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Gluten-Caused Cramps
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3 posts in this topic

It would be great to get as many to share their cramp-symptoms as possible. I have constant crams nowadays and it got me thinking, what if they're something else?

For those of you who get constipation, please join in too.

1. Do you get C or D?

2. How long before the cramps begin?

3. Does the pain occur in the same place or can it vary? (upper/lower abdomen and left/right)

4. How many days do the cramps last, and for how long each day?

5. Do you get back-pain? If yes, what type (location, is it movement-induced or constant and stingy?) and for how long?

5. Does muscle and joint soreness occur at the same time, before, after, or throughout?

6. Any specific signs that help you differentiate the cramps from other types of problems? (reflux/ indigestion/ period/ kidney/ gallbladder/ pancreas/ IBS)

I might add more questions later.

Thanks so much for those of you who take the time to share.

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From 2004 to 2007, I had a sharp, colicky pain on the right upper abdomen, right under the rib cage. I was tested for everything kidneys, liver, gallbladder, even had a investigative surgery where they took out my appendix, had a twisted colon, and basically my organs were out of place; but that didn't stop the pain. My stomache was visually, extremely bloated, varied c and d, and it didn't affect my appetite, which I thought was strange. Well, after 3 extremely painful years, I finally quit taking my vitamins (my doctor assured me that wouldn't cause such a pain), the pain stopped. It moved to my kidneys and so on, but that's another story. Three years later, my doctor informed me of Celiac's disease, so I believe, it's safe to assume it was the gluten in the vitamins that caused my pain. Every now and then, that area will hurt, like it was damaged. I'm guessing, if I wasn't a Celiac, it wouldn't of hurt. When, I eat gluten, I get extremely bad cramps, like you get when you have d. My son (celiac) and my husband (sensitive) both get d. I just wanted to share my story, just in case anybody else finds themselves with a phantom pain.

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Yup! Started getting them once in a rare while in my 20s and they became progressively worse in my 40's and 50s till I finally got a celiac diagnosis. Used to go to India where all my friends had the runs and I'd be there for months at time unable to have a BM - having to take laxatives constantly. My doctor always told me I didn't drink enough water; nonsense. Last few years, the least little thing would set me off. If I ate chlorella or any super green food - I'd end up on stool softeners for a month. Same thing if I had acupuncture that used electro-stimulation. I would get terrible gas - under my right rib and got sent for horrible hours-long MRIs drinking nasty radioactive milkshakes, endless sonograms and nothing every came up. Stopped gluten about a month ago and all is good in that department.

Still dealing with fatigue and some joint aches - but digestion is great. I hear that folks after getting gluten free can deal with caffeine - so hoping to risk drinking a normal cup of coffee again after years.

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    • Well, I am stressed to the max. I just spent 3 days in the hospital with D and stomach pain, dizziness, chest pain, generally unwell. Then another trip to the ER on top of that. My protein was low and my RBC and hemoglobin dropped below normal in 3 days. Not terribly low, but below normal. I also had metabolic acidosis which still confuses me. I usually eat every 2-3 hours despite it causing pain to keep my energy up and was unable to eat that frequently in the hospital. I usually carry protein with me and had been taking liquid iron which I stopped a few weeks ago because my new endo is not a fan of iron supplements. As soon as I got home from the hospital I started with my protein drinks and blackstrap molasses for iron.  I now have bilateral mild pleural effusions and a nodule on my left lung, which hopefully is nothing, but was not there on a CT back in March. In addition, my left adrenal gland, which also appeared normal in March, is calcified and the report indicates this is most likely due to a previous bleed or infection. My colon appears tortuous (whatever that means) and we are waiting on colon/endo biopsies. I have been gluten-free since March except for cc so expect the biopsies to again be negative.  My primary care is useless. I am in the process of getting a new one I will see on the 7th but need the current one to fill out FMLA paperwork because I both physically and mentally need time to recover. I will have to go off of payroll for 2 weeks but I think I need to. I called the primary's office today to discuss the hospital tests which she does NOT have yet and to ask if we should/could start a low dose of prednisone because my body is attacking itself. My thyroid on ultrasound is also abnormal though my bloodwork thus far is normal. But it hurts on that side. The only reason the ultrasound was ordered is because I asked for it in the first place. The only reason I have started seeing an endocrinologist is because I found one myself. Anyway...I broke down in tears on the phone eith her today and she told me I was having a "manic episode". I have no history of mania. I only recently started taking xanax to help me cope with the stress of being sick. I was not sick until I did this stupid gluten challenge over the winter. My mother was in town and spoke with the doctor on the phone as well who was trying to get my mom to take me to a psych hospital. She also threatened to send the police to check on me. My mother assured her I was in no danger and we hung up the phone in complete shock. Admittedly, I was in tears when I called her and probably sounded like a fucking mess. But I believe I referenced the dropping iron, protein, fluid near lungs, enlarged thyroid and attacked adrenal gland then literally said "my body is attacking itself and I need help" to which she said, "I think you are manic". Lovely. If I was a mess before that phone call it was 10x worse when we hung up.  Anyway, this is the first night it has been extremely difficult to sleep. I admit my thoughts about my odd symptoms keep me up often recently. I mean, who the hell bleeds from or gets an infected adrenal gland?! I am sure it was another time I begged my primary for help. On a side not, the NP at the ER told me the primary should be putting these pieces together and communicating with my other doctors better. He then stated that he used to go to the same practice but left because the practice got too big and like a business. So I got some validation from that chat.  A melatonin or a .25 xanax usually does the trick for me to sleep but I am so disturbed about my interaction today, stressed at my health, stressed that my ex has our son so much because I am always sick (bless him for coming through), stressed that I have to go back to this awful doctor because I will need the FMLA paperwork before I see the new doc on the 7th.  8 months ago, I took a multivitamin when I remembered it and that was it.  End rant. Maybe now that it is off my chest I can finally sleep. 
    • Hi DKH0614, I use aspirin, Pepto Bismol, and peppermint tea or Altoids peppermints.  Pepto Bismol has a soothing effect on the gut.  Pepto Bismol also has aspirin in it.  Peppermint is helpful for relaxing smooth muscle tissue and getting gas out of the stomach. As per KarenG, you may be reacting to dairy.  Dairy has a sugar called lactose in it that some people with celiac have a hard time digesting.  You could try avoiding dairy for a few weeks to see if that helps.  Or try taking lactaid type pills when you eat dairy. It doesn't take very much gluten to cause an immune system reaction.  So it is important to avoid even traces of gluten if possible.  The stuff is hard to avoid sometimes if people around you don't understand how much a small amount of it can affect your body. Let us know if we can help with any  more questions, or if you have concerns we haven't addressed. And welcome to the forum! Also, if you subscribe to the thread (notify me of replies) you'll get an email when people respond to your thread.    
    • After a year and half, if you are eating gluten-free, you shouldn't be having pain from Celiac.  Perhaps you need to find out what is really causing your issues?  Dairy/ lactose is an obvious first place to look.
    • Hi! I am 15 and have been diagnosed with celiac disease for about a year and a half now and I am woundering what do some of y'all use to relive some of the abdominal pains that come along with celiac/gluten allergies?  ( Ibuprofen,  Tylenol, etc.) 
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