Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Salicylate Sensitivity/ Intolerance Article
0

9 posts in this topic

I'm putting this here because I think it might be an interesting read for people who know they're sensitive to sals because of their DH.

The article contains very interesting details about low sals diets and what people would naturally eat if they didn't overdose on fruits and high sals veggies.

I never thought that a high fruit diet could ever hurt anyone until I experienced it first hand!

http://fedup.com.au/factsheets/additive-and-natural-chemical-factsheets/salicylates

0

Share this post


Link to post
Share on other sites


Ads by Google:

Thanks for posting this Dani. Its an interesting, well written article.

I too have salicylate sensitivity--along with celiac and a few other sensitivities: amines, tannins, and oxalates.

Going off the salicylates nearly two years ago was the first part of this wrinkle in my healing journey--and it measurably made me less jumpy, with legs flailing at night with less pronounced eczema, but it did not do the whole thing. I eventually discovered amines and tannins were giving me migraines, it wasn't all just "CC to gluten.

I am finally am starting to sleep better now that I am detoxing from the oxalates--plus my skin is less red and inflamed (ears and vulva/anal area) with fewer hives. I am taking calcium citrate before my meals as well as eating less oxalates. Further I am taking certain supplements so my body produces less oxalate too.

When I was younger I had a condition that looked very like DH but I am not certain it really was. I had these tiny bumps all over my back and seat plus up on either side at the edge of my face running into my hairline and down either side of my neck. It went away after I stopped being off things in the wheat family--which at the time I thought I just had an allergy to.

However the trace gluten still got me and thus I was frequently sick a lot (for longer than most people) with colds, flu and bronchitis--for which I took lots of herbs, which likely eventually precipitated the full blown salicylate sensitivity. Nevertheless I think the herbs were better than being on antibiotics all the time, like my doctors had prescribed due to my sensitive kidneys. Thing was I became extremely allergic to antibiotics, so it really wasn't much of a choice... Plus testing myself by using a food journal and going on a simplified diet to figure it all out really helped. Thing was that I had far more sensitivities than anyone at the time could really help me with. However rotating my diet and going off the gluten overall was a good choice.

I think maybe there is a spectrum to these skin conditions, eh?

There is no way at this point I am willing to go eat gluten to find out if I have DH or not. Gluten attacks my overall health and even if I just get CC'd too often it starts going after my kidneys as well as my lungs.

I was originally diagnosed with celiac from a doctor formally from the Mayo Clinic after I stopped growing and contracted pneumonia as a 4 month old infant first introduced to grains. Unfortunately I was put back onto gluten when I was five. I kept growing so they thought I was OK--even though suddenly I became a sickly child again whereas I had been very healthy in the interim.

I think if I had not had my system under attack by gluten all those many years I would be less sensitive to all these foods. But here I am. Its much better to know what it is and what to do than continue to suffer is how I look at it. I am not 100% yet, but my skin and nervous system and overall health is getting better all the time. Certainly I don't get sick anymore, which is in large part due to being off all trace gluten--for which I am thankful to this forum for pointing out the need.

Lately going off these other food sensitivities is finally giving me relief from what I call the itchy bitchies. I am certain you can relate! I personally think all these food sensitivities that affect the skin (and some other related systems like the lymphatic and renal systems) indicate a liver that is overwhelmed--so the body uses the skin as an adjunct for the detoxification process. It all seems to start with leaky gut of course. Ouch and itch, eh?

0

Share this post


Link to post
Share on other sites

Thank you Dani! A most informative article & a great thing to post!smile.gif

0

Share this post


Link to post
Share on other sites

I'm putting this here because I think it might be an interesting read for people who know they're sensitive to sals because of their DH.

The article contains very interesting details about low sals diets and what people would naturally eat if they didn't overdose on fruits and high sals veggies.

I never thought that a high fruit diet could ever hurt anyone until I experienced it first hand!

http://fedup.com.au/factsheets/additive-and-natural-chemical-factsheets/salicylates

Thanks for the article. It kinda makes me cringe because before I ever heard about gluten, I believed I was allergic to salicylate acids. Since, I found out about celiac's disease, I put those allergies on the back burner and try to reevaluate everything I've been told like; I was allergic to the cold and pollen. I'm extremely heat sensitive, and I'm allergic to grass not pollen. Since, I've been gluten-free, it has helped me considerably. But I find myself still allergic to some things like fragrance, Mountain Dew, and brown rice. I'm not particular fond of fruits and vegetables, so I stay away from them, but I used to get reactions when I ate them. I did 3 years earlier, had a horrible reaction to some medications, and it turns out everything I took, was gluten-free. I'm noticing, some eczema spots again and explainable ( but unexplainable stomache pain). After, reading that article, it pains me to say, I need to reevaluate my diet again.

0

Share this post


Link to post
Share on other sites

You might want to consider checking out the salicylate sensitivity forum. A really nice, supportive and informed bunch of folks whose information is often more helpful than most doctors.

0

Share this post


Link to post
Share on other sites




Thanks for posting this Dani. Its an interesting, well written article.

I too have salicylate sensitivity--along with celiac and a few other sensitivities: amines, tannins, and oxalates.

Going off the salicylates nearly two years ago was the first part of this wrinkle in my healing journey--and it measurably made me less jumpy, with legs flailing at night with less pronounced eczema, but it did not do the whole thing. I eventually discovered amines and tannins were giving me migraines, it wasn't all just "CC to gluten.

I am finally am starting to sleep better now that I am detoxing from the oxalates--plus my skin is less red and inflamed (ears and vulva/anal area) with fewer hives. I am taking calcium citrate before my meals as well as eating less oxalates. Further I am taking certain supplements so my body produces less oxalate too.

When I was younger I had a condition that looked very like DH but I am not certain it really was. I had these tiny bumps all over my back and seat plus up on either side at the edge of my face running into my hairline and down either side of my neck. It went away after I stopped being off things in the wheat family--which at the time I thought I just had an allergy to.

However the trace gluten still got me and thus I was frequently sick a lot (for longer than most people) with colds, flu and bronchitis--for which I took lots of herbs, which likely eventually precipitated the full blown salicylate sensitivity. Nevertheless I think the herbs were better than being on antibiotics all the time, like my doctors had prescribed due to my sensitive kidneys. Thing was I became extremely allergic to antibiotics, so it really wasn't much of a choice... Plus testing myself by using a food journal and going on a simplified diet to figure it all out really helped. Thing was that I had far more sensitivities than anyone at the time could really help me with. However rotating my diet and going off the gluten overall was a good choice.

I think maybe there is a spectrum to these skin conditions, eh?

There is no way at this point I am willing to go eat gluten to find out if I have DH or not. Gluten attacks my overall health and even if I just get CC'd too often it starts going after my kidneys as well as my lungs.

I was originally diagnosed with celiac from a doctor formally from the Mayo Clinic after I stopped growing and contracted pneumonia as a 4 month old infant first introduced to grains. Unfortunately I was put back onto gluten when I was five. I kept growing so they thought I was OK--even though suddenly I became a sickly child again whereas I had been very healthy in the interim.

I think if I had not had my system under attack by gluten all those many years I would be less sensitive to all these foods. But here I am. Its much better to know what it is and what to do than continue to suffer is how I look at it. I am not 100% yet, but my skin and nervous system and overall health is getting better all the time. Certainly I don't get sick anymore, which is in large part due to being off all trace gluten--for which I am thankful to this forum for pointing out the need.

Lately going off these other food sensitivities is finally giving me relief from what I call the itchy bitchies. I am certain you can relate! I personally think all these food sensitivities that affect the skin (and some other related systems like the lymphatic and renal systems) indicate a liver that is overwhelmed--so the body uses the skin as an adjunct for the detoxification process. It all seems to start with leaky gut of course. Ouch and itch, eh?

Yolo, I have been thinking about your reply ever since you posted it. You have so many sensitivities! How are you coping? It really can't be easy and I would say I'm sorry you had a tough journey, but I think you're in a happy place now that you're feeling better! Thanks for sharing your story.

I've been very curious about your diet however? Would you mind sharing what you usually eat at a daily basis, and how the supplements you're taking contribute to your low oxalate diet? I'm also curious how you found out about those other sensitivities (aside from the symptoms).

0

Share this post


Link to post
Share on other sites

Thanks for the article. It kinda makes me cringe because before I ever heard about gluten, I believed I was allergic to salicylate acids. Since, I found out about celiac's disease, I put those allergies on the back burner and try to reevaluate everything I've been told like; I was allergic to the cold and pollen. I'm extremely heat sensitive, and I'm allergic to grass not pollen. Since, I've been gluten-free, it has helped me considerably. But I find myself still allergic to some things like fragrance, Mountain Dew, and brown rice. I'm not particular fond of fruits and vegetables, so I stay away from them, but I used to get reactions when I ate them. I did 3 years earlier, had a horrible reaction to some medications, and it turns out everything I took, was gluten-free. I'm noticing, some eczema spots again and explainable ( but unexplainable stomache pain). After, reading that article, it pains me to say, I need to reevaluate my diet again.

Celiac messes with our gut's natural balance so all those weird sensitivities and intolerances are caused by years of eating damaging foods we could not tolerate. Such a sad thing that most of us always thought it was the other way around.. that the side effects were the cause, and then we tried fixing the side effects but end up causing new intolerances as a result.

I wasn't too sensitive to sals until I unknowingly went on an all sals diet for months.. thinking fruits and veggies were my friends haha :-) I have learned how to love my supplements now.

0

Share this post


Link to post
Share on other sites

Thank you Dani! A most informative article & a great thing to post!smile.gif

Yw! ((((hug))))

0

Share this post


Link to post
Share on other sites

Yolo, I have been thinking about your reply ever since you posted it. You have so many sensitivities! How are you coping? It really can't be easy and I would say I'm sorry you had a tough journey, but I think you're in a happy place now that you're feeling better! Thanks for sharing your story.

I've been very curious about your diet however? Would you mind sharing what you usually eat at a daily basis, and how the supplements you're taking contribute to your low oxalate diet? I'm also curious how you found out about those other sensitivities (aside from the symptoms).

Hi Dani, I am glad you got something out of my story. It has been a long time coming--figuring these things out. I have been greatly helped these last two years by the folks on the salicylate sensitivity forum. Check them out sometime! They do not limit themselves to talking about just salicylates since there are many related food sensitivity issues that begin and/or are exacerbated by leaky gut. I think maybe celiac qualifies??

I also have a couple of friends who likely have oxalate sensitivity so I started reading more about it at the oxalate sensitivity info site after hearing about it on the salicylate sensitivity site. There is also a yahoo group associated with it called: trying low oxalates. I then realized I have a condition that actually has a name called vulvadynia that is exacerbated by oxalates. Actually research on this condition then led into realizing there are yet more symptoms of oxalate sensitivity than was thought--including not being able to sleep very well at night plus sensitive skin, sore joints etc. Originally it was thought oxalates were just a problem for those that get kidney stones. Good news for me is that my vulva is finally healing!!

As far as the tannins go, I started looking into what it could possibly be about all the beans that I was eating of late that could be giving me headaches again. Quickly by googling it I discovered that many beans have tannins--though not all. I have been having trouble getting low amine meat so I concentrated on getting most of my protein from beans and then finally after 2 months this allergy surfaced. Tannins, like amines, tend to give folks migraines...of which I have had way too many in my life. Through trial and error I figured out yes I do have this tannin sensitivity too.

Today I hope to get some chicken from WF that is fresh enough to be OK (within 4 days from slaughter is OK--and then you parboil it and freeze it in meal size packages). Ironically for amine difficulties its best to microwave one's food when heating it up since reheating on the stove or cooking in the oven often creates too many amines.

I continue to take epsom salt baths though not as many as I was. The bentonite clay slaked at least 4 hours in water plus quickly mixed psyllium husks in more water seems to help me safely detox--which seems to be necessary for me given everything. Start with 1 teaspoon of each and gradually work up to a tablespoon of each or less.

I will write more about my diet later. There are lists however on the salicylate sensitivity forum plus on the oxalate info site that are very useful. You should also look up the failsafe diet, Sue Dengate and the Royal Prince Albert Hospital's dietary protocol listed online by RobotGirl. They are located in Australia and have done important research on all this that has not gotten a lot of notice in the US although it should. They are pioneers in the field of food sensitivity.

I am very busy today and this weekend. Am going to go to galleries on Sat. with my bf and a good artist friend. Today I have a lot on my plate at work too.

And yes I am resurrecting my art career at long last since finally I seem to be nearly if not at the root of this health thing! Plus a friend suggested that I write that book on my healing journey that I have been threatening to do for years now.

Bea

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,334
    • Total Posts
      920,438
  • Topics

  • Posts

    • Thank you cyclinglady! We'll just keep pushing forward and we'll get things figured out one way or another. You have been most helpful and informative and given me some great resources and things to consider. I really appreciate it! I definitely feel better as I've felt like a crazy mom lately thinking through the test results and everything. Even if it turns out to not be celiac or gluten related, at least I can say we did our due diligence and looked under every rock to find the source of his troubles. Thanks again!  Take care! 
    • Anxiety is quite a common symptom with undiagnosed celiacs. It should improve if not disappear when you go gluten free. Be sure to CONTINUE eating gluten until the endoscopy!   Welcome to the club!
    • Although serological tests are useful for identifying celiac disease, it is well known that a small minority of celiacs are seronegative, and show no blood markers for celiac disease. A team of researchers wanted to define the prevalence and features of seronegative compared to seropositive celiac disease, and to establish whether celiac disease is a common cause of seronegative villous atrophy. View the full article
    • This was absolutely me before diagnosis.  The worst of all of my Celiac symptoms occurred in the morning.  The anxiety was terrible in the mornings, I had horrible nausea, no appetite, felt light headed, dizzy and shaky, diarrhea, stomach cramps... the works.  Honestly, I don't know if it was the symptoms causing the anxiety, the anxiety making my symptoms worse, or a combination.  I almost dropped out of school because I felt so terrible every morning I didn't want to leave the house to go to class.  The first few doctors I saw insisted all of my symptoms were psychological and tried to give me anti-depressants/anti-anxiety meds, but I knew there was something else wrong with me.  I had always been a bit "high-strung," but for the year I was really sick before diagnosis, the anxiety got out of control. I was diagnosed with celiac disease 6 months ago and have been gluten free ever since.  It took time, but everything is gradually improving.  The morning anxiety is much improved and some mornings, is completely gone.  I realized a month or two ago that I no longer spend the first hour after waking up gagging and dry-heaving, something I had done for so many years that I just thought it was normal for me.  I can brush my teeth and my tongue without feeling like I'm going to puke.  I eat breakfast now, which I have never done, because I was always too anxious and nauseous in the mornings to be hungry.  I am not "all better."  I still have bad days and even bad weeks.  If I get glutened the anxiety comes back full force.  If I'm super-stressed out or letting my health slide (not eating well, not sleeping enough) the AM anxiety seems to return.  But, it has been slowly improving over the last 6 months and has become so much more manageable.   Your anxiety could be a separate disorder from the celiac disease, but for me, it seems it was absolutely related and continues to get better.  Don't get discouraged if you don't see an immediate improvement or experience relapses after improving.  Often, I feel like it's a two-step-forward, one-step-back kind of thing, but it is getting better.
    • I have suffered with GERD for 20 years and accidently found out it was a gluten intolerance. I had gone on Atkins years ago and noticed that I had no GERD symptoms while on the diet. I didn't make the connection at that time. Then I went on the Mayo Diet back in the winter and once again, the constant was having no bread primarily. I had also noticed that I would have major attacks anytime I ate Italian food. I blamed it on the onions, the tomatoes, herbs...but I could tolerate all those foods separately. Then, like a lightning bolt...it hit me...the culprit was the "innocent" pasta. BINGO!!  I went gluten-free in March 2016 and I have had no GERD now in 5 months. I feel as if it is a gift to me.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,390
    • Most Online
      1,763

    Newest Member
    tomj777
    Joined