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Gluten-Caused Cramps
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3 posts in this topic

It would be great to get as many to share their cramp-symptoms as possible. I have constant crams nowadays and it got me thinking, what if they're something else?

For those of you who get constipation, please join in too.

1. Do you get C or D?

2. How long before the cramps begin?

3. Does the pain occur in the same place or can it vary? (upper/lower abdomen and left/right)

4. How many days do the cramps last, and for how long each day?

5. Do you get back-pain? If yes, what type (location, is it movement-induced or constant and stingy?) and for how long?

5. Does muscle and joint soreness occur at the same time, before, after, or throughout?

6. Any specific signs that help you differentiate the cramps from other types of problems? (reflux/ indigestion/ period/ kidney/ gallbladder/ pancreas/ IBS)

I might add more questions later.

Thanks so much for those of you who take the time to share.

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From 2004 to 2007, I had a sharp, colicky pain on the right upper abdomen, right under the rib cage. I was tested for everything kidneys, liver, gallbladder, even had a investigative surgery where they took out my appendix, had a twisted colon, and basically my organs were out of place; but that didn't stop the pain. My stomache was visually, extremely bloated, varied c and d, and it didn't affect my appetite, which I thought was strange. Well, after 3 extremely painful years, I finally quit taking my vitamins (my doctor assured me that wouldn't cause such a pain), the pain stopped. It moved to my kidneys and so on, but that's another story. Three years later, my doctor informed me of Celiac's disease, so I believe, it's safe to assume it was the gluten in the vitamins that caused my pain. Every now and then, that area will hurt, like it was damaged. I'm guessing, if I wasn't a Celiac, it wouldn't of hurt. When, I eat gluten, I get extremely bad cramps, like you get when you have d. My son (celiac) and my husband (sensitive) both get d. I just wanted to share my story, just in case anybody else finds themselves with a phantom pain.

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Yup! Started getting them once in a rare while in my 20s and they became progressively worse in my 40's and 50s till I finally got a celiac diagnosis. Used to go to India where all my friends had the runs and I'd be there for months at time unable to have a BM - having to take laxatives constantly. My doctor always told me I didn't drink enough water; nonsense. Last few years, the least little thing would set me off. If I ate chlorella or any super green food - I'd end up on stool softeners for a month. Same thing if I had acupuncture that used electro-stimulation. I would get terrible gas - under my right rib and got sent for horrible hours-long MRIs drinking nasty radioactive milkshakes, endless sonograms and nothing every came up. Stopped gluten about a month ago and all is good in that department.

Still dealing with fatigue and some joint aches - but digestion is great. I hear that folks after getting gluten free can deal with caffeine - so hoping to risk drinking a normal cup of coffee again after years.

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
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