Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Feeling Frustrsted
0

8 posts in this topic

I went to the doctor yesterday, and the doctor laughted when I said that I thought I might have celiac diease. He said he rarely see celiac and when he does the people are rail thin with bloated stomachs( I'm 5'6 140lbs.) He said he thought my symptoms were just stress from my job(teacher) He did go ahead and do the blood tests, but he also said that it was just IBS and he gave me a prescription for Dicyclomine. My results come back on Friday. If they are negative what should I do? Should just keep eating normal and take these pills or should I get a second opinion?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Ugh, I hate it that he laughed at you! How disrespectful!

FWIW, I'm 5'6", 150 lb, no bloated stomach, no diarrhea, no weight loss (I wish!), no cramps, no gas, zero nada zip!!! And I do have celiac disease! Not everyone is the same, your dr should know that. My family dr was actually really great, I asked to be screened cuz my sis has celiac disease, and she said no problem but I don't think you have it. Neither did I, but I was positive on labs and the biopsy confirmed it. I've been gluten-free for 3 weeks now.

What you do now is really up to you. If it comes back +, do you want a scope? If you do, may as well keep eating normally because you need to be eating gluten for the tests to come back accurately (do what I did, visit all your favourite spots and never walk past a bakery without going in, lol). If you don't think you will have a scope either way, just go onto the gluten-free diet and see if your body responds positively.

Wish I could tell you more! ((hugs))

0

Share this post


Link to post
Share on other sites
If they are negative what should I do? Should just keep eating normal and take these pills or should I get a second opinion?

If the results are negative... you could have a gluten sensitivity or intolerance, or you could have an intolerance to something else like casein (milk protein), lactose, soy, corn, ect. You could start out by eliminating dairy products and see what happens. If that doesn't work, than I would try gluten.

Persoanlly, I believe that IBS only occurs when the digestive track is agitated by something that the body cannot tolerate. I've been on two IBS meds. One was really bad and didn't work, actually it made me feel worse. And the other one worked for awhile and then stopped working. The last time my GI doc issued me IBS meds, I didn't get them.

0

Share this post


Link to post
Share on other sites
I went to the doctor yesterday, and the doctor laughted when I said that I thought I might have celiac diease.  He said he rarely see celiac and when he does the people are rail thin with bloated stomachs( I'm 5'6 140lbs.)  He said he thought my symptoms were just stress from my job(teacher)  He did go ahead and do the blood tests, but he also said that it was just IBS and he gave me a prescription for Dicyclomine.  My results come back on Friday. If they are negative what should I do?  Should just keep eating normal and take these pills or should I get a second opinion?

<{POST_SNAPBACK}>

Some doctors just do not have a clue! My doc, refered me to see a surgeon who told me that my Iorn levels were low because of my period,( my faratin level was 1.4) and refered me to see a OB doc who sent me back to the surgeon who placated me but after a year of prodding agreed to do the scope and of my gosh if it did not come back positive. Did i mention that he was soooo sure he would find nothing! Do not give up! If you have to find another Doctor, one that will listen and one that will do all the blood work needed and check it, sad to say but not all doc are forth comming. Good luck! ;)

Suzann

0

Share this post


Link to post
Share on other sites
I went to the doctor yesterday, and the doctor laughted when I said that I thought I might have celiac diease.  He said he rarely see celiac and when he does the people are rail thin with bloated stomachs( I'm 5'6 140lbs.)  He said he thought my symptoms were just stress from my job(teacher)  He did go ahead and do the blood tests, but he also said that it was just IBS and he gave me a prescription for Dicyclomine.  My results come back on Friday. If they are negative what should I do?  Should just keep eating normal and take these pills or should I get a second opinion?

<{POST_SNAPBACK}>

There is never anything wrong with a second opinion. Also many show up negative on blood work, I have never come back positive but both kids did. Good luck.

0

Share this post


Link to post
Share on other sites




I went to the doctor yesterday, and the doctor laughted when I said that I thought I might have celiac diease.  He said he rarely see celiac and when he does the people are rail thin with bloated stomachs( I'm 5'6 140lbs.)  He said he thought my symptoms were just stress from my job(teacher)  He did go ahead and do the blood tests, but he also said that it was just IBS and he gave me a prescription for Dicyclomine.  My results come back on Friday. If they are negative what should I do?  Should just keep eating normal and take these pills or should I get a second opinion?

<{POST_SNAPBACK}>

OH for Pete's sake!! Where is his professionalism?!? IBS is just a catch-all dx in my mind. It seems that there are more dx that correspond with pharmaceutical ads than anything else. If the results come back neg, it could be a false neg, but if the results are pos, then you have celiac disease. If they come back neg, you could always try the gluten-free diet on your own. If your symptoms lessen and you start to feel better, that most likely means you have celiac disease and the diet challenge is a legitimate diagnostic tool for celiac disease. (that's how my dr. found out I had celiac disease) Keep us posted.

0

Share this post


Link to post
Share on other sites
I went to the doctor yesterday, and the doctor laughted when I said that I thought I might have celiac diease.  He said he rarely see celiac and when he does the people are rail thin with bloated stomachs.

<{POST_SNAPBACK}>

Your doctor sounds just as bad as mine. You don't have to be rail thin w/ a bloated stomach to have celiac disease...you can be overweight or of normal weight and still have it. I DID fit that "classic" description however and no doctor I ever saw (and I saw lots) ever once mentioned celiac disease to me. They were just clueless. I didn't know I had a problem with gluten but I did know I had a problem with food in general. Whenever I told my doctor that food was making me sick and also causing depression and weight loss I was told to go see the psychiatrist. <_< I changed my diet on my own and my symptoms improved...when I pointed this out (still not aware of the gluten problem) I was told that I wasnt really better since there was nothing wrong to begin with...it was just the placebo effect of me "thinking" I was better. I was laughed at too but it doesnt matter cuz I'm getting better and I'll be the one laughing at them in the end. :D

0

Share this post


Link to post
Share on other sites

I don't have any faith in doctors when it comes to celiac disease. I was not rail thin I was obese and there are others here who are or were overweight. All the doctors wanted to do for me was write lots of prescriptions. Find another doctor and if that doesn't work you can always try the gluten-free diet anyway and if that makes you feel better then that may be all you need to know.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,883
    • Total Posts
      919,472
  • Topics

  • Posts

    • I'm actually scared to go to the doctor and could use some advice
      Well, if I were you, I would go see your doctor and talk to him/her about all this.  Tell your doctor about your anxiety. When I finally did, my doctor prescribed a low dose of an anti-anxiety med and it has made a world of difference in my life.   About the whole thing with the B12 and the weird symptoms . Keep taking the B12 in the meantime to see if that helps again. But talk about it anyway.  If you want a celiac test, ask for the panel to be done. Your doctor may or may not want to send you to a GI for that. Remind him your mom is being tested. You do not have to wait for her results.  Work with your doctor if possible and if not, maybe find a doctor you can work with. If all you end up needing is b12, that's a good thing. If you end up needing more help, starting with your doctor and a heart to heart Talk will have you going in the right direction.
    • gluten free, oat free, egg free breakfast ideas needed for 6 year old
      If she misses the hot cereal then try quinoa or amaranth as an alternative to oatmeal
    • I'm actually scared to go to the doctor and could use some advice
      I suspect I am dealing with vitamin deficiency, but I'm afraid that if I go to a specialist they're going to think I have MS. As a person with pretty bad health anxiety, I can't bring myself to make the appointments I know I should make. I presented to my GP about 9 months ago with fatigue and a bizarre tingly feeling in my lower left leg. I was also suffering digestive distress, but I've lived with that off and on my whole life, so that was the least of my worries. My blood tests showed that my B12 level was 280. They didn't turn up any other issues, but then again she did not order any other vitamin level tests, only thyroid and routine bloodwork. She called my B12 level "on the low end of normal" and put me on oral supplements. When we retested 6 weeks later, it was 1100 and she told me to drop it back because that was too high and too much B12 can cause health issues, too. I'm confused by that because I've read that it isn't possible to take too much. I started a new career in a new town, and simultaneously began to feel better. The fatigue went away first, followed by the tingling and other stuff. Still plagued by both extremes of digestive distress. Maybe I should also mention that I was diagnosed with GERD at age 29 and have been on PPIs for 10 years. At that time, nobody ever mentioned investigating my GERD at such a young age, just put me on the pills and said stay on them. A gastroenterologist concurred after a very brief office visit. Well, I can be bad about taking my medicines, so I got off the B12. I figured maybe my earlier issues were stress-related. Now my symptoms are back, but worse. I have tingling and some aching in the leg. I have a sensation in one spot on my upper arms like the skin is burning, but no rash or redness. I have the C extreme of digestive problem, only alleviated by taking lots of magnesium citrate capsules. Sometimes I feel easily chilled, like waves of goosebumps. I am working to get off the PPIs in case they are inhibiting my absorption of vitamins. My mom has had really bad IBS all her life, plus eczema, headaches, etc. I'm back on the B12 for about 5 days but have experienced no relief yet, however I do remember that it took about 2 months to feel better the last time. Getting ready to move, on top of being really scared about these health issues, is making me crazy. I'm only 40 years old!!! Here are my questions: 1. Do I go back to the GP and ask her to order a celiac blood test? I know NOT to go off gluten until I am tested. 2. Do I ask for a referral to a neurologist or gastroenterologist instead? 3. Do  I wait until my mom's gastro appointment next month, when she plans to ask for a celiac blood test? See if hers is positive? 4. Do I keep driving myself insane with the worry that I have a degenerative illness? Can anybody identify with any of this at all? 
    • Eeek confused! Positive biopsy, negative blood test???
      I would hope they would check for the other reasons for the endoscopy results.  A GI might not check for all of those so you may need to check with your regular doctor to start that process.
    • Depression / anxiety issues
      The second link I gave you was to a series of online video courses, you can try those for free to see if its something you think might help. There are also a lot of worksheets you can download, the first link had some I think but there are plenty of others out there if you search online.  Finally I had another look and found this: http://www.getselfhelp.co.uk/step1.htm  Which looks like a decent 7 step program Obviously its not as good as a dedicated session with a CBT counsellor, but the above may give you some tools you can use, especially when your thoughts are spiralling into a destructive circle. You could also search to see if there's any group sessions in Melbourne, that's how the NHS delivers it, they would be cheaper and there's really no need for one on one CBT, because it's more about delivering knowledge of the toolset. I approached it very sceptically but found it of some use, although at the time I was still under the gluten influence so it never tackled the root problem. The game changing aspect of discovering this is that you now know why the psychologist sessions didn't hit the mark, how could they when the root of your depression was your illness? My sessions now are far better and more enjoyable than when I was under a gluten fog.  Aside from all this the other advice holds, eat well, exercise, get sunlight every day and the longer you're on the diet the better you should get.  Oh and at least NI put up a hell of a fight in the Euros, hope you got to see that down under!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,928
    • Most Online
      1,763

    Newest Member
    Timea
    Joined