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I Think I've Been Oatened!


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13 replies to this topic

#1 love2travel

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Posted 04 August 2012 - 08:20 AM

I was anticipating the day certified gluten-free oats could be re-introduced into my diet. Well, the big day was Thursday. It was exciting! Thrilling, even. My celiac diagnosis was 16 months ago. But yesterday I knew something weird was going on. My personality changed. I feel sort of ill (not a big deal). Walking into things. Stumbling. Intense forgetfulness. There is no chance of my being glutened - the only thing different in my diet was the oats. The neurological symptoms are more alarming than feeling ill. Oh, and rash between all my fingers that looks like eczema.

Dumb oats. Ah, well. It is not as though oats are vital or necessary to our diet! I haven't really missed them for 16 months so I won't miss 'em again. ;)

I had not felt ill from gluten in the past but imagine I now have a pretty good idea what it is like. :angry:

Not a vent or anything - it just goes to show how things change! Oatenings are just not all that fun. :(
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

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#2 Mateto

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Posted 04 August 2012 - 08:36 AM

I'm so sorry!
I know other people who can't tolerate oats either...feel better soon.
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Gluten-free since St George's Day this year :)

#3 sora

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Posted 04 August 2012 - 09:11 AM

Yuk, hope you feel better soon.
Make sure you don't leave the stove on :) that's what I usually do.
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Ah, but I was so much older then, Im younger than that now.


#4 ciamarie

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Posted 04 August 2012 - 10:00 AM

A new term in the celiac disease vocabulary! Oatenings... I hope you feel better soon!
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Gluten-free since the end of October 2011

#5 love2travel

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Posted 04 August 2012 - 10:37 AM

Yuk, hope you feel better soon.
Make sure you don't leave the stove on :) that's what I usually do.

I've checked and double checked. Thanks for that! I'm putting kitchen things away in the wrong spots - it is so very weird. I walked smack dab into our couch and it is not even in the way. Not sure how that one happened...
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#6 love2travel

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Posted 04 August 2012 - 10:38 AM

A new term in the celiac disease vocabulary! Oatenings... I hope you feel better soon!

It doesn't roll off the tongue quite like "glutened" but it works! :P
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#7 Roda

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Posted 04 August 2012 - 12:01 PM

Sorry you are feeling bad. Watch out of oat CC. It wasn't like when I actually ate the oats with an instant reaction, but it slowly built up and one day, then for 8 stinking months I was miserable. I am pretty careful where I source my gluten free ingredients calling and making sure there is no chance of oat CC. Hope you are feeling better soon.
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Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.


#8 Victoria6102

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Posted 04 August 2012 - 07:46 PM

Are there any big brands who's gluten free products may be contaminated with "gluten free oats"? I have had a rash on my fingers which the doctor said was eczema but none of the prescription creams are working! I know i react to gluten free oats, so now I'm wondering if something possibly may be contaminated with oats :P thanks...
And hope you get well soon, love2travel!
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#9 Roda

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Posted 04 August 2012 - 10:58 PM

Are there any big brands who's gluten free products may be contaminated with "gluten free oats"? I have had a rash on my fingers which the doctor said was eczema but none of the prescription creams are working! I know i react to gluten free oats, so now I'm wondering if something possibly may be contaminated with oats :P thanks...
And hope you get well soon, love2travel!

Yes there is. Here is a link to a topic I started on it.

http://www.celiac.co...__1#entry732064
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Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.


#10 jerseyangel

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Posted 05 August 2012 - 04:47 AM

I'm so sorry the oats not only didn't work out but caused you so much distress :( I am sensitive to oats also, and have to watch out for even pure oat cross contamination. Feel better!
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#11 dilettantesteph

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Posted 05 August 2012 - 06:37 AM

I get "oatened" too. I like the term. I also need to watch out for cross contamination from oats.
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#12 Takala

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Posted 05 August 2012 - 09:17 AM

"Oatenings"



I love it. :P :D :lol:

Sorry about the reaction.
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#13 love2travel

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Posted 05 August 2012 - 01:14 PM

I'm so sorry the oats not only didn't work out but caused you so much distress :( I am sensitive to oats also, and have to watch out for even pure oat cross contamination. Feel better!

Thanks! I'm not quite as bad today. I'm functioning quite well. It is disconcerting when you suddenly forget simple tasks. I forgot to lock the front door of the house before leaving this morning!

The oats were certified gluten free. So long, oats! At least for now. I do not feel that bad about it because in comparison to many of you, I got off easy only having to avoid gluten and some cheeses.
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#14 dilettantesteph

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Posted 06 August 2012 - 05:46 AM

Maybe it should be "avenined."
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