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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

15 Year Old Celiac Pen Pal
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9 posts in this topic

My name is Katie and I am 15 years old. I live in Virginia Beach and I was diagnoised with Celiac Disease 8 months ago so I am still pretty new with all the gluten free stuff. I haven't met anyone with this disease and no one in my family has this disease so I am pretty much stuck here alone figuring this out myself. I would love to have someone to talk to about this disease and diet and share experiences with. I'd love to hear from anyone who couuld help :)

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I hope one of my daughters can one day. She is mostly gluten free, but has not been diagnosed herself. She is just going with the flow of my diet.

I hope you find some others to share your struggles with. I have had some Celiacs appear out of the blue in my life. You will find some too, I believe.

DT

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Hi, my name is Kaitlyn and I'm 17 years old. I live in Ohio and have been gluten free for 2 years. I only know one other person with celiac and she is my cousin. I would love to know someone who knows what I live through with celiac. Plus, I've always wanted a pen pal :)

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My name is Katie and I am 15 years old. I live in Virginia Beach and I was diagnoised with Celiac Disease 8 months ago so I am still pretty new with all the gluten free stuff. I haven't met anyone with this disease and no one in my family has this disease so I am pretty much stuck here alone figuring this out myself. I would love to have someone to talk to about this disease and diet and share experiences with. I'd love to hear from anyone who couuld help :)

Hello Katie, I have a daughter named Jessica who is also 15 and just found out in March '12 that she has Celiac...I have to warn you she feels she needs no support groups and such, but I think it would be good for her to have someone she can confide in!!!! She too is the only one in our family who has it. Please reach out to her.

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Hi katie,

My name is Emma. I am 15 years old and have had Celiac disease for 2 years. I also have a lot of other health issues so I know what your going through. At the beginning I felt very alone and misunderstood, And I promise that over time, things get easier. I would be happy to be your pen pal and share some of my "celiac" experiences with you (I have had a lot of them) :).

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My name is Katie and I am 15 years old. I live in Virginia Beach and I was diagnoised with Celiac Disease 8 months ago so I am still pretty new with all the gluten free stuff. I haven't met anyone with this disease and no one in my family has this disease so I am pretty much stuck here alone figuring this out myself. I would love to have someone to talk to about this disease and diet and share experiences with. I'd love to hear from anyone who couuld help :)

hi kate, i have been diagnosed with celiac for 3 years and no one on my family has it either so i was also also stuck alone trying to figure it all out. luckly by now i have it all figured out and it is much easier! i would love to be your celiac penpal and shear my experiences with you! it would also be nice to talk to someone with celiac as i do not know anyone with the disease! :)x

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You have probably figured it out by now but....

Pm (private message) each other. You do that by clicking the envelope under the person's picture/avatar. Then you can decide if you want to exchange email addresses privately or just pm on here for a while. Putting an email address on a post here is very public.

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Im Shaun Im not sure if i am a celiac but i am allergic to gluten i am new and i would like to talk to people too im 16 if that matters lol

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Hello Katie, I have a daughter named Jessica who is also 15 and just found out in March '12 that she has Celiac...I have to warn you she feels she needs no support groups and such, but I think it would be good for her to have someone she can confide in!!!! She too is the only one in our family who has it. Please reach out to her.

Hey! I would love to talk to Jessica and trust me I felt the same way at first but really talking about it helps alot you can get alot of tips from other celiacs. If she would like to talk I would love to talk.

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    • In Dire Need Of Help
      Alex the good news is you have found a great site with useful information and warm support! You need to work with your doctor to get a diagnosis but there are plenty here who have had similar experiences: http://www.celiac.com/gluten-free/search/?&q=panic%20attack so it sounds like your on the right lines   Take heart that you have probably found the cause now rather than later.  Follow CyclingLady's excellent advice above and go for celiac screening asap. For tests to work you need to be eating gluten for some time. That is a scary prospect when you've finally experienced some relief but it's for a limited time period, you can get support here along the way and if you choose to you can go gluten-free at the end and get relief whatever the results.  Once you're done testing and off the gluten you will be in a much better position to nail the lifestyle. That may mean some pre-planning, maybe taking a backpack with some gluten-free snacks with you, at least until you find the places you can reliably eat at. There are apps and sites that can help and probably local support groups in NYC as well: https://www.google.co.uk/?ion=1&espv=2#q=new%20york%20gluten%20free%20restaurants With research you'll also get to know what fast food options are viable, what readily available candy bars are ok etc. I can eat Mcdonalds fries for instance, which can come in handy if I'm away from my kitchen or supplies. Most starbucks or equivalents will have at least a gluten-free snack bar. So although a pain in the arse, it's doable and the health payoffs MORE than make up for the hassle.  Good luck! 
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      I ordered the cookbook the same day you recommended it.  I am SO excited!  I actually cried looking through the book!  I honestly don't believe I am good at all in the kitchen.  I am lucky enough to have a husband who cooks everything when he's home.  The only thing I felt skilled at in the kitchen was baking.  I made all of my kids' birthday cakes for the last 8 years.  I was sad thinking that we wouldn't have anything good for a birthday cake.  I mean, I've tried gluten free cake from a box, but it was just ok.  It wasn't amazing the way a homemade cake can be.  So now I have hope.  Hope that maybe my non-celiac kids will enjoy a birthday cake still.  My daughter (the most-likely-to-be-celiac one) never really ate birthday cake to begin with.   So this summer is her birthday and we will find out if it's good!  Thank you for the recommendation!!!   Janis
    • antibiotic for my 6 year old- could it have gluten?
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    • antibiotic for my 6 year old- could it have gluten?
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