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Blood Test Interpretation
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Hello all! I am new to this site and have an endoscopy and biopsy scheduled in two weeks. Unfortunately, my doctor did not explain my blood results to me and I don't have another appointment with him to go over it. He simply said some results were positive and the biopsy is the next step. (He is a Celiac Specialist so although I'm upset he didn't explain more, I'm hoping he is still a capable doctor).

I have a biology degree and an understanding of the basics..but if anyone can give me some insight, I would be grateful. Especially the TTG results. I am soooo stressed about the biopsy, mostly the sedation.

Here are my results:

-IGA serum: 191 (normal)

-IGA AB group: 191 (normal)

-endomysial IGA anibody: POSITIVE titer (high)

-Gliadin (Demidated) AB, IGA: 152.5 (high)

-Gliadin (Demidated) AB, IGG: <20 (normal)

-Transglutaminase IGA : 47 (high)

-Transglutaminase IGG: 8 (high)

I'm so glad I found this website. I don't have much support for this and am glad I can find this support! :) :)

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Just going by your blood work it seems like you have celiac. The EMA and Deamidated gliadin are specfic to celiac. The tTG can be elevated in other autoimmune diseases also, but since the others are positive it's safe to say the elevated tTG is from celiac also. Some doctors will diagnose on blood work alone.

The EGD isn't that bad. You won't remember a thing. Just make sure the doctor takes enough samples to check for celiac. I think it is recommended to have 8-10 taken from different areas in the small bowel. They will also look at other things besides celiac. They look at the esophagus and will take biopsies if necessary and examine the stomach. It's pretty routine to have a biopsy in the stomach to look for H Pylori. Even if the biopsy comes back negative doesn't mean you don't have celiac. You can get a false negative biopsy due to an inexperienced doctor performing the biopsy, inexperienced pathologist looking at the samples, not enough samples taken, samples not taken in damaged areas(damage can't be seen with the naked eye and it can be patchy with normal areas and damaged areas) or damage is in another area of the small bowel that is beyond the reach of the scope. The scope only goes into the first portion of the duodenum(small bowel) and it's not very far.

After your scope I would go gluten free. No need to wait on the biopsy results. With blood work like yours I wouldn't hesitate to go gluten free and call it celiac and I'm not a doctor.

I put my youngest son gluten free without a scope/biopsy based on a postive IgA tTG alone. He does not have any other autoimmune diseases so it was safe to say it was because of celiac and the fact that I'm blood and biopsy diagnosed. My oldest son hasn't had any positive blood work in the past 4 years and even had a negative biopsy. He went gluten free almost a year ago and has done wonderful. I had toyed with the idea for two years to put him gluten free also but was hard to commit without anything positive. Now if he gets CC'd he is miserable. So he can't be diagnosed celiac, but he is definately gluten intolerent.

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Ditto what Roda said. Lots of positive antibody tests, especially the anti-EMA, scream celiac.

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The Biopsy is easy!

go to sleep for 10 min then feel great after. :-)

its only sedation, not anaesthetic

good luck.

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    • egs1707. Are you in Canada?  It's NOT a good idea to go gluten free between now & the GI appt. and here's why.... MOST of us have MUCH stronger reactions to gluten when we go back on it for the endoscopy. A lot of people have had such strong reactions that they have been entirely unable to complete the challenge and have to call it quits. This means they never get an official dx. It's your call, you make the choice. However, I will say that you don't have to eat a lot of gluten, a couple saltines or a slice of bread per day. 
    • You mentioned the tight head. Yes, both my celiac sibling and I had head pressure. Mine was horrible last glutening with eye pain as well. Like someone put a vice around my temples. I swore it felt like a parasite infected my gut, thyroid and brain. It is going away mostly, still have it on and off a bit.  My brother said his naturopath informed him some celiacs get a bit of inflammation in the brain.   
    • Hi All this is my blood test result 1.immunogloblulin serum 203 ( 87-350) 2.Deamidated Gliadin IGA  4 ( 0-19 negative) 3.Deamidated Gliadin IGG 3(0-19 negative) 4.Transglutainase IGA <2 ( 0-3 negative) 5.Transglutainase IGG <2 ( 0-3 negative) does it mean most likely no celiac ? thanks.  
    • At the moment it's microwave rice packets as it needs to be something easy for lunch at work. What do you choose for breakfast? At the moment I have gluten-free porridge oats with fruits but also seeing oats are a bit of a gamble in the early days. Trying to figure out how long a reaction takes to show up i.e. if I feel ropey later in the day is it really lunch as I'm blaming at present or actually is it something from the morning or even night before? The food is the toughest bit for me right now; wasn't that great with it before so will need plenty ideas from you good people... seems I'm in the right place though   
    • I know what you're going through - it's that grieving process and it's tough.  I was diagnosed in 2013, and aside from an occasional pity party, I don't look back. I have my restaurants where I feel safe, I have the food I know I can eat, and I get on with my life.  I'm lucky that I live in a big city with lots of options, but you can make this work, and you will feel better and once you do, you'll stop grieving.  The people on this site helped enormously. It is tough in the beginning to know if you've been 'glutened' vs. just going through withdrawal.  For that reason alone, it's best to avoid restaurants for a little while and be careful at home - just to be sure what's happening.  Eventually you'll be able to get back to your version of 'normal'.  Oh, I also have hypothyroid/hashimoto's.  No big deal, I take synthroid. Quinoa, eggs, nuts and beans for protein.  You don't have to go crazy on the cooking.  Just eat a lot of whole foods.  There are a lot of complicated recipes out there, but now may not be the time.  Rice noodles in veggie bouillon - easy and cheap.  gluten-free pasta with olive oil, parmesan and garlic - easy.  I eat a lot of rice and have never had a problem - you're not getting it out of one of those bulk bins, are you?  That could be contaminated.  Go with packaged.  Do you have access to the Macro Vegetarian brand of prepared rice dishes (in the refrigerated section).  They have several that are gluten free, they're delicious heated and with a little gluten-free soy sauce.  They're my go to on days I don't want to cook. Good luck!  
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