Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Feeling Frustrsted
0

8 posts in this topic

I went to the doctor yesterday, and the doctor laughted when I said that I thought I might have celiac diease. He said he rarely see celiac and when he does the people are rail thin with bloated stomachs( I'm 5'6 140lbs.) He said he thought my symptoms were just stress from my job(teacher) He did go ahead and do the blood tests, but he also said that it was just IBS and he gave me a prescription for Dicyclomine. My results come back on Friday. If they are negative what should I do? Should just keep eating normal and take these pills or should I get a second opinion?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Ugh, I hate it that he laughed at you! How disrespectful!

FWIW, I'm 5'6", 150 lb, no bloated stomach, no diarrhea, no weight loss (I wish!), no cramps, no gas, zero nada zip!!! And I do have celiac disease! Not everyone is the same, your dr should know that. My family dr was actually really great, I asked to be screened cuz my sis has celiac disease, and she said no problem but I don't think you have it. Neither did I, but I was positive on labs and the biopsy confirmed it. I've been gluten-free for 3 weeks now.

What you do now is really up to you. If it comes back +, do you want a scope? If you do, may as well keep eating normally because you need to be eating gluten for the tests to come back accurately (do what I did, visit all your favourite spots and never walk past a bakery without going in, lol). If you don't think you will have a scope either way, just go onto the gluten-free diet and see if your body responds positively.

Wish I could tell you more! ((hugs))

0

Share this post


Link to post
Share on other sites
If they are negative what should I do? Should just keep eating normal and take these pills or should I get a second opinion?

If the results are negative... you could have a gluten sensitivity or intolerance, or you could have an intolerance to something else like casein (milk protein), lactose, soy, corn, ect. You could start out by eliminating dairy products and see what happens. If that doesn't work, than I would try gluten.

Persoanlly, I believe that IBS only occurs when the digestive track is agitated by something that the body cannot tolerate. I've been on two IBS meds. One was really bad and didn't work, actually it made me feel worse. And the other one worked for awhile and then stopped working. The last time my GI doc issued me IBS meds, I didn't get them.

0

Share this post


Link to post
Share on other sites
I went to the doctor yesterday, and the doctor laughted when I said that I thought I might have celiac diease.  He said he rarely see celiac and when he does the people are rail thin with bloated stomachs( I'm 5'6 140lbs.)  He said he thought my symptoms were just stress from my job(teacher)  He did go ahead and do the blood tests, but he also said that it was just IBS and he gave me a prescription for Dicyclomine.  My results come back on Friday. If they are negative what should I do?  Should just keep eating normal and take these pills or should I get a second opinion?

<{POST_SNAPBACK}>

Some doctors just do not have a clue! My doc, refered me to see a surgeon who told me that my Iorn levels were low because of my period,( my faratin level was 1.4) and refered me to see a OB doc who sent me back to the surgeon who placated me but after a year of prodding agreed to do the scope and of my gosh if it did not come back positive. Did i mention that he was soooo sure he would find nothing! Do not give up! If you have to find another Doctor, one that will listen and one that will do all the blood work needed and check it, sad to say but not all doc are forth comming. Good luck! ;)

Suzann

0

Share this post


Link to post
Share on other sites
I went to the doctor yesterday, and the doctor laughted when I said that I thought I might have celiac diease.  He said he rarely see celiac and when he does the people are rail thin with bloated stomachs( I'm 5'6 140lbs.)  He said he thought my symptoms were just stress from my job(teacher)  He did go ahead and do the blood tests, but he also said that it was just IBS and he gave me a prescription for Dicyclomine.  My results come back on Friday. If they are negative what should I do?  Should just keep eating normal and take these pills or should I get a second opinion?

<{POST_SNAPBACK}>

There is never anything wrong with a second opinion. Also many show up negative on blood work, I have never come back positive but both kids did. Good luck.

0

Share this post


Link to post
Share on other sites




I went to the doctor yesterday, and the doctor laughted when I said that I thought I might have celiac diease.  He said he rarely see celiac and when he does the people are rail thin with bloated stomachs( I'm 5'6 140lbs.)  He said he thought my symptoms were just stress from my job(teacher)  He did go ahead and do the blood tests, but he also said that it was just IBS and he gave me a prescription for Dicyclomine.  My results come back on Friday. If they are negative what should I do?  Should just keep eating normal and take these pills or should I get a second opinion?

<{POST_SNAPBACK}>

OH for Pete's sake!! Where is his professionalism?!? IBS is just a catch-all dx in my mind. It seems that there are more dx that correspond with pharmaceutical ads than anything else. If the results come back neg, it could be a false neg, but if the results are pos, then you have celiac disease. If they come back neg, you could always try the gluten-free diet on your own. If your symptoms lessen and you start to feel better, that most likely means you have celiac disease and the diet challenge is a legitimate diagnostic tool for celiac disease. (that's how my dr. found out I had celiac disease) Keep us posted.

0

Share this post


Link to post
Share on other sites
I went to the doctor yesterday, and the doctor laughted when I said that I thought I might have celiac diease.  He said he rarely see celiac and when he does the people are rail thin with bloated stomachs.

<{POST_SNAPBACK}>

Your doctor sounds just as bad as mine. You don't have to be rail thin w/ a bloated stomach to have celiac disease...you can be overweight or of normal weight and still have it. I DID fit that "classic" description however and no doctor I ever saw (and I saw lots) ever once mentioned celiac disease to me. They were just clueless. I didn't know I had a problem with gluten but I did know I had a problem with food in general. Whenever I told my doctor that food was making me sick and also causing depression and weight loss I was told to go see the psychiatrist. <_< I changed my diet on my own and my symptoms improved...when I pointed this out (still not aware of the gluten problem) I was told that I wasnt really better since there was nothing wrong to begin with...it was just the placebo effect of me "thinking" I was better. I was laughed at too but it doesnt matter cuz I'm getting better and I'll be the one laughing at them in the end. :D

0

Share this post


Link to post
Share on other sites

I don't have any faith in doctors when it comes to celiac disease. I was not rail thin I was obese and there are others here who are or were overweight. All the doctors wanted to do for me was write lots of prescriptions. Find another doctor and if that doesn't work you can always try the gluten-free diet anyway and if that makes you feel better then that may be all you need to know.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,653
    • Total Posts
      918,475
  • Topics

  • Posts

    • Food tolerance issues post-diagnosis
      Hi everybody, I'm a 20 year old male, diagnosed with Celiac in February via biopsy, after suffering with progressively worsening symptoms for around a year. I had the blood test for Celiac in June 2015, which came back negative. My main issue pre-diagnosis was a feeling of uncomfortable fullness after eating small amounts which became more and more severe to the point where I was hospitalised in January with malnutrition and severe weight loss. I was placed on a NG feeding tube whilst in hospital as I was struggling to eat at all by this point (even a bowl of cereal led to hours of discomfort - the only comparison I can use to describe the feeling was as if there was a brick sitting in my stomach after eating). An endoscopy I had whilst in hospital showed I had Celiac (flattened villi with inflammation) and follow-up gene test was positive. After a couple of months at home on the NG tube, I found I was able to eat small amounts of food again with some symptoms but not of the severity I was experiencing previously. It seemed as if the time spent on the tube in addition to the gluten-free diet had allowed some healing to take place. I was able to eat enough to maintain my weight and came off the tube completely. My symptoms are similar now to when I came off the tube about 6 weeks ago, but I can cope with it for the moment until it heals fully. It has been a very difficult year but I'm pleased to see some progress now. Currently, however, I am having problems tolerating food in the morning. I had been having Tesco gluten-free cornflakes with milk for breakfast and finding that OK, however I think the recipe may have been changed as the texture/taste became more coarse and I suddenly noticed the symptoms were considerably worse after eating them and upset my stomach for the rest of the day. I tried gluten-free rice krispies and milk, again without success. I am not lactose intolerant as milk and cheese don't cause problems for me and milk actually seems to settle my stomach in the morning, as when I tried toast on its own, it was much worse than milk and cereal. Has anyone had similar issues early in the day or got any tips or advice for what to eat/drink with Celiac/intestinal inflammation in the morning? Thank you for your help. 
    • My doctor suspects Coeliac Disease ?
      Several conditions other than Celiac, can elevate ttg readings including autoimmune diseases, a parasitic disease/infection etc. Also for some patients the ttg can be a false positive. Which is why I think its helpful to have the full panel, to make an interpretation.  Your GI/Gut specialistic can run the full panel on the NHS.  Which is what they did for me before the biopsy.   
    • Biopsy confirmed?
      Several conditions can cause increased lymphocytes in the duodenum including Celiac.  The blood test will help confirm /rule out Celiac. If your villi is normal along with negative celiac blood test, then this would make celiac unlikely. Do you know which blood test has been requested now and two years ago?  Its possible that something could have been missed if the full celiac blood panel was not run.  
    • Does the Preferential Expression of HLA-DQ2.5 Genes in Celiac Disease Impact T Cell Response?
      Does the preferential xxpression of HLA-DQ2.5 Genes in celiac disease impact T cell response? View the full article
    • Milling vs buying gluten-free flour
      Hello... 3 weeks ago I was diagnosed with Celiac. Looking at the various flours used to replace traditional flour is a bit overwhelming. I have a Retsel grain mill and I'm considering milling my own gluten-free flour. I have a few questions. First and foremost, would it be cost effective? Obviously, buying flour already processed is more convenient but terribly expensive. Does anyone here have experience with how accessible the ingredients are to do the milling yourself? Rice is readily accessible as well as many varieties of beans. What about milling coconut flour and some of the more exotic flours? Secondly, I'm wondering if milling at home will produce a fine enough product to be comparable to what can be purchased in store. Any experiences or suggestions would be appreciated.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,745
    • Most Online
      1,763

    Newest Member
    komac
    Joined