Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Oats Confusion
0

9 posts in this topic

I ate oats by accident last week by buying cookies from a gluten-free bakery. I ate some without checking the ingredients because I was oh so happy I could walk into a bakery and actually eat something from it haha :-)

Anyway I got gluten-symptoms but a little less severe.

And then yesterday, as I was cleaning my kitchen, a bag of gluten-free oat flower released a cloud into the air by accident and I think I might have breathed some in. Now I'm having mild symptoms again but I'm not sure it's the oats because I did also try a new brand of frozen potatoes (spiced).

My question is:

Has anyone ever had a reaction from microscopic (trace) amounts of oats just like it is with gluten? If I react to oats, does that mean that I have to watch out even for trace amounts? I would hate to think that I have to, because I can hardly eat anything as it is!

0

Share this post


Link to post
Share on other sites


Ads by Google:

A minority of people with celiac disease react to pure oats the same way they react to wheat and other gluten. You may be one of them. (I don't know if I am--I haven't tried oats since my dx.)

0

Share this post


Link to post
Share on other sites

I ate oats by accident last week by buying cookies from a gluten-free bakery. I ate some without checking the ingredients because I was oh so happy I could walk into a bakery and actually eat something from it haha :-)

Anyway I got gluten-symptoms but a little less severe.

And then yesterday, as I was cleaning my kitchen, a bag of gluten-free oat flower released a cloud into the air by accident and I think I might have breathed some in. Now I'm having mild symptoms again but I'm not sure it's the oats because I did also try a new brand of frozen potatoes (spiced).

My question is:

Has anyone ever had a reaction from microscopic (trace) amounts of oats just like it is with gluten? If I react to oats, does that mean that I have to watch out even for trace amounts? I would hate to think that I have to, because I can hardly eat anything as it is!

Approximately 10% of celiacs react to pure gluten free oats like as Peter mentioned. Definately the minority.

I am very sensitive to gluten free oats and trace cross contamination from them. That trace CC kept me ill for 8 months(started after I had been gluten free for 15 months. Facing steroids, I went on a further elimination diet and got rid of all gluten free products and baking items. This was when I began to think of gluten free oat CC as a possible suspect. After about three months (had some help from RX pancreatic enzymes also) I was feeling much better. A few months later I decided to try something from a bakery that used flours from Bob's Red Mill(they produce/package gluten free oats in their gluten free facility). I reacted horribly. Stupid me though knew I reacted to oats(had made cookies 7 months after going gluten free) but never gave CC from them a thought until my further elimination.

Because I react to oat CC I have to source my gluten free products carefully. It has eliminated some brands of things. So even though a product is tested and is gluten free, I have to go the extra step and inquire about gluten free oats also.

0

Share this post


Link to post
Share on other sites

Not what I was hoping to hear, but thanks for your feedback. I appreciate it :-)

0

Share this post


Link to post
Share on other sites

I eat gluten-free oatmeal (Bob's Redmill gluten-free Old Fashioned Oats (slow cook kind)) 2 or 3 times a week. I was not able to eat this without digestive issues for about 6 months after going gluten-free. I guess that I am not a sensitive guy. :)

0

Share this post


Link to post
Share on other sites




I tried gluten-free oats at some point after I went gluten-free, and I had the same symptoms as with gluten, so for some of us we just have to avoid oats. It does suck, doesn't it, having to still check the label even when it says gluten-free. It's possible that a new oat challenge would work for me after 8 years, but I'm not willing to chance it.

0

Share this post


Link to post
Share on other sites

I ate a bite of something that said gluten free and didn't really like it, so that was all I had. Not a healthy bite either, like a nibble. Read the label next time I was in the store and it had oats in it. No ill effects I can tell- but it was so tiny that I might still react to a real dose, so I have not as yet been willing to really try it. I's too skeered!

0

Share this post


Link to post
Share on other sites

In Canada we have new laws regarding gluten free labelling, and now products are NOT allowed to be labelled gluten free if they contain or have come in contact with oats (even uncontaminated oats). There for Canada does not consider oats to be gluten free. I had wondered why the bag of oats I bought from a gluten free store only said wheat free, but not gluten free on them. Now I know why, and now I also know why I got sick from eating them. P.S. I also cut out Bobs red mill products (THANKS RODA) as they are made in the U.S. they do not abide by our labelling standards and can be labeled gluten free even though cross contamination with oats has occurred. Everyone with celiac disease is clearly different as you can tell if you read this forum. Listen to your own body, if oats don't agree with you, don't eat them. I am in recovery from P.O.T.S syndrome, the doctors have no idea why I developed it, I have a very strong suspicion it was from the oats as well as using gluten containing products on my skin. People will tell me it is safe to put gluten on your skin, because the molecule is too big to pass through my skin (just an example I really don't want to get into that as it is off topic and always a huge argument lol), people will also tell me the only reason I can't eat oats because they are cc. These people have a right to their own beliefs and should do what is best for them. I have a right to mine and will do what is best for me. If you think oats make you sick, don't eat them, you could save yourself a lot of pain down the road.

0

Share this post


Link to post
Share on other sites

Oh, forgot to mention, oats do not actually contain gluten (even though Canada won't allow them to be labeled gluten free) They contain something called avenin, which is a prolamine (protein) found in gluten. In people with a avenin sensitivity the avenin is toxic to the intenstinal mucosa just like gluten.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,675
    • Total Posts
      921,694
  • Topics

  • Posts

    • Thank you everyone! Good to know I am not alone with this. I am asking for a referral to a new cardio. Hopefully it will all go away the longer I am gluten-free. It started up in February/March after a gluten challenge and mostly vanished until July when I had a lot of shortness of breath. It absolutely was CRAZY just a few days after the glutening. I was gasping for breath and the beats were all over the place just walking through a parking garage and I was only mildy anemic at the time.   But it seems to "quiver" and do funny things for a bit still. I sort of theorized maybe it was inflammation in the heart because after this last glutening, my head felt like it was in a vice and my eyes would sting or get stabbing pain hurt (that is finally going away thankfully...knock on wood).  The head/eye pressure I learned also happens to my sibling who has celiac and his naturopath told him that sometimes the brain gets inflamed. Hopefully I can meet the new cardio soon and feel confident that he is taking me seriously. It is sort of difficult to feel confident in the opinion of a doctor that your ticker is ok when they are not really listening and end up making you cry. LOL. A friend of mine in the mental health field recently listened to my story of doc after doc and test after test and said that it was akin to the folk story of blind men describing an elephant. A group of blind men all feel one part of an elephant (tusk, tail, ear, tail) and then compare notes only to find they all disagree.  In some  versions they argue intensely. In other versions they have to collaborate and listen to each other in order to "describe" an elephant.    
    • Good afternoon! I am new to this board and fairly new to researching Celiac Disease, although I had a general idea what it was. My health has become a huge mystery to me, and it's one that I am desperate to solve. The biggest issue right now is horrible, life affecting fatigue. I have been dealing with it for several years now- as many as 5 to 6. It has gotten progressively worse, and nothing at all helps. Sleep apnea has been ruled out. Intestinal issues are something I have dealt with for almost two decades. I'm 45, but I've already had two colonoscopies as well as two endoscopies. My first endoscopy was as a child for persistent, severe stomach pain. My last colonoscopy and endoscopy was two years ago. The only thing that has come from those is an Irritable Bowel type condition and GERD, which is pretty bad. My bowel movements have always been crazy. They can be very normal and healthy to completely crazy. I've had periods of persistent diarrhea to occasional constipation, which is a fairly new thing within the last year. Last week, I went from having diarrhea that morning to hard, round balls of stool by that evening. My most common stools here lately, though, are not quite diarrhea, but more fluffy, large piles. Gas is an ongoing, daily issue for me. I have copious amounts of gas every day no matter what I eat or drink. Most of the gas in non-odorous but it can be very loud. I am currently on a total of 60 mg of Ritalin per day just to function. I often add energy pills, purchased from places such as GNC, because the Ritalin isn't working. Yesterday, I took both doses of Ritalin and two energy pills, and I passed out on the couch after work. I work from 7:30am to 3:30pm, and my work day is nothing too crazy. I try to keep very consistent sleep hours and could easily sleep to 1:00pm or longer if I don't have to get up for something. I sometimes have short periods of energy in the mornings, but that is usually over by noon. The quality of my life is greatly affected. I don't want to go anywhere or do anything because I am way too tired. I'm trying to keep up with my exercising, but that is also a struggle.  I have a history of clinical depression for practically all my adulthood, but it has been very well managed for the last four years. The fatigue is currently causing a great deal of depression, but it is very different from the clinical depression that I use to deal with. When I don't feel sleepy and tired, I don't feel depressed. When the fatigue sets in, I feel very irritable and sad. I realize that the stimulants can cause irritability, but I don't feel irritable or sad when I'm not feeling fatigued.  I've only recently began to explore that the fatigue and the intestinal issues could be related. I have always accepted that I have a sensitive, cooky digestive track. The increasing, unrelenting fatigue is what has lead me to exploring the possibility that everything could be related. I did have blood work last November. My doctor did not test for anything Celiac Disease specific, but she did do a Vitamin D, ferritin level and overall metabolic panel. All of that is normal. My thyroid level is also normal, and I do take thyroid hormone because I had half of my thyroid removed 11 years ago due to what turned out to be a benign thyroid tumor.  I just saw my doctor two weeks ago, and she increased the dosage of my Ritalin. That has not helped at all. She has never mentioned Celiac Disease to me before. I made an appointment for this Friday afternoon to talk about it, but I keep wondering if I'm even heading in a direction that makes sense. I decided to post here for some guidance. I'm sorry this has been so long. I'm not really into cutting something totally out of my diet just to see what happens. I also feel like that if I have something that is poisoning my system, I need a real clinical diagnosis of that. I feel like maybe I'm grasping at straws now and imagining a correlation that isn't there. I am not looking for a quick fix, but right now I have no idea what needs to be fixed. I am open to any information and/or suggestions. Thanks so much!   Jennifer
    • Celiac disease sufferers or those who embrace a life without gluten can check out Canada's Gluten-Free Market when it makes stops in London and ... View the full article
    • I too have heart palps, flutters, skips whatever you want to call them. Ecg shows nothing. I was told by my doctor it is due to my low iron which is due to celiac. They pretty much went away after being gluten-free. But occasionally do come back. I've actually been having them for the past 3 days. But I was glutened with really severe reaction about a week ago so not sure if its due to that. Or if iron is low right now. I am on supplements but it still goes up and down. I hear you about doctors. It seems if you don't do research yourself or ask questions they don't say or do or test for anything. 
    • For a number of years pre diagnosis I had irregular heartbeats - anything from a fluttering type thing to seemingly skipping one or more beats to rapid beats to something like a short drum riff. I had multiple ECG's which didn't find anything odd. It never did it when I was at the doctors or getting the ECG's. Sometimes it seemed to pound very hard & rapid, at these times I discovered if I just laid down flat on my back, it would restore normal rhythm almost instantly. These things happened at random whether I was at rest, sitting, standing, running or working hard. It was always short lived -- lasting only 1 to several seconds, perhaps the longest was close to a minute. I too have little faith in docs as I've had my share of being blown off, to misdiagnoses. The whole heart thing quit after I had been gluten-free for a while but if I get glutened, it returns.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,671
    • Most Online
      3,093

    Newest Member
    Youngmama
    Joined