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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I Got Gotten
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11 posts in this topic

I've been doing really well over the past few months. I've avoided any accidental glutenings and slowly but surely been feeling a little better. Over the weekend I wasn't feeling particularly great, some sort of bug or another. I was just generally nauseous so I stuck to mashed potatoes most of the weekend. Eventually I felt better enough to move on up to chicken soup and had some chicken rice soup in the freezer so I popped it out and had a bowl yesterday. I knew right away it was a mistake. It was something I had made a few months ago, but I guess I did something then to contaminate it.

Now I'm foggy. I keep getting easily distracted, I even just stop what I'm doing in the middle because I forget what I'm doing. Even if it's a conversation. My head is killing me, I'm gassy but I'm too scared to fart. (Which is admittedly mildly amusing to me. :D ) I feel like my stomach has a porcupine in it, which oddly enough the only thing that helps with that is constantly keeping just a little teeny bit of food in me. So I've been just barely grazing all morning. Which is awesome for the heartburn I'm having. <_< Maybe I just just graze on Tums. Everything hurts. I think my hair hurts. I'm too exhausted to be out of bed and have too much life going on this week to be in bed all day. (Thankfully watching a toddler doesn't require more than sitting on my bum.)

This is my first time since I've truly started feeling better. So now I really truly know what it's like to get hit full in the face with this crap. I've smelled pizza before and thought gee that smells good. I'm not sure I'll ever have that thought again. I feel like death today and I know I don't feel half as bad as some of you guys (gals) do when you get got.

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Bummer - those accidents are hard to avoid completely, but as the reactions become more severe they sure do reinforce the need to stay gluten-free.

You'll still think pizza smells good - but will likely think - how can I replicate it gluten-free instead of wanting to actually eat it.

Hope you feel better quick :)

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I'm so sorry to hear you are sick! I have no advice, but I can offer you a (((HUG))) and my best wishes for a speedy recovery. In the meantime, here is a little song that always cheers me up. There are no giraffes involved, but maybe it'll cheer you up too.

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Awwwwwwwwwwww Adelaide. I'm so sorry you got got. sad.gif

(((HUGS)))

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Thanks guys!

That is a super adorable video Bartfull! I love music about as much as I love giraffes, which is really saying something. B)

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Are you sure it was the chicken soup that glutened you, and not something before you started feeling ill with that bug?

I was glutened for the first time last week, and it started with what I thought was a bug. After a couple of days those buggy symptoms went away and were replaced with more typical gluten stuff, like stomach issues, headache, disconnected feeling, and anxiety. It's taken a few days, but I'm about 75% better now.

At first I thought it was two separate things, but now I'm convinced that the two were related because I'm absolutely sure I ate nothing that could have glutened me while I was ill with the flu-like stuff.

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I'm sure. While it has been a few months, it has always happened swiftly. I've gotten glutened at a pizza restaurant, from not reading ingredients appropriately and from CC in my kitchen. Every time I am in my bathroom in about half an hour or so. I am very aware of how fortunate I am to react so quickly so I can identify the offending item easily. Also, other than I think a handful of Kix and one of what I call my imaginary cookies I think all I ate all weekend was mashed potatoes. And yes, I am beyond 100% certain it wasn't the cookies.

Sometimes people just get sick and it's just being sick. I had no massive explosive D over the weekend so it was certainly not gluten. No way, no how.

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Are you sure it was the chicken soup that glutened you, and not something before you started feeling ill with that bug?

I was glutened for the first time last week, and it started with what I thought was a bug. After a couple of days those buggy symptoms went away and were replaced with more typical gluten stuff, like stomach issues, headache, disconnected feeling, and anxiety. It's taken a few days, but I'm about 75% better now.

At first I thought it was two separate things, but now I'm convinced that the two were related because I'm absolutely sure I ate nothing that could have glutened me while I was ill with the flu-like stuff.

I had a very similar experience. I really thought I had the flu! High fever and all.... then I realized it was a gluten reaction. :(

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Kix is safe?

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Not just Kix... when I was lamenting about putting up with my husband's whining about how there are no kid's cereals for him someone turned me onto Trix! For kids my butt... Trix are for celiacs.

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Not just Kix... when I was lamenting about putting up with my husband's whining about how there are no kid's cereals for him someone turned me onto Trix! For kids my butt... Trix are for celiacs.

Ohhh good one for when I get the need for a sugar fix. :D Yummy!

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    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
    • Weird Reaction
      Hi Richie, It definitely sounds like you got glutened.  Over here in the USA they can't label foods gluten-free if they are made from gluten ingredients, period.  So your barley drink would not be labeled gluten-free here.  A while back I read something about the testing for gluten in foods not being as accurate for detecting barley hordein as it is for wheat gliaden.  So the gluten-free testing (if they do any) that your drink maker does may not be reliable. Celiac disease is an autoimmune condition.  So the immune system starts reacting when it detects gluten and damages the gut lining.  An immune reaction is not like a food poisoning event, where most of the damage is only while the food is actually in your system and then ends.  An immune reaction can continue for weeks to months.  The immune system is really quite serious about protecting our bodies.  And since it is designed to detect and attack micro-organisms it reacts to tiny amounts of gluten. Wheat, barley, and rye are the main gluten grains that affect celiacs.  But some celiacs also react to oat gluten.  
    • Weird Reaction
      Hi Richie,  Glad you are feeling better. I wondered have you been officially diagnosed with coeliac disease? Just wondering as you say you are anaemic, that is one of the symptoms of coeliac disease, along with other general malnutrition. You don't need to eat meat for iron though, you can get it from non-heme foods, like spinach or parsley. Just be careful with the drink with barley, it may be that you only start to have symptoms if you consume a lot of it, but if you have coeliac disease the damage is still been done to your gut regardless of whether you have symptoms or not, which will ultimately lead to malnutrition as well as other things.
    • Weird Reaction
      I think, if all this is caused by glutening, it could be that it takes a while to work its way out of your system. I should explain about what I said about organic broccoli.   I don't have a problem with organic food,  in fact, I buy organic milk and carrots all the time, but I don't want to try organic broccoli in case it is the broccoli that is the problem, not the insecticide.    I meant to ask, are you a coeliac or is it non-coeliac gluten intolerance that you have?   I wonder what sort of support you get in Australia for these conditions once diagnosed?   Here in the UK I think the understanding is that if new gastro symptoms have lasted for more than six weeks it needs to be investigated.   I have found this very helpful advice because I do get odd twinges of pain and sometimes changes in bowel movements (sorry if tmi) but they rarely last more than a couple of weeks.   If they do persist I mention it to my gastroenteroligist and he follows it up.  I recently had a sigmoidoscopy for left sided pain and they found nothing.  Turns out it was to do with lactose intolerance, but I always imagine the worse!    
    • Will my doctor test me? So many symptoms...
      Welcome, @iwillmoveamountain! Of course you are not wrong to pursue getting testing for celiac. My advice is to drop that doctor and find a new one, preferably one who is celiac savvy, and who will listen to you and test you for the disease.  
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