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Someone To Talk To
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8 posts in this topic

hi, my name is Anwen and i am 13(nearly 14) years old. I was diagnosed with celiac about 3 years ago and have been gluten-free since then. But, even tho I have been gluten-free for so long I still find the temptation hard to deal with. My family and freinds are all very supportive but none of them have celiac so I feel they do not quite understand and I would love a penpal who also has celiac that I could talk to. Any replies would be appreciated.

Thanks :)

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Ads by Google:

I'm sorry you're feeling so alone with your celiac! The Gluten Intolerance Group of North America has a program for teens where you can be put in touch with teens throughout the U.S. with celiac or gluten sensitivity. Here's the link to Teen Advocates with Gluten Sensitivities (TAGS):

http://www.gluten.net/gig%20kids/TAG.aspx

You should find lots of support there!

Laura

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hi, my name is Anwen and i am 13(nearly 14) years old. I was diagnosed with celiac about 3 years ago and have been gluten-free since then. But, even tho I have been gluten-free for so long I still find the temptation hard to deal with. My family and freinds are all very supportive but none of them have celiac so I feel they do not quite understand and I would love a penpal who also has celiac that I could talk to. Any replies would be appreciated.

Thanks :)

Hey im shaun i am 16 and would like a pen pal too

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Hey! I'm Katie and I'm 15 years old. I was diagnosed this year in january and would love a penpal :)

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Hey, I'm Kaitlyn :) I'm 17 and I've been gluten-free for a little over 2 years. I'd love a penpal :)

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Hello Anwen,

Just to say i feel so sorry for you , so young , I am 56 and feel alone in family as they all mix up and talk while eating. This is one hard fact we all have to face.

Hope you will find good friends here.

Take Care

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Heyy I'm Ebony, I'm 19 and the only one in my family who is gluten free, it would be good to have a penpal to talk to about everything :) xx

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Hey I'm 13 and I've had celiac disease for 9 years. I would love to have somebody to talk to. It's really easy to feel alone in this and I highly suggest you find somebody to talk to.

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    • Do you mean something like a protein powder you could mix up?  A lot of them in the US seem to be gluten free.  Maybe just go to your local store and read all the labels?
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    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
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