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Testing
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Hello :)

I have been gluten, wheat, and dairy free now since the first part of January 2004. I feel great, have lost weight with excersise, ect, but am wondering something:

I have not had the blood test...and since I have a heck of a cold now, I might be going to the doctor to see if it's upper resperatory. While there, I like to address as many concerns as I can and my doc is always willing to listen.

Should I ask about the celiac test? I have also thought about calling my allergist and talking to him about the test for celiac. I did not test allergic to wheat, but he said that based on my symptoms (I would have diahreea after the first meal of the day, lots of gas, and diahreea was a common event in my life), I should try it. Well, I've tried it and I feel better and so this has prompted me to think about the blood test.

I had an endoscopy, and that biopsy was normal and so was my colonoscopy. So, would it hurt to get the blood test?

-Kel

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I have been gluten, wheat, and dairy free now since the first part of January 2004.

Since you have not been ingesting gluten, your body won't be producing antibodies for the gluten. Therefore your blood tests will come back negative. In order to get the testing, you need to be eating gluten products. Best of luck!!

-Jessica

:rolleyes:

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I found a link to a website I found online for a place called Entrolab that does celiac disease testing amongst other tests that you can do in the privacy of your own home and send off as a stool sample. They poop it properly so it isnt altered or contaminated or spoil so to speak. The test sounds like a promise because you do not have to ingest gluten to get accurate results.

I dont know about you but I donthave the guts or the time to sit in a bathroom all day in pain practically dying just to get a positive result. Ive heard youd have to eat gluten (about 4 slices of bread a day) in order to get the right amount to damage the villi enough for accurate results... I think thats bull. I have a daughter that I have to raise.. I cant sit in a bathroom all dang day!

Here is the link. Im giong to do it as soon as i get the money. Ill let you alll know how it goes.

http://www.enterolab.com/

this second link it directly to ordering the tests...

https://www.enterolab.com/Tests/Orders/

This is the one I am doing: Gluten Sensitivity Stool and Gene Panel Complete

(Plus Free Milk Sensitivity Stool Test) It will cost a pretty penny $349.00, but i need answers!

Good luck!! :D

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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