Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Hey Everyone


shauniscrazy

Recommended Posts

shauniscrazy Explorer

Hi I'm Shaun I recently found out I am allergic to gluten and cow dairy. I would like to talk to people about when they found out so i can learn more. I would prefer to talk to people closer to my age lol but i will listen to anyone. :D

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi Shaun,

I was close to your age at one time, but it has only been a few decades, 3 maybe 4 tops. I stared out having lactose intolerance for 9 years or so, and then found out I had celiac disease. Celiac is not actually an allergy, allergies are IgE immune reactions. Celiac is IgA or IgG or some other immune reactions. IgE reactions are like hayfever type reactions where it affects breathing, skin, eyes etc,. People can take anti-histamines for IgE reactions, but they don't help much for celiac disease reactions. Well, that was pretty boring!

Anyhow, there are some other younger members on the forum, so maybe they will show up with some rad info for you. Do they still say rad? :) And welcome to forum we are glad to have you here!

Link to comment
Share on other sites
shauniscrazy Explorer

Hi Shaun,

I was close to your age at one time, but it has only been a few decades, 3 maybe 4 tops. I stared out having lactose intolerance for 9 years or so, and then found out I had celiac disease. Celiac is not actually an allergy, allergies are IgE immune reactions. Celiac is IgA or IgG or some other immune reactions. IgE reactions are like hayfever type reactions where it affects breathing, skin, eyes etc,. People can take anti-histamines for IgE reactions, but they don't help much for celiac disease reactions. Well, that was pretty boring!

Anyhow, there are some other younger members on the forum, so maybe they will show up with some rad info for you. Do they still say rad? :) And welcome to forum we are glad to have you here!

Thanks for your help and my doctor thinks i might have celiac disease but we dont know yet.

Link to comment
Share on other sites
GFinDC Veteran

Hi Shaun,

Have you had the blood antibody tests and an endoscopy? If the blood antibodies are positive you may not need an endoscopy. Usually it takes a couple weeks to get the antibody results from a lab. It is helpful to get a paper copy of the resutls for yourself also. You might want to review them with another doctor later or even post them on the forum. There are some medical people on the forum who can help interpret them. It's important to keep eating gluten until all the tests are done.

Eating gluten-free is quite a challenge at first. We end up making a lot of our own food and snacks since some times you can't find things when you are out. Although fruit is often a good choice or nuts and they are widely available.

Take care,

Paul

Link to comment
Share on other sites
shauniscrazy Explorer

Hi Shaun,

Have you had the blood antibody tests and an endoscopy? If the blood antibodies are positive you may not need an endoscopy. Usually it takes a couple weeks to get the antibody results from a lab. It is helpful to get a paper copy of the resutls for yourself also. You might want to review them with another doctor later or even post them on the forum. There are some medical people on the forum who can help interpret them. It's important to keep eating gluten until all the tests are done.

Eating gluten-free is quite a challenge at first. We end up making a lot of our own food and snacks since some times you can't find things when you are out. Although fruit is often a good choice or nuts and they are widely available.

Take care,

Paul

I just heard from my doctor today and she said that i tested negative and thanks.

Link to comment
Share on other sites
eatmeat4good Enthusiast

Are you still going to be gluten free?

I am not your age, I'm 49, but I wondered if this means you will be eating gluten or if you will be gluten free due to allergy to it?

Link to comment
Share on other sites
shauniscrazy Explorer

Are you still going to be gluten free?

I am not your age, I'm 49, but I wondered if this means you will be eating gluten or if you will be gluten free due to allergy to it?

i am gluten and dairy free still

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



justlisa Apprentice

Yes...I'm hijacking your thread (I just wanted to support my fellow geriatrics. I've got a good 3 decades on you, too, kiddo ;) )

But, seriously... I'm curious about how you came to suspect gluten/dairy? Symptoms? Any progress yet?

Link to comment
Share on other sites
shauniscrazy Explorer

Yes...I'm hijacking your thread (I just wanted to support my fellow geriatrics. I've got a good 3 decades on you, too, kiddo ;) )

But, seriously... I'm curious about how you came to suspect gluten/dairy? Symptoms? Any progress yet?

Well i go to a doctor every now and then for my anxiety and i mentioned i feel sick all the time and she is a celiac so she thought i was and we did some tests that revealed that i have a bunch of allergies i was unaware of lol

Link to comment
Share on other sites
justlisa Apprentice

Well i go to a doctor every now and then for my anxiety and i mentioned i feel sick all the time and she is a celiac so she thought i was and we did some tests that revealed that i have a bunch of allergies i was unaware of lol

So...how long have you been gluten/dairy free? Any improvement?

What allergies?

Link to comment
Share on other sites
shauniscrazy Explorer

So...how long have you been gluten/dairy free? Any improvement?

What allergies?

My main food allergies are gluten and dairy. I have been mostly free of these for about 2 weeks i think. I have noticed a lot of improvement on how i feel.

Link to comment
Share on other sites
kaitlynrose Rookie

Hi Shaun,

My name is Kaitlyn and I'm 17. I started eating gluten-free when I was 14. I was not officially diagnosed with celiac, but my cousin has it and her gastrointerologist said I most likely have it as well. Either way, eating gluten-free has changed my life for the better.

Link to comment
Share on other sites
shauniscrazy Explorer

Hi Shaun,

My name is Kaitlyn and I'm 17. I started eating gluten-free when I was 14. I was not officially diagnosed with celiac, but my cousin has it and her gastrointerologist said I most likely have it as well. Either way, eating gluten-free has changed my life for the better.

Thank you for the reply kaitlyn. I believe it has changed my life for the better too. Is there any foods or resturants you would recommend?

Link to comment
Share on other sites
kaitlynrose Rookie

Shaun- Yes, PF Changs is my favorite. It's a little pricey, but they have a menu with a great variety of dishes, and the gluten-free entrees are even served on completely different dishes. I have never had a bad experience there (i.e. cross contamination). The nearest one to my house is like an hour away though, so it's just for special occasions. I eat at a lot of mexican restaurants. I just have them prepare my meal with a corn tortilla in the usual flour one's place. Honestly I do not eat out very often, so I don't have many suggestions...

Link to comment
Share on other sites
shauniscrazy Explorer

Shaun- Yes, PF Changs is my favorite. It's a little pricey, but they have a menu with a great variety of dishes, and the gluten-free entrees are even served on completely different dishes. I have never had a bad experience there (i.e. cross contamination). The nearest one to my house is like an hour away though, so it's just for special occasions. I eat at a lot of mexican restaurants. I just have them prepare my meal with a corn tortilla in the usual flour one's place. Honestly I do not eat out very often, so I don't have many suggestions...

Thank you lol. The nearest pf changs is about an hour from here too. So since you dont eat out often what do you make to eat?

Link to comment
Share on other sites
Guest Runningdream

I love pf changs!!

Link to comment
Share on other sites
shauniscrazy Explorer

I love pf changs!!

Ok lol but there arent any near me.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Trying to read my lab results

    2. - Kirbyqueen replied to Kirbyqueen's topic in Dermatitis Herpetiformis
      11

      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

    3. - dixonpete commented on dixonpete's blog entry in Pete Dixon
      1

      I started another couple of jars today

    4. - trents replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Trying to read my lab results

    5. - Bayb posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Trying to read my lab results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,211
    • Most Online (within 30 mins)
      7,748

    DaniellePaxton
    Newest Member
    DaniellePaxton
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
×
×
  • Create New...