Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I Think I've Been Oatened!
0

14 posts in this topic

I was anticipating the day certified gluten-free oats could be re-introduced into my diet. Well, the big day was Thursday. It was exciting! Thrilling, even. My celiac diagnosis was 16 months ago. But yesterday I knew something weird was going on. My personality changed. I feel sort of ill (not a big deal). Walking into things. Stumbling. Intense forgetfulness. There is no chance of my being glutened - the only thing different in my diet was the oats. The neurological symptoms are more alarming than feeling ill. Oh, and rash between all my fingers that looks like eczema.

Dumb oats. Ah, well. It is not as though oats are vital or necessary to our diet! I haven't really missed them for 16 months so I won't miss 'em again. ;)

I had not felt ill from gluten in the past but imagine I now have a pretty good idea what it is like. :angry:

Not a vent or anything - it just goes to show how things change! Oatenings are just not all that fun. :(

0

Share this post


Link to post
Share on other sites


Ads by Google:

I'm so sorry!

I know other people who can't tolerate oats either...feel better soon.

0

Share this post


Link to post
Share on other sites

Yuk, hope you feel better soon.

Make sure you don't leave the stove on :) that's what I usually do.

0

Share this post


Link to post
Share on other sites

A new term in the celiac disease vocabulary! Oatenings... I hope you feel better soon!

0

Share this post


Link to post
Share on other sites

Yuk, hope you feel better soon.

Make sure you don't leave the stove on :) that's what I usually do.

I've checked and double checked. Thanks for that! I'm putting kitchen things away in the wrong spots - it is so very weird. I walked smack dab into our couch and it is not even in the way. Not sure how that one happened...

0

Share this post


Link to post
Share on other sites




A new term in the celiac disease vocabulary! Oatenings... I hope you feel better soon!

It doesn't roll off the tongue quite like "glutened" but it works! :P

0

Share this post


Link to post
Share on other sites

Sorry you are feeling bad. Watch out of oat CC. It wasn't like when I actually ate the oats with an instant reaction, but it slowly built up and one day, then for 8 stinking months I was miserable. I am pretty careful where I source my gluten free ingredients calling and making sure there is no chance of oat CC. Hope you are feeling better soon.

0

Share this post


Link to post
Share on other sites

Are there any big brands who's gluten free products may be contaminated with "gluten free oats"? I have had a rash on my fingers which the doctor said was eczema but none of the prescription creams are working! I know i react to gluten free oats, so now I'm wondering if something possibly may be contaminated with oats :P thanks...

And hope you get well soon, love2travel!

0

Share this post


Link to post
Share on other sites

Are there any big brands who's gluten free products may be contaminated with "gluten free oats"? I have had a rash on my fingers which the doctor said was eczema but none of the prescription creams are working! I know i react to gluten free oats, so now I'm wondering if something possibly may be contaminated with oats :P thanks...

And hope you get well soon, love2travel!

Yes there is. Here is a link to a topic I started on it.

0

Share this post


Link to post
Share on other sites

I'm so sorry the oats not only didn't work out but caused you so much distress :( I am sensitive to oats also, and have to watch out for even pure oat cross contamination. Feel better!

0

Share this post


Link to post
Share on other sites

I get "oatened" too. I like the term. I also need to watch out for cross contamination from oats.

0

Share this post


Link to post
Share on other sites
"Oatenings"

I love it. :P:D:lol:

Sorry about the reaction.

0

Share this post


Link to post
Share on other sites

I'm so sorry the oats not only didn't work out but caused you so much distress :( I am sensitive to oats also, and have to watch out for even pure oat cross contamination. Feel better!

Thanks! I'm not quite as bad today. I'm functioning quite well. It is disconcerting when you suddenly forget simple tasks. I forgot to lock the front door of the house before leaving this morning!

The oats were certified gluten free. So long, oats! At least for now. I do not feel that bad about it because in comparison to many of you, I got off easy only having to avoid gluten and some cheeses.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,681
    • Total Posts
      921,724
  • Topics

  • Posts

    • Ok, I can't seem to find my first lot of blood tests that were done for Celiac screening, they did include TTG I remember that much, and I am getting another copy of it but another test did come in today.  I don't know how different tests are done around the world and I don't get all the medical jargon but this is what it states, ******************************************************************************* HLA DR/DQ Genotyping for Coeliac Disease, Specimen type : EDTA blood Method : Detection of sequence-specific oligonucleotides (Gen-Probe). HLA-DR - 1, 13          DRB1 - 01, 13 HLA-DQ - 5,6        HLA-DQA1 - 5,6      HLA-DB1 - 05, 06 Interpretation : No genotype susceptibility for coeliac disease.  The DQ2 and DQ8 antigens associated with increased risk of coeliac disease were not identified in this patient.  In the absence of these antigens, coeliac disease is extremely unlikely.   *******************************************************************************   I have read the horror stories of blood tests and scope biopsies not be done right or flawed but here is what I do know as of now, At the moment the most non invasive test I can have done say negative.  I have double scopes (endoscopy and colonoscopy) booked for the 12th of October with results from biopsies expected a week or two after. Chances are they will show, a) signs of coeliac disease (even if the odds are low it can still happen), b) show signs of something else entirely and we will be busy dealing with the ramifications of that or c) it will show no signs of coeliac but I will still be suffering from gluten sensitivity (which is harder/impossible to measure clinically). My GP has told me that stress and anxiety can be a cause of all the symptoms I have been experiencing and suggests if the scopes show nothing that I may benefit from something to treat anxiety, i.e. antidepressants.  Not in a, "Oh we don't know what it is so have these," kind of way, he agrees with the thought that the scopes could indeed show coeliac, something else or even be negative. I did tell him that I could have a sensitivity and that even without benefit of clinical results, some people have gone on a gluten elimination diet for a period of time to see if they get any relief.  My question is this, if the scopes come up negative and I try eliminating gluten, how long would it be before I saw any results or improvements?  I have read enough here and elsewhere to know that everybody is different, some see results within days, some see results longer but are there any guidelines for how long a test like this should be undertaken for?  I have heard everything thing from two weeks to two months.  All of this is entirely moot at this point but I know that even if the results said clear, there would always be a little part of me that wonders if it could be a sensitivity that is the problem.  Any thoughts or advice greatly appreciated, and a thank you to all those who have taken the time to respond and offer advice and encouragement so far.        
    • We don't delete accounts but can delete any personal information and change your screen name if you would like. Just send me a personal message with three possible screen names. For the record you can edit most things in your account area with the exception of your screen name.
    • Thanks I never heard of that dye before, I guess I have to find more natural meat thanks for the suggestion. 
    • Yes, I only eat one meal a day. Sometimes salad or fries or whatever I can find. And thanks for the replies again.
    • A colonoscopy is not used to diagnose celiac disease.  An endoscopy is used to obtain biopsies in the small intestine.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,680
    • Most Online
      3,093

    Newest Member
    Misalina
    Joined