[Lisa]

Anyone out there in Celiacland from North Carolina.

Lisa B.

[lbsteenwyk]

Hi, I live near Asheville NC - but I don't have celiac disease, my daughter does. I just started a celiac support group in Hendersonville, though, and had a very good turn out. Where do you live? PM me if you want to chat.

[Lisa]

Laurie:

I'm on the northeast coast. Edenton, NC. I love the Fresh Market in Hendersonville. We used to live in Landrum, SC for two years when my husband was flying out of Charlotte.

My girls (12 years ago) used to ride horses in Tryon. It is a beautiful place.

I am the one with Celiac and I can sympothize with parents who have children with celiac disease. You know, when it is you, you can handle it. As a parent of a celiac disease child and you are the cook/server, it must be a heavy burden.

I am thinking about getting a support group here. I know of three other people in our small town and I bet there are alot more. Maybe you could give me some pointers on a beginning.

Good to talk to another TarHeel.

Lisa B. (several Lisa's who post, so I am the Lisa B.)

[lbsteenwyk]

Hi Lisa B:

Too bad we are on opposite ends of the state. I was able to start the support group through the hospital where I work. Someone in the community approached the hospital's community outreach center about starting a group. They needed someone inside the hospital to take a leadership role and of course I jumped at the chance. I've had alot of assistance from Marketing in getting the word out. I wrote a press release which marketing sent out. They helped me with designing a flyer and I distributed it to all the doctor's offices. They also did a short interview with me on the radio as part of their weekly program on events at the hospital. Since I'm a dietitian, I also get referrals from physician when they diagnose people with celiac disease, so I was able to reach those people directly to tell them about the support group.

If you want to start a group, you might approach your local hospital with the idea. Having the support group affiliated with the hospital really helped me get the whole thing going!

[Lisa]

That is a wonderful idea to link into the hospital. My "new Doc" is very active with the hospital and he could get me started.

I signed a release form today at his office to get the Gastro. Dr. records (that biopsy confirmed celiac disease) not quite sure that I have him on board yet. I am glad that he is questioning.

I would love to be there with you to watch the trees turn. Enjoy them for me.

Lisa B.

[MaryKatherine]

Dear Lisa B.,
I am celiac in Wilmington, NC. Have you heard of any fellow celiacs in this area. I have only been gluten free since Aug 2006 and really haven't found anyone to relate to.
Thanks for your help!
Have a Happy 4th!
Mary Katherine Talley

[Lisa]

MaryKatherine, on Jun 30 2007, 02:13 PM, said:

Dear Lisa B.,
I am celiac in Wilmington, NC. Have you heard of any fellow celiacs in this area. I have only been gluten free since Aug 2006 and really haven't found anyone to relate to.
Thanks for your help!
Have a Happy 4th!
Mary Katherine Talley

Well Hello Mary Katyherine!

Welcome to the Board. I live up the coast about three hours from Wilmington and I have a daughter who lives in Wilmington.

I am glad that you found this site. It has helped me tremendously and there is nothing about Celiac that someone can't tell you. Feel free to ask any questions of just vent. We ALL can relate here.

Lisa

[CarlaB]

I go to my grandmother's between Canton and Waynesville every summer. Maybe we could meet in Asheville ... know any gluten friendly places there?

[Lisa]

CarlaB, on Jun 30 2007, 04:53 PM, said:

I go to my grandmother's between Canton and Waynesville every summer. Maybe we could meet in Asheville ... know any gluten friendly places there?

Carla, I'm on the ocean side of the state. Asheville is beautiful. I think that this was my first thread after joining the Board. My how time flyies

[CarlaB]

Momma Goose, on Jun 30 2007, 04:58 PM, said:

Carla, I'm on the ocean side of the state. Asheville is beautiful. I think that this was my first thread after joining the Board. My how time flyies

LOL

I read through the whole thread and remembered "Hendersonville" so I was thinking that's where you lived!

I didn't look at the date of the thread when it came up as a new post ...

[Lisa]

While we are on North Carolina...if any one comes to the Outer Banks, let me know because it's only about an hour away. Laura might be comming this summer and I hope we can meet for lunch.

[Susan_in_NC]

Hi! I'm in Raleigh. New Dx, and learning to cope. I was reading through different threads getting tips and making notes. [i]Would REALLY LOVE[/i] to talk to others with more experience. Please feel free to contact me.

Susan