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Recent Diagnosis
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I was diagnosed with Celiac in March/April of this year, but I have some questions regarding my testing process. I was first tested for Celiac Nov. 2008. My mother went to the doctor for various symptoms and read about Celiac on the internet, so she asked to be tested. She had one positive and one negative blood test. She told me to get tested, and I had two positive blood tests. My results are below:

Endomy IGA Positive

Endomy A TItter 1:160

TTG IGG <3; <7 is Negative

TTG IGA 44; >8 is Positive

Gliadin IGG 72; >17 is Positive

Gliadin IGA >100; >17 is Positive

I didn't know much about Celiac at the time, and I was losing military insurance in a month because of my age. I was not diagnosed, so I decided not to go for further testing because I learned that I would not be able to get individual insurance with a diagnosis. I tried a gluten free diet for a little while and didn't notice anything different. I eventually started eating normal again. Fast forward about 3 years. Between Nov. 2011 and Jan 2012, my husband was deployed, and I had some pretty severe anxiety and a few health issue-infections and oral thrush from medication that was difficult to get rid of. I finally started to get over most of the anxiety and was feeling better towards the beginning of January, so I made the decision to try gluten free. I always had concerns about those positive blood tests. When my husband came home, I decided to see a GI specialist. I was gluten free about 2 1/2 to 3 months at the time of my testing. I showed the doctor my previous results, and he told me I have Celiac. He wanted to do the EGD, and I requested another blood test. However, he told me not to eat gluten before having any of the testing done. Below are my recent results:

TTG Antibody, IGA <3 Negative

Immunogobulin A Within Range

Gliadin (Deamidated) AB (IGA) 25 >20 Antibody Detected

So, these were the results after about 2 1/2 months gluten free. After I had the EGD, I met with the doctor, and he told me my villi were not damaged, but there was inflammation in my intestines that he contributed to Celiac. He also mentioned something about gas. I wanted the records but I just got them today. Here is what it says.

A. Duodenum, Biopsy

-small bowel mucosa with mild scattered chronic inflammation

-the villous architecture is normal

-there is no increase of intraepithelial lymphocytes

-no evidence of gluten sensitive enteropathy (Celiac Disease)

-no evidence of aypia or malignancy

B. Stomach, Antrum, Biopsy

-mild chronic gastritis

-Helicobacter Immunostain-no helicobacter organisms identified

His impressions were Celiac disease and Gastritis. He recommended Proton pump inhibitor, follow up office visit, and Gluten free diet. When I went into his office, he didn't even remember that I was there for the results of my EGD. I had to remind him, and he only told me that I have Celiac and the gluten free diet is working. He never mentioned anything about Gastritis. So, I'm not sure what to do about that.

So, I guess I'm just curious if anyone has had a similar experience or if you can help me understand the testing a little bit. Also, I notice the numbers are drastically different from my first test back in 08 to my recent test in 2012. Could I have healed that quickly with only 2 1/2 months of gluten free?

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You definitely have celiac. Your first set of tests had FOUR positive tests, not two, and they are highly specific for celiac. There is no question. And yes, villi heal very quickly on a gluten-free diet, and antibody levels can drop within weeks, so the fact that your new tests reflected ANY celiac damage is indicative of the severity of damage you must have had. You have a dx. You need to immediately begin a lifelong gluten-free diet. No question about it. You will likely not need and PPI's after a short time being gluten-free. Generally gastritis goes away. Please educate yourself about celiac though. Much more is involved than just easing "stomach trouble" your entire health, and even your life, depends on staying 100% gluten free.

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Hi,

Welcome to the site! :) You were smart to go get tested again. Celiac doesn't go away, it is a lifelong thing once it starts. The immune system learns to kill gluten just like it kills germs, and the gut takes the damage along with the gluten since that's where the battle is fought. Antibodies are normally much higher in the gut, where they are "needed" to fight the gluten. Many of them are actually made in the gut lining where they are important as a first line of defense against nasty little germs that want to hurt you. So finding them in the bloodstream means they are roaming from home looking for other targets. That could be your liver, you skin, you brain, your joints, or other important stuff that you don't want hurt. Google gluten ataxia to get and idea or dermatitis herpetiformis. I don't have any refs for this thinking so lets just say it is IMHO. Although you could read up on Enterolabs testing of you are curious.

Well, that all sounded kind of ominous but it doesn't have to be. You can avoid many health issues by sticking to a clean, healthy, gluten free diet. The usual suggestion is to eat gltuen for 3 months before doing testing for blood antibodies. Your showed an increase sooner than that which means something is definitely going on. Your immune system is a good soldier and responds quickly and will be ready to fight the battle for a couple weeks at least.

Well, enough rambling, here are some helpful threads.

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Dessert thread

How bad is cheating?

Short temper thread

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Thank you so much for all the information. I do feel like I am relatively knowledgable about Celiac and how it affects your overall health. However, there is always more to learn. I have been gluten free for about 7 months. I didn't feel like my testing was done properly. My doctor told me many times that I know more about it than he does. Even though I didn't really have doubts that I have Celiac, I wanted to see what others who are knowledgeable said. If you get a change to look at my post "symptoms (or lack there of)," please let me know what you think. I asked about the fact that I am not aware of any of my symptoms (not saying I don't have any), and how that can be a challenge in maintaining a gluten free diet. Thanks again for your responses!

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    • He was not IGA deficient.  I'm still hoping we can convince the base GI to approve his referral.   Thanks for that thread about TTG Igg.  That's exactly what I was wondering. 
    • Star Anise Foods  rice paper and spring rolls are gluten free they have brown and white rice versions. I have not had issues with these in the past when I used to use them. Should be able to find them on amazon.
    • Hi strawberrymoon, If you are having a blood sugar problem, that can cause nerve damage and tingling.  Nerve damage is often associated with diabetes.  You can ask your doctor to check your A1C level to get an idea how it has been doing. It would probably help your glucose levels to stick with a paleo style diet, avoiding most carbs.  Carbs and meats have a different affect on blood glucose.  Carbs tend to spike blood glucose while meats even it out. There are a lot of negative changes that can happen with high blood glucose.  It is wise to try and get it under control ASAP.  My brother has lost most of his vision in one eye now from high blood glucose.  And he has the tingling symptoms you described.  The tingling can progress to pain in time.  My brother chose to ignore his diabetes and is paying the price for it.  He is doing better at it now but the damage is done. Yes, B-12 deficiency can cause those kind of nerve symptoms.  But if you have high blood sugar that is the more common cause.   Diabetes is not a rare condition.
    • I have been living in Ho Chi Minh City, Vietnam, for two years, and finding gluten-free food is proving more difficult than I thought, even if I am cooking my own food. Wheat flour, called "bot mi" in Vietnamese, seems to creep into a lot of stuff nowadays. What's more, manufacturers do not feel it is important to list bot mi in the ingredients on a food's packaging unless it is a principle ingredient in the food. In other words, soy sauces or wraps with just a tiny bit of wheat flour added to add a touch of thickness or pliability are not guaranteed to list the ingredient. For some genetic reason, Vietnamese people are not nearly as susceptible to food allergies as Westerners - it probably has something to do with exposure to less hygenic foodstuffs having built up an immunity over hundreds of years - so it is not really considered important to split hairs in that department over here. Anyway, I love rice paper but have often gotten glutened by it when I have it. Can any celiac who could tell if a product had gluten by more than just the ingredient list on the back let me know a definitively gluten-free rice paper brand? I know that very few rice paper brands actually list wheat flour in the ingredients, but I don't 100% trust the ingredients list for products made by Vietnamese companies. Call me paranoid. By the way, I have a neurological condition that irreversably breaks down my immune system when I ingest gluten, so I don't want to experiment with trial by fire here.
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