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Daughter prescribed omeprazole 10 mg. called pharmacy to see if it had gluten in it and they said didn't look like it but I should call manufacturer. Whose responsible for that? I guess ultimately me just frustrating that they don't take time to be concerned.

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My opinion it should be part of the service they provide at the pharmacy. I've had problems with chain pharmacys, but I do well at a private pharmacy where I live. In the event I can't use the private pharmacy, I still have to call myself and shop around. Sucks!

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Personally, I don't trust the pharmacies to check--I ALWAYS call the manufacturer directly because I know all the questions to ask.

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I always ask for the name of the manufacturer so I can call myself. We need to be responsible for our own health. It sucks, but pharmacies seem to always be busy and we really just can't trust some harried person who doesn't even understand what gluten is to be responsible for knowing if something is gluten free. Usually when I ask for the number, they always ask why then look at the bottle and respond with something like "gluten is listed as an ingredient" or "it doesn't say there's wheat in it" or some other thing that makes us who know the in's and out's want to bang our heads on walls. There have been several instances where I have had to fill a prescription at an alternate pharmacy.

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Daughter prescribed omeprazole 10 mg. called pharmacy to see if it had gluten in it and they said didn't look like it but I should call manufacturer. Whose responsible for that? I guess ultimately me just frustrating that they don't take time to be concerned.

I agree with you it should be the Pharmacy's responsability, but I do feel safer when I call the mfg. myself. Sometimes they can give me the number, sometimes is only a name, and I have to do the research myself :blink:

In the past 8 months I have had to do it like 3 times, since my Pharmacy keeps changing Manufacturers on one of my meds. At times I've had to call 5 or 6 places to get an actual person to get me the answers I am looking for, a royal pain in the you know what!!!!!

-Miriam

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Personally, I don't trust the pharmacies to check--I ALWAYS call the manufacturer directly because I know all the questions to ask.

I totally agree with this! I trust no one to get this right, especially someone who doe not have celiac disease. Everyone is responsible for their own health, ultimately, so need to do their own homework. It's another good reason to only take meds you absolutely have to have and not ones doctors push on you for no good reason.

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I got glutened once from a brand name medicine. My doctor gave me some samples. I called the mfg they said it was fine but also gave me a cya answer. I took it an got sick for my usual month. I had 2 pills tested and they both had over 50 ppm. Taking meds is always risky, I still call every single time, but I also hold my breath after I take the pill.

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    • I figured I would update those who were wondering.  I have gotten the appt. so far moved up to August 30. I am waiting to have gene testing done via swab for all 3 of my kiddos tomorrow. My daughters celiac antibodies came up negative but her IgA is low which the ped said could cause false negative antibodies for celiac so she will need to see a GI dr. also. The pediatrician is going to call the GI to try to get them in sooner. I am keeping them all on a gluten diet until the GI dr. decides what to do. I am on the cancellation list already for my son, however I am not going to be persistent with my phone calls to them until I have the results of the gene test. I really want that result in my hand before going to the GI dr if I can. Maybe if he is positive, along with his bloodwork and my history they can forgo the endoscopy. But he will eat gluten till then.  My husband and I have been very honest and upfront with him as to what is going on and the possibility of the endoscopy and what that entails and although scared in general he seems ok after assuring him that since I have it he has me to help him every step of the way.  Going through his current diet with him I realized that he is truly on such a low gluten diet that I am actually surprised his bloodwork shows antibodies at all!  So I told him to make a list of allllll the gluten he could possibly think of eating and he needs to pound it until the GI visit or endoscopy. Funny thing is everything he keeps thinking of to want to eat...is already gluten free!  The other night we were at a friends and he asked if he could be done with his hotdog. I made him finish just the bread 😂 Thanks for your help and advise and I will keep y'all posted on both kids!  My oldest is a ok as far as all his antibodies. Just actually had a follow up for other immune issues and all his levels are now normal!
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