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Dealing With Flare Ups
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Hi, I am new to this site but have already found several threads that were very helpful. I was diagnosed with celiac disease 8 months ago and have been gluten free since. I have had moderate to severe stomach problems for many years and have possibly had this since I was a teen. I have been dairy free for most of this time and also went to a food allergist to find out if there were additional foods I should be avoiding. Just about every food I normally eat came up positive. I eliminated all of them and then introduced them gradually. But I do not feel any better than since before I went gluten free. I get extremely bad stomach pains, diarrhea and constipation, intense muscle pains, fatigue, etc. Also, I normally get flare ups, that's what I call it when my symptoms get much worse and I can hardly get out of bed, at least once a month. Wondering if anyone else is going through this and if they have found relief?

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You may still be healing , for some it can take up to two years or even more. After five years a few still have problems.Plus please check to make sure you are not getting CC by kitchen utensils,hidden gluten,pet food...you may be just a very sensitive celiac that can not eat out in restaurants, use gluten-free foods that are not made in a dedicated place.. You may to go to a very strict food regime of plain meats, fruits, veggies, fish & no gluten-free processed foods to see if that brings more relief..

Another suggestion would be to get a massive blood work-up & be checked for other issues, gallbladder, crohn's, etc.

Do you take digestive enzymes & probiotics? They to may be a big help...Sometimes our gut just needs more help because it doesn't have enough gastric juices to more the food into a digested state ...

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Thanks for your advice. Greatly appreciated. I do take Ultimate Flora Critical Care probiotic. Is there a specific enzyme supplement that anyone has had success with?

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Many of us find help with Digest Gold by Enzymedica

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Gluten Flam really helps my daughter. We ran out and forgot to get more, and boy did she start feeling bad. Got much better 4 days after re-starting it. Good luck!

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    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
    • While in Boston I found Cheer's  Bloody Mary mix that says gluten-free on the bottle and have had no issues and  tastes pretty good 
    • I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.
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