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Silly Folks On Psoriasis Forums
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Because psoriasis is my most notable symptom I have been to many psoriasis forums. I have told my story and they reject the very idea that gluten-free can help! There are many scolarly articles about the connection from some very reputable doctors, hospitals and other organizations, but they STILL reject the idea. I'll see things like, "I tried a gluten-free diet for three weeks and it didn't make any difference." But we here know that they were probably using their old toaster, double dipping in the peanut butter, not reading labels, etc.

I have even explained about secondary intolerances and how it has taken me over a year to see permanent results. They see that an think, it's too hard. It seems that no matter how bad their psoriasis is, they just refuse to give up bread and other grains.

It's just so frustrating! I KNOW that gluten-free is the answer. I guess you can lead a horse to water but you can't make him THINK.

And it's sad that not only are they suffering the pain, itching, and hideous appearance of psoriasis, but they are doing damage to their bodies as well.

Oh well. I tried...

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Very frustrating. I try to just say the idea and hope that someone might make actually get tested properly for it. It's too frustrating.

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You know the saying about horses and water... you tried, that's all you can do. The whole concept of gluten free must sound pretty bizarre to others when it's been one of the staples of most people's diets their entire lives. Hopefully when more people become aware of just how sick it's making more and more people, it won't be as widely used? I tell people: be careful not to overdue the wheat in your diet, it can come back to haunt you! If they have to hit rock bottom they way we all have, then they'll change :)

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I just had a conversations with my mother in law that is pretty much the same thing. Her entire family is riddled with diseases linked to celiac and she herself has non-hodkins lymphoma which again, linked to celiac. She made a remark about my mango and I said it's one of the few fresh fruits I'm allowed to eat any more so that's why I eat so many of them. She then went on and on about how she could just never do it because it would be SO HARD.... so like, dying of cancer is easier than not eating bread? Some people will just never see reason. I mean no, I don't think we can blame everything on gluten and I doubt it would help everyone, but what is the harm in trying?

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Because psoriasis is my most notable symptom I have been to many psoriasis forums. I have told my story and they reject the very idea that gluten-free can help! There are many scolarly articles about the connection from some very reputable doctors, hospitals and other organizations, but they STILL reject the idea. I'll see things like, "I tried a gluten-free diet for three weeks and it didn't make any difference." But we here know that they were probably using their old toaster, double dipping in the peanut butter, not reading labels, etc.

I have even explained about secondary intolerances and how it has taken me over a year to see permanent results. They see that an think, it's too hard. It seems that no matter how bad their psoriasis is, they just refuse to give up bread and other grains.

It's just so frustrating! I KNOW that gluten-free is the answer. I guess you can lead a horse to water but you can't make him THINK.

And it's sad that not only are they suffering the pain, itching, and hideous appearance of psoriasis, but they are doing damage to their bodies as well.

Oh well. I tried...

Three weeks off gluten is hardly enough to start reversing anything, at best some lucky people might get relief from diarrhea and other acute digestive problems but anything else would take months, even years to heal if the damage is not too great. When I didn't know better I'd tell people to go off wheat for a week or so to see if it would make a difference, well, that might work for a few lucky ones but now that I know about "gluten detox" and have lived it on 2 occasions I know it's completely possible to feel much worse before starting to feel better. Because I've never been diagnosed I'd stay away mainly from wheat for months at a time but would eventually cheat, but the last 2 times the consequences have been more serious, especially the last time. I first stopped wheat, then the other gluten grains back in March but my progress this time has been very very slow.

I surely understand your frustration, I've felt it regarding other important things that I wanted to pass on to others, but many will not listen. These days I don't get frustrated anymore, I plant the seed and leave it up to others to choose what to do, and cold as it may seem I now feel that those that won't listen probably deserve the suffering they're in.

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Perhaps gluten can give some people psoriasis but I don't think that is my case. I do not have celiac. I am not intolerant or allergic to gluten or wheat. But my daughter was for many years. So I did eat a gluten-free diet for well over a year. No affect on my psoriasis whatever. It seems to come and go. And why? I do not know.

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I have psoriasis in my finger nails and being gluten free doesn't help with. It seems to get worse when I am in an AI flare though -so I know it is all connected.

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Gluten, soy, corn, and high salicylate foods have ALL contributed to my psoriasis. I had to ditch them all, and now my psoriasis is GONE. As I said in (in my poorly spelled) original post, SECONDARY intolerances are just as important as gluten. Julie, I would bet that the reason yours would come and go is that you ate something else you were intolerant to on those occasions it came back.

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    • Hi everyone, I've been reading this forum sporadically and have some questions of my own. I'm in my 40s and was diagnosed with celiac last December by biopsy and blood work after months of tests by my primary and then a gastro. My husband, around the same age as me, was dx'd with stage 4 cancer a month later, so admittedly it's took me longer than I'd have liked to learn about celiac. Now I feel pretty on top of my diet. I mostly make my own food - proteins and veggies, with some certified gluten-free snacks in the mix - and am pretty strict about what I will/won't eat at friend's houses or in restaurants (I prefer to go to dedicated gluten-free kitchens whenever possible). I'm doing okay on the diet, but still getting glutened every so often, usually when I let me guard down outside the home. I also periodically see my primary and a naturopath (who happens to have celiac!), but still, I have many questions if anyone would care to answer:

      -FATIGUE. I'm still so tired, fatigued so much of the time. My doctors blame this on the stress of my husband's diagnosis and my periodic trouble sleeping. But even during weeks where I'm sleeping enough (8-10 hrs a day), eating right, exercising as I can, trying to keep stress at bay, I'm still so bleeping tired. Maybe not when I wake up, but by late afternoon. Often my legs even feel weak/wooden. Has anyone else experienced greater fatigue early on after being diagnosed? This will pass, yes? I know I could cut out the sweets and that could help, but also, being a caregiver is hard and sometimes it's nice to eat your feelings between therapy sessions.  

      -SYMPTOMS CAUSED BY FATIGUE? Sometimes I'll have other "feels like I've been glutened" symptoms if I haven't gotten enough sleep, though I'm trying so hard to sleep at least 8 hours a night these days. Hasn't happened in a while thankfully, but there was a point this summer where my insomnia was bad and my arms were achy and I had some crazy flank/back pain I'd never experienced before. For weeks. Doctor ordered me to sleep sleep sleep, taking Benedryl if needed. I did, and the symptoms went away, but weird, yes? Has this happened to you? I ask because I want to make sure I'm getting all strange pains tested to the full extent if there's a chance it's something other than celiac. I do sometimes still feel that strange side stitch after a CC incident.

      -SKIN PROBLEMS. I have had a smidge of eczema since I was a teen and it - and the dermatitis herpetiformis I've acquired with my dx - are out of control right now. I recognize the connection with stress, but also, has anyone found any great natural remedies for DH to stop the itching? I've tried so many useless ointments and medicated creams, a number of them given to my by a dermo months ago. I see my naturopath this week, but thought I'd ask here too.

      -MOSTLY gluten-free KITCHEN GOOD ENOUGH? My husband is supportive of my diet and mostly eats gluten free meals with me, but we still keep a gluten-y toaster for him and the gluten-y dog food in a corner of the kitchen and he still makes the occasional meal with gluten for himself on his own cookware (ravioli, pizza, mac n cheese, etc). Or sometimes I make eggs/toast and the like for him when he's too sick to move. Otherwise, we're militant about how we cook, which cookware we use, etc. He even has a kitchen nook off our den where he makes sandwiches. But sometimes I wonder if having two separate sponges in our shared-ish main kitchen is enough and I should just banish all gluten whatsoever from the kitchen. I can't be the only one with a mixed kitchen, right? How do you do it if you have a mixed-eating family?

      Thank you so much!  
    • Hang in there!  Count your blessings.  Do something you like to do and relax. I know that is hard to do as a young mother (as I sit here in the kitchen sipping coffee quietly as my teenager is sleeping in after a late football game last night where she marched in 90 degree plus weather in full uniform).   But seriously, take a few minutes to relax!  
    • Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine.  How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information. 
    • Sorry, but this product (supplement) is not even certified gluten free.   Seems odd that a product geared to Non-Celiac Gluten Intolerance would not take the extra step of getting certified.   I guess I am a Nervous Nellie, especially after the reports that several probiotics were contaminated with gluten.   https://celiac.org/blog/2015/06/probiotics-your-friend-or-foe/
    • Thank you for posting that. I've had a lot of that bloodwork done and everything is normal. At the peak of this belly bug I had blood work done and my white count was fine. I think it's just my health anxiety scaring me into thinking this is something scarier (to me) than celiac. Maybe the anxiety will subside once I go gluten-free. The anxiety is brutal.
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