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Silly Folks On Psoriasis Forums
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Because psoriasis is my most notable symptom I have been to many psoriasis forums. I have told my story and they reject the very idea that gluten-free can help! There are many scolarly articles about the connection from some very reputable doctors, hospitals and other organizations, but they STILL reject the idea. I'll see things like, "I tried a gluten-free diet for three weeks and it didn't make any difference." But we here know that they were probably using their old toaster, double dipping in the peanut butter, not reading labels, etc.

I have even explained about secondary intolerances and how it has taken me over a year to see permanent results. They see that an think, it's too hard. It seems that no matter how bad their psoriasis is, they just refuse to give up bread and other grains.

It's just so frustrating! I KNOW that gluten-free is the answer. I guess you can lead a horse to water but you can't make him THINK.

And it's sad that not only are they suffering the pain, itching, and hideous appearance of psoriasis, but they are doing damage to their bodies as well.

Oh well. I tried...

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Very frustrating. I try to just say the idea and hope that someone might make actually get tested properly for it. It's too frustrating.

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You know the saying about horses and water... you tried, that's all you can do. The whole concept of gluten free must sound pretty bizarre to others when it's been one of the staples of most people's diets their entire lives. Hopefully when more people become aware of just how sick it's making more and more people, it won't be as widely used? I tell people: be careful not to overdue the wheat in your diet, it can come back to haunt you! If they have to hit rock bottom they way we all have, then they'll change :)

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I just had a conversations with my mother in law that is pretty much the same thing. Her entire family is riddled with diseases linked to celiac and she herself has non-hodkins lymphoma which again, linked to celiac. She made a remark about my mango and I said it's one of the few fresh fruits I'm allowed to eat any more so that's why I eat so many of them. She then went on and on about how she could just never do it because it would be SO HARD.... so like, dying of cancer is easier than not eating bread? Some people will just never see reason. I mean no, I don't think we can blame everything on gluten and I doubt it would help everyone, but what is the harm in trying?

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Because psoriasis is my most notable symptom I have been to many psoriasis forums. I have told my story and they reject the very idea that gluten-free can help! There are many scolarly articles about the connection from some very reputable doctors, hospitals and other organizations, but they STILL reject the idea. I'll see things like, "I tried a gluten-free diet for three weeks and it didn't make any difference." But we here know that they were probably using their old toaster, double dipping in the peanut butter, not reading labels, etc.

I have even explained about secondary intolerances and how it has taken me over a year to see permanent results. They see that an think, it's too hard. It seems that no matter how bad their psoriasis is, they just refuse to give up bread and other grains.

It's just so frustrating! I KNOW that gluten-free is the answer. I guess you can lead a horse to water but you can't make him THINK.

And it's sad that not only are they suffering the pain, itching, and hideous appearance of psoriasis, but they are doing damage to their bodies as well.

Oh well. I tried...

Three weeks off gluten is hardly enough to start reversing anything, at best some lucky people might get relief from diarrhea and other acute digestive problems but anything else would take months, even years to heal if the damage is not too great. When I didn't know better I'd tell people to go off wheat for a week or so to see if it would make a difference, well, that might work for a few lucky ones but now that I know about "gluten detox" and have lived it on 2 occasions I know it's completely possible to feel much worse before starting to feel better. Because I've never been diagnosed I'd stay away mainly from wheat for months at a time but would eventually cheat, but the last 2 times the consequences have been more serious, especially the last time. I first stopped wheat, then the other gluten grains back in March but my progress this time has been very very slow.

I surely understand your frustration, I've felt it regarding other important things that I wanted to pass on to others, but many will not listen. These days I don't get frustrated anymore, I plant the seed and leave it up to others to choose what to do, and cold as it may seem I now feel that those that won't listen probably deserve the suffering they're in.

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Perhaps gluten can give some people psoriasis but I don't think that is my case. I do not have celiac. I am not intolerant or allergic to gluten or wheat. But my daughter was for many years. So I did eat a gluten-free diet for well over a year. No affect on my psoriasis whatever. It seems to come and go. And why? I do not know.

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I have psoriasis in my finger nails and being gluten free doesn't help with. It seems to get worse when I am in an AI flare though -so I know it is all connected.

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Gluten, soy, corn, and high salicylate foods have ALL contributed to my psoriasis. I had to ditch them all, and now my psoriasis is GONE. As I said in (in my poorly spelled) original post, SECONDARY intolerances are just as important as gluten. Julie, I would bet that the reason yours would come and go is that you ate something else you were intolerant to on those occasions it came back.

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    • Welcome!   You were smart to think about cross contamination.  Although it is great that there are so many gluten-free options out there, in the beginning it is best to try a whole foods diet, until your son feels a bit better.  The learning curve for the gluten-free diet is steep.  It is better for you to get everything down before letting others feed him.   When I was diagnosed, my hubby had been gluten free for 12 years.  I thought I knew the drill and converted right over to those gluten-free goodies I baked him.  Turned out, like many of us, I had some food inolerances not related to gluten but as a result of gut damage.  So, additives like Xantham gum made me think I was getting glutened, but I was not.  So, again, try to stick to naturally gluten free foods that are less processed for a while.  When you do venture out, I use "find me gluten free" and read the reviews from celiacs (not a person who thinks gluten-free is a way to lose weight! )   Here are some great tips from out Newbie 101 thread:  
    • I have the same problem. Was told it was psoriasis but no treatments worked even injections. I was daignosed celiac in may, and noticed a year ago the palm of my hand would itch intensely then get small blisters. I believe they are both dh. Have been gluten-free since diagnosis but still have issues with both areas. Thankful digestive issues cleared but would love to know how long before they clear up? I hope we both get feed back and best wishes to you!
    • Yes it most certainly could be a false negative, and I would bet you a dozen donuts that it is (gluten free, of course.   )  At the very least you can be sure it is related to gluten.  These gluten rashes take forever to clear up.  I don't know about you, but whenever I start to doubt my gluten intolerance, I just look at my skin, and the old blood stains on my sheets, and I am reassured that it's not all in my head, and I need to avoid gluten as if it were a bucket of battery acid.
    • Hello, My fiance and I are going to Singapore for our honeymoon next year and I was wondering if anyone knew any cafes/restaurants etc that have gluten-free dishes? We previously went two years ago and enjoyed ourselves so much that we definitely wanted to go back our our honeymoon. Catch is I got diagnosed as being gluten intolerant a few months ago, negative for Coeliac though. If I eat gluten I have bad nausea, bloating, diarrhea etc. Not pretty for a honeymoon :-) I am more than happy to eat fruit at breakfast and make do with steamed rice at dinner etc but if anyone has any ideas on anywhere I can safely eat that would be much appreciated. I don't care how much it costs! Also is it possible for me to bring packaged gluten-free food into Singapore from Australia? I am not sure on the rules. Thank you!!
    • Went in and talked to the manager of our pm and asked about the gluten free pizza, and he told me he can't guarantee its 100% gluten free because of the flour in the air from the other crusts being made.  I value the honesty.   The other employee also mentioned changing gloves.   I was thinking wow great, until I walked out and got to thinking about cross contamination from everyone grabbing the toppings out of the same bins and spreading the sauce with the same utensils.    My son was just diagnosed this week so we are new to the whole lifestyle.   So any help or info is greatly appreciated.    Thanks  
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