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Negative Celiac Blood Panel Test
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Hi-

I am new to the forum. My mom was diagnosed with Celiac disease two years ago and I recently stopped eating gluten last January because I had many of the symptoms. I just had a blood panel test done but it came back negative. Does anyone know how much gluten you are supposed to eat, and for how long, prior to the test? I don't think I ate enough (I only had one pretzel on one day, and then ate gluten once day for a week before the test). Thanks

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The medical info. I have read ranges from 2 to 3 months eating the equivalent of 3-4 slices of bread per day. HOWEVER, you had been gluten-free since Jan., that's 7 full months. That's not "the norm" so i would say IMHO, a bare minimum of 3 months & even then you may show negative. It takes time for the antibodies to build up.

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Ditto - minimum of three months on significant gluten.

You may have a tough time getting gluten into you now that you have been gluten-free for over 7 months -- if your symptoms return or become worse, I'd say you have your answer that you can not eat gluten and will have to weigh the possibility of getting very sick and/or damaging your intestines against the possibility that you could ingest all that gluten and still have negative blood work.

My kids all tested negative, but with my history and improved symptoms have all remained gluten free. They have each tried at one time or another to eat gluten and each had enough reaction that it convinced them to stay gluten free.

Good Luck!

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Thanks for the info! I definitely had reactions to the small amount of gluten that I ate, so I'm going to try the genetic test next.

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Many people who have gone gluten free before testing find that when they try to go back to eating gluten for testing then they are unable to tolerate it long enough to do the challenge. Most find they have much stronger reactions than they had before going gluten-free.

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    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
    • AdrienJ, thank you so much! I dream of traveling more one day. I have spondylitis too. I'm so glad that a gluten free and casein free diet is helping you feel your best!
    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
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