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Dealing With Flare Ups

Crzycatlady

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Crzycatlady Newbie
Crzycatlady
Posted

Hi, I am new to this site but have already found several threads that were very helpful. I was diagnosed with celiac disease 8 months ago and have been gluten free since. I have had moderate to severe stomach problems for many years and have possibly had this since I was a teen. I have been dairy free for most of this time and also went to a food allergist to find out if there were additional foods I should be avoiding. Just about every food I normally eat came up positive. I eliminated all of them and then introduced them gradually. But I do not feel any better than since before I went gluten free. I get extremely bad stomach pains, diarrhea and constipation, intense muscle pains, fatigue, etc. Also, I normally get flare ups, that's what I call it when my symptoms get much worse and I can hardly get out of bed, at least once a month. Wondering if anyone else is going through this and if they have found relief?

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mamaw Community Regular
mamaw
Posted

You may still be healing , for some it can take up to two years or even more. After five years a few still have problems.Plus please check to make sure you are not getting CC by kitchen utensils,hidden gluten,pet food...you may be just a very sensitive celiac that can not eat out in restaurants, use gluten-free foods that are not made in a dedicated place.. You may to go to a very strict food regime of plain meats, fruits, veggies, fish & no gluten-free processed foods to see if that brings more relief..

Another suggestion would be to get a massive blood work-up & be checked for other issues, gallbladder, crohn's, etc.

Do you take digestive enzymes & probiotics? They to may be a big help...Sometimes our gut just needs more help because it doesn't have enough gastric juices to more the food into a digested state ...

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Crzycatlady Newbie
Crzycatlady
  • Author
Posted

Thanks for your advice. Greatly appreciated. I do take Ultimate Flora Critical Care probiotic. Is there a specific enzyme supplement that anyone has had success with?

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mamaw Community Regular
mamaw
Posted

Many of us find help with Digest Gold by Enzymedica

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Katie C. Newbie
Katie C.
Posted

Gluten Flam really helps my daughter. We ran out and forgot to get more, and boy did she start feeling bad. Got much better 4 days after re-starting it. Good luck!

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    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      Why?

      By trents · Posted

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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