Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

504 Plan
0

20 posts in this topic

I am starting the referral process for both my 2nd and 8th graders who have Celiac Disease. I'm not asking for meals to be prepared at school but rather things like, having access to their own water bottle at all times, extra sets of textbooks for home, extra time to make up work after an extended absence, communication from teachers about birthday snacks, holiday treats or incentives. What am I missing? I would love some suggestions! Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Have they gotten sick frequently and miss a lot if school. Accommodations need to be reasonable to the student and illness. I think anything relating to food, cross contamination is important and perhaps a health class should be done to teach kids about Celiac, so they can both understand it and that they cannot catch it. It is best for teachers and cafeteria workers to know about this too. It is also important that the teacher leave instructions for a sub, where there to be a party or holiday celebration. I'm not sure about the need for an extra set of books, unless they miss a lot of school. I think every parent would like that for their kids. Just have the 504 focused on each child, the illness and try to anticipate issues. The 504 can always be amended. You don't want it to become a stigma so your kids will potentially be sources of bullying. Good luck.

0

Share this post


Link to post
Share on other sites

One other thing. As far as I know, there is no formal referral process for a 504. It is a federal accommodation plan for general education students. It is completely unrelated to special education, which requires many formal issues such as a psych eval to see if there is a learning disability. Be sure you don't get the issues confused as the departments and the processes are completely different.

0

Share this post


Link to post
Share on other sites

One other thing. As far as I know, there is no formal referral process for a 504. It is a federal accommodation plan for general education students. It is completely unrelated to special education, which requires many formal issues such as a psych eval to see if there is a learning disability. Be sure you don't get the issues confused as the departments and the processes are completely different.

There actually is a formal process. First is the meeting to determin eligibility and if it is eligible they move onto the accommodations. It is different from an IEP, very true but there is still a process which usually includes the school psychologist along with a team of others.

I will look for our plan tonight at some point. One thing you may want to consider is wipes for compute, gym and art class as well as vetting products for art. We included not letting them use recycled food containers for art/craft things. I think you said but I am not sure about access with the bathrooms at any time. Again, I'll look for ours later and post anything that you may want to consider.

0

Share this post


Link to post
Share on other sites

There actually is a formal process. First is the meeting to determin eligibility and if it is eligible they move onto the accommodations. It is different from an IEP, very true but there is still a process which usually includes the school psychologist along with a team of others.

I will look for our plan tonight at some point. One thing you may want to consider is wipes for compute, gym and art class as well as vetting products for art. We included not letting them use recycled food containers for art/craft things. I think you said but I am not sure about access with the bathrooms at any time. Again, I'll look for ours later and post anything that you may want to consider.

Thank you so much! I would love to see a finished and complete plan.

0

Share this post


Link to post
Share on other sites




Thank you so much! I would love to see a finished and complete plan.

I looked and I think that pretty much covers it for the gluten-free stuff. We also have food allergies to deal with and some things are more specific to that. If you would like, I can message it to you.

0

Share this post


Link to post
Share on other sites

I guess I have been lucky. I have not had a need for a 504 plan yet. My youngest son's kindergarden teacher was great. Had a few issues with his first grade teacher but we got that worked out. He starts school on Thursday so I'll be informing his second grade teacher about his celiac. My oldest son had the same teacher last year in 5th grade so he has a little knowledge. Our School nurse has been wonderful also and is a great advocate for my youngest.

0

Share this post


Link to post
Share on other sites

We haven't done a formal plan yet as our school was very, very willing to just do whatever we asked.

We added things like:

He uses a placemat or clean lunch tray (that has gone thru the commercial dishwasher) at his lunch table even though he brings his lunch from home. (The tables are just wiped off with a damp rag between classes - yuck)

No projects or crafts in the classroom that use wheat flour (because it becomes airborne and can settle of all surfaces) so, no cooking projects, no papier mache, no making salt/flour dough, etc.

He is reminded and allowed to wash his hands with soap and running water before lunch and snack (sometimes they have classes skip this and just use antibacterial wipes to save time)

He can excuse himself to go to the bathroom at any time without having to follow the classroom procedure. (in case of emergency - otherwise he follows the plan)

The teachers inform me (in advance) whenever there is a food-related event (field trip, reward party, birthday, etc.) so he can come prepared with his own food.

Cara

0

Share this post


Link to post
Share on other sites

I guess I have been lucky. I have not had a need for a 504 plan yet. My youngest son's kindergarden teacher was great. Had a few issues with his first grade teacher but we got that worked out. He starts school on Thursday so I'll be informing his second grade teacher about his celiac. My oldest son had the same teacher last year in 5th grade so he has a little knowledge. Our School nurse has been wonderful also and is a great advocate for my youngest.

Our school has been amazing so we aren't placing the plan because we think there will be any problems. We visited the Celiac Center at Columbia University this summer and the experts there encouraged us to have a plan for both of our daughters simply because you never know what the disease will throw at you and having a plan in place that can be modified is so much better than starting from scratch. It also serves to protect my girls on the excessive absences front. 504's follow your children all the way through college which is also an advantage.

0

Share this post


Link to post
Share on other sites

We haven't done a formal plan yet as our school was very, very willing to just do whatever we asked.

We added things like:

He uses a placemat or clean lunch tray (that has gone thru the commercial dishwasher) at his lunch table even though he brings his lunch from home. (The tables are just wiped off with a damp rag between classes - yuck)

No projects or crafts in the classroom that use wheat flour (because it becomes airborne and can settle of all surfaces) so, no cooking projects, no papier mache, no making salt/flour dough, etc.

He is reminded and allowed to wash his hands with soap and running water before lunch and snack (sometimes they have classes skip this and just use antibacterial wipes to save time)

He can excuse himself to go to the bathroom at any time without having to follow the classroom procedure. (in case of emergency - otherwise he follows the plan)

The teachers inform me (in advance) whenever there is a food-related event (field trip, reward party, birthday, etc.) so he can come prepared with his own food.

Cara

Thank you Cara! This is helpful.

0

Share this post


Link to post
Share on other sites

I looked and I think that pretty much covers it for the gluten-free stuff. We also have food allergies to deal with and some things are more specific to that. If you would like, I can message it to you.

Hi Stephanie- I would love if you could message. My daughter has several food allergies as well. I'm a forum rookie so I don't know how to message but I would greatly appreciate seeing your plan. Rachael

0

Share this post


Link to post
Share on other sites

Hi Stephanie- I would love if you could message. My daughter has several food allergies as well. I'm a forum rookie so I don't know how to message but I would greatly appreciate seeing your plan. Rachael

How to message or PM (personal message):

Click on the envelope pic below thier avatar (picture) or click thier picture or name and go to the profile. This works even if they haven't added a pic, just use the "No Avatar" pic. Under the picture is a "send Message". To see your new messages. Look in the top, green corner with your name . You will see a number appear to show you have messages. Aso,, you get a message on the forum home page at the top of the new posts list.

Sorry doing this from memory so the exact wording may be different. If you want to, you can experiment on me and I will let you know right away that it worked. I'll be off and on today. :)

These are private messages. If you leave a message on the profile page, anyone looking at the person's profile can read it.

0

Share this post


Link to post
Share on other sites

I have a daughter going into 8th grade. There are two things that happen that are an issue. One is adults in positions of authority with the best intentions ask her if something is safe and if she's not really sure they're frustrated with her or they think something is safe and don't accept a "No thank you" easily. The other is that they make a big deal in front of her peers about food. In her case she'd much rather sip on some soda or juice quietly than have the teacher running around trying to give her something different. In the 504 I ask that they respect her right to privacy and not single her out. I also ask that the teachers contact me at least 24 hours before they use food. Childrens hospital boston has some good templates and ideas. It's good to think about your own kids personality and what would make this the least stressful for them. Even with a 504 plan it's a problem at times. For example, it's someone's birthday and their mother shows up that morning with pizza and cupcakes. There are also adults who just really don't believe in celiac and they can be a pain.

http://www.childrenshospital.org/clinicalservices/Site2166/mainpageS2166P43.html

She hasn't had issues with missing school so we don't have anything on that.

0

Share this post


Link to post
Share on other sites

I started this topic a full year ago, but here I am gearing up for the school year and wanted to know if any of you know the typical process of "renewing"  a 504 plan that was in place last year.  I would love to know if any forms are required.  I have scheduled meetings with both of my daughters schools but want to make sure that I have everything in order.  THANK YOU!

0

Share this post


Link to post
Share on other sites

I believe you meet with the guidance counselor or whoever put it in place for you in the beginning and go over the plan. Then if there are any additions or subtractions from it....those get entered in and a revised plan is given to everyone, including you...you actually have to sign it and return it to the school to change it.

Now....I've never had a 504 Plan for a food issue....maybe it's a little different given the fact that food has a tendency to be SEEN if things aren't followed (as in it makes the child ill) but we have had issues with teachers either knowing about them AT ALL or following them but only barely...like they were suggestions and not specific plans written out. So...I would just double check that your child's teacher is fully aware and has read your child's 504 Plan.

 

Hmmm...looks like I will have to be doing this for the little guy now. Never really thought of having to do one...but it makes sense.

0

Share this post


Link to post
Share on other sites

I just emailed our principal and then they called to schedule the review.  Ours involves the teacher, principal, school psychologist and myself. 

 

We talked about possible bussing this year but didn't add it yet. Not sure I'm ready for that! lol

0

Share this post


Link to post
Share on other sites

Hmm, I thought 504 plans were for educational modifications. In my school system all health modifications are strictly met with notes from the Dr., and the nurse will train the teachers that have that student. Classes with students having food allergies and intolerances are educated the importance of hand washing and not sharing food. It should fall under the Equal Opportunities Act.

0

Share this post


Link to post
Share on other sites

Hmm, I thought 504 plans were for educational modifications. In my school system all health modifications are strictly met with notes from the Dr., and the nurse will train the teachers that have that student. Classes with students having food allergies and intolerances are educated the importance of hand washing and not sharing food. It should fall under the Equal Opportunities Act.

Anything that is considered a disability, I believe. Celiac falls under this.

0

Share this post


Link to post
Share on other sites

Yes it does. Unless their are learning deficits a 504 plan is not needed. A statement from the Dr. Is all that should be required. It's the law that the school follow the guidelines.

0

Share this post


Link to post
Share on other sites

Theredoesn't need to be any learning deficits for there to be a 504.  Also, the guidelines do not need to be suggested by the Dr. at all. The only thing the Dr. really needs to do is state how the disability effects the childs ability to carry out basic life functions. The accommodations most often are suggested by the parents as they know what needs to be done to keep a child safe.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,374
    • Total Posts
      920,570
  • Topics

  • Posts

    • https://www.facebook.com/groups/SingaporeCeliacs/
    • Today was the big day when I went to the GI and this is the first time I have felt heard about and well taken care of.  I told him about the two celiac blood tests  (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope.    I had filled out the appropriate Kaiser paperwork for Sutter to send all my medical records, but they ended up sending a celiac disease to me with the records, which Sutter said they could not use.  We also talked about gluten sensitivity v. celiac, and he said a lot of people are sensitive to gluten even if they don't have celiac. He said that my symptoms sound like classic IBS, which can be caused by any number of things.  He asked if I would try the FODMAP diet, which limits certain foods and requires no gluten due to what being He said my symptoms sound like classic IBS, which he said can be caused by any number of things, including gluten sensitivity.  He has asked if I would try the FODMAP diet, which has restricted foods as well as no gluten because most gluten products have wheat in them.  So, since I am planning on going gluten free anyway, and I don't want another endoscope or blood tests if absolutely necessary, I am going to try the FODMAP diet and see what happens. I filled a consent form at the GI office today to have all my records sent to him so he can view the endoscope pathology report and photos.  I have an appointment with a Registered Dietician on September 30, and follow up appointment the GI in 4 months. 
    • gluten-free andee, according to an article on celiac.com  that talks about this subject see this link http://www.celiac.com/articles/24406/1/Celiac-Diease-and-Other-Autoimmune-Diseases-Equals-Low-Inflammatory-Diet/Page1.html Quoting the author "In the author's personal experience, a gluten-free diet has many limitations. The reactivity between alpha gliadin and corn, millet, oats, rice and dairy has been denounced as invalid by gastroenterologists and celiac disease researchers. While at a medical school in Missouri, biopsies did not show improvement in villous atropy until all alpha gliadin sources and corn, millet, rice and oats were removed from the diet."  Note this research is two years old but hilites the problem with non-gluten rice protein that you are having. It is the alpha gliadin sources that it causing the cross reactivity you are experiencing when you eat rice protein's. She says quoting "Celiac disease has gotten the most attention in antibody research, but the current data on cross-reactivity of antibodies is allowing a better understanding of gluten sensitivity. Antigen reactivity to alpha-gliadin can trigger immune attacks on many individuals beyond those with positive DQ 2, DQ 8 and TTG test results. She goes on to say "A low inflammatory diet customized to each person through testing for cross-reactivity or elimination diet protocols is needed to restore a state of health and well-being."  which sounds exactly like what you are doing. If you are still having problems after elminating rice a 30 day elimination of all the alpha gliadin proteins might be in order.  Corn is a common reactivity problem I hear with a gluten allergy from my friends as well as the obvious lactose problems that can be common among celiacs.  But rarely do you hear Rice allergy's brought up in context of a gluten allergy. I am glad you are making progress on finding your triggers. Read the whole article for yourself to see if there are nuggets of truth I did not highlight in my response. I hope this is helpful. Good luck on your journey to health. Posterboy,
    • One other thing - you might be able to tolerate some dairy if it's only the FODMAPs problem. I discovered that many cheese such as cheddar have effectively no lactose. And my wife sometimes makes 24 hour yoghurt, which also has effectively no lactose. Those have been fine for my tummy.
    • I'm new to the forum, so this topic may already have been covered....please forgive me, if that's the case.  I am in the beginning stages of guiding the development of a 504 plan to file for my 6th-grade daughter who was diagnosed with Celiac Disease 2 weeks ago. The diagnosis was made with a biopsy. My first question...A 504 is what's necessary....not just the IHCP, correct or no? I have the Physician's Statement & the Medical Evaluation report from our GI specialist. What else do I need to have at the ready? The team has requested we go ahead and write the IHCP & then include it with the 504.  And my second question...What accommodations have others found relevant to include on the IHCP  & 504? I just watched a 504-Plan webinar I found on this forum & it recommends the following: -access to gluten-free food in classroom & cafeteria - excused absence from activities that use gluten-containing foods or materials -  prevent cross-contamination in school food service - use of microwave to heat personal meals -  bathroom priveleges Is there anything I need to consider adding? My daughter does prefer eating school meals rather than packing a lunch from home & I am concerned about special events, overnight field trips etc. My learning curve is steep. What am I missing? Teach me, please & thanks so much! This forum has already helped me tremendously these past few weeks.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,450
    • Most Online
      1,763

    Newest Member
    Chellygirl
    Joined