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2 replies to this topic

#1 Jovie100

 
Jovie100

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Posted 08 August 2012 - 06:48 AM

Hello! Bear with me...I posted a topic under Diagnosis, but since I have to wait for it to be approved, I couldn't find it!

Thanks so much for any advise...hopefully i can find this post too :)
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#2 ravenwoodglass

 
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Posted 08 August 2012 - 07:41 AM

You have gotten some replies to that post. It is under "Doctors". If you need to find a post if you click on the little 'thingy' next to your screen name it will take you to your profile page. Then you look under topics you will see the two threads you have started.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#3 Lisa

 
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Posted 08 August 2012 - 02:46 PM

Hello! Bear with me...I posted a topic under Diagnosis, but since I have to wait for it to be approved, I couldn't find it!

Thanks so much for any advise...hopefully i can find this post too :)

Here it is:

http://www.celiac.co...880#entry815880
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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien


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