lighter.

I lost 30lbs and kept it study 3 years.

My gums are getting less likely to bleed.

I have also been getting Chiropractic adjustments and can feel that they help now.

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Congrats! And that's great to look forward to.

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Desperatelady,

Thanks for this...it, really, does help to hear about improvement... :)

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I'm only 1 month in to recovery, but I was severely malnourished - I have no way of knowing if I was more severe than anybody else but I know I have an incredibly high pain threshold and I was reduced to not getting out of bed 2-3 entire days a week.

My "repair" seems to be happening at an astronomical pace.

Fingernails need to be cut every 2-3 days -- previously once a month

I get shooting hairs out of my bald area that grow 2 inches overnight

Skin conditioner not needed - I live in super dry Phoenix and my skin is no longer dry and flaking.

Blood pressure is coming down steadily

Weight is coming down steadily

Ability to exercise is "through the roof" Now, when I work out, the next day I feel stronger instead of weaker.

Depression is gone.

Can't do has been replaced with Can do.

My severe body aches and pains are completely gone, even on days when I run 5-7 miles.

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I like this thread. The no constant vomiting and other GI issues is how many of us start here, but it is nice to see all this other stuff that hopefully will help us stay gluten-free.

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I'm only 1 month in to recovery, but I was severely malnourished - I have no way of knowing if I was more severe than anybody else but I know I have an incredibly high pain threshold and I was reduced to not getting out of bed 2-3 entire days a week.

My "repair" seems to be happening at an astronomical pace.

Fingernails need to be cut every 2-3 days -- previously once a month

I get shooting hairs out of my bald area that grow 2 inches overnight

Skin conditioner not needed - I live in super dry Phoenix and my skin is no longer dry and flaking.

Blood pressure is coming down steadily

Weight is coming down steadily

Ability to exercise is "through the roof" Now, when I work out, the next day I feel stronger instead of weaker.

Depression is gone.

Can't do has been replaced with Can do.

My severe body aches and pains are completely gone, even on days when I run 5-7 miles.

This is just what I wanted. Thanks, I don't think I was done with my list; however it may come in snatches. Please others can you add to this? I am glad people like it. The more variety in our symptoms shared the more encouraging it can be! There is hope.

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This will be my motivational thread as I am just starting the gluten free life.

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Hi,

I have severe dermatitis herpetiformis and have had it come and go for the past 4 years. I'm an East Texas girl who loves her fried chicken and gravy, chicken and spaghetti casserole, etc. but the truth is, I suffer from other symptoms besides DH.

Your list has made me more determined to stick to a gluten-free lifestyle. (It ain't easy.)

I have itchy, dry, flaky skin all over my body and scalp.

Thank you for the motivation. I need it.

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    • Anxiously waiting
      Thanks heaps. I will def be going private if the wait is too long. I have done a little research but i thought a gluten intolerance and coeliac was the same lol. My iron levels are just below average apparently but she said not bad enough for me to be this tired.
    • How effective is HD skin biopsy after being gluten free for a year
      DH is celiac disease that appears on the skin (gluten triggered).  It does not appear when you are consuming dairy, which sounds like a separate issue for you.   A DH biopsy requires active lesions (new/fresh) from consuming gluten.  So, if you want to be tested via a skin biopsy you must go back on gluten.  Finding a dermatologist who knows exactly how to biopsy for DH is often difficult.  Be sure your Derm is knowledable and has biopsied for DH before. Why no endoscopy for now?  I bet your GI  knows that your insurance will deny the endoscopy.  After all, you tested negative to the blood panel.  Your GI should not even ordered the blood panel knowing that you had been gluten free for months.  You have to be consuming gluten daily for 8 to 12 weeks for the blood test to be accurate.   Did you ever test positive?  Why did your primary diagnose you?  Having the gene just means you can develop celiac disease.  Some 30% of the population carries the genes.  The gene test should only be used to help rule out celiac disease.  
    • How effective is HD skin biopsy after being gluten free for a year
      No one can say exactly how long you might be able to get a positive dh biopsy after having been gluten free as long as you have been. The Chicago Celiac Disease Center says this: http://www.cureceliacdisease.org/faq/im-scheduled-to-have-a-skin-biopsy-to-screen-for-celiac-disease-should-i-maintain-a-gluten-containing-diet-similar-to-those-who-are-being-screened-via-blood-or-intestinal-biopsy/ http://www.cureceliacdisease.org/faq/what-is-a-gluten-challenge/ You said you had a flare of the plaque psoriasis -- that is NOT dh so why do you think the dh biopsy will show positive? Testing positive for the celiac genes does not mean you have celiac disease. 30+% of the population have the celiac genes but only very, very small fraction of those people do or will present with celiac disease. The gene tests are only used to rule OUT celiac NOT to diagnose it. Frankly, I can understand why your GI does not put any stock in your Primary doc's thinking you have celiac disease. A positive celiac gene and the boils in your armpits which the GI never saw and were never biopsied for dh but they resolved on a gluten free diet and so did your plaque psoriasis. That's all the GI has to go on. I don't know why you are pushing an endoscopy. If you've been eating strictly gluten free then an endoscopic biopsy for celiac will be negative.  Your PCP should have done a celiac blood panel on you back when you were still eating gluten rather than dx you based on the celiac gene you tested positive for.
    • How effective is HD skin biopsy after being gluten free for a year
      I've been gluten free for a year now and my gastro wants to wait for the endocopy until I'm eligible for the colonoscopy when I turn 50 later this year. I don't think she believes I have celiac, even though I tested positive for one of the genes associated with celiac and my primary has diagnosed me as having celiac. The gluten sensitivity blood tests came back negative, of course, since I was gluten free for 9 months at that time. Why is she waiting? At any rate, My digestive system has improved greatly, but when I reintroduced non fat Greek yogurt in my diet, the plaques psoriasis returned on my elbows. My primary believes it is dermatitis herpetiformis (as well as I, since before going gluten free, I used to get boils in my armpits) and I'm scheduled for a skin biopsy in 3 weeks. However, I eliminated dairy from my diet 4 weeks ago and the plaques psoriasis is healing like it did when I eliminated gluten from my diet a year ago. If the scar is reduced to eczema, does that mean there still are IGA deposits in my skin? I don't want to resume dairy since I experienced a cross reaction to the casein in cheese and found lactose was on that same list. So my question is, how long do the granular IGA deposits remain in the skin in order to have a valid skin biopsy test performed for dermatitis herpetiformis? Since it takes 1-2 years for dermatitis herpetiformis to heal on a gluten free diet and I just had a recent flare up, can I continue on my dairy free diet or should I resume eating non fat Greek yogurt for the next 3 weeks just for this skin biopsy?
    • Celiac Night Vision
      Thanks Cristiana. It was Mistyx7 and night driving. Migraine type is very personal but does not appear to be closely connected to celiac or my peculiar scotomas. If you think going gluten-free has improved it that deserves a separate topic!
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