Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Repost: Bloodwork After Being Gluten Free
0

12 posts in this topic

My last post got a little beyond what I needed...basically I have been gluten free for a month and am now wanting to get a blood test. My doctor gave me the paperwork and told me to get the test in two to three weeks. I have mostly easy to live with symptoms... Dizziness, fatigue, constipation, bloating, gas, loose stools... My sister has celiac which is why I suspect this is where my symptoms come from. I am on a fairly high gluten diet, much more than just four slices of bread. Definately felt better gluten free, but I can manage a few weeks eating this way... I just don't k ow of my eating a lot of gluten makes a difference in two to three weeks being long enough or not.

0

Share this post


Link to post
Share on other sites


Ads by Google:

It's long enough for a lot of celiac patients. :)

http://www.celiac.com/articles/22973/1/Histological-Serological-and-Symptomatic-Responses-to-Gluten-Challenge-in-Adults-with-Celiac-Disease/Page1.html

"The team concludes by noting that a 14-day gluten challenge at or above 3 g of gluten/day triggers cellular, tissue, and blood changes in most adults with celiac disease."

You always have the option of continuing to eat gluten after the test and then if it comes back negative continuing however long and scheduling another test.

0

Share this post


Link to post
Share on other sites

I'm just starting to doubt I even have celiacs because my symptoms are not as bad as other people on this forum, for most people here the idea of eating gluten is terrifying. If my results come back negative I'll be even more in dpubt

0

Share this post


Link to post
Share on other sites

Maybe you don't have celiac but the people who stay active on forums are understandably those most affected in the first place, from what I've seen, so you shouldn't place much significance on not being as bad off as many members here.

Almost 50,000 ppl have joined this forum and the majority aren't currently active. I like to think that most of them are out there living healthy lives w/out gluten and just don't need further celiac info or support or whatever originally made them register an acct.

Good Luck w/ the test Peppa :)

4

Share this post


Link to post
Share on other sites

Don't discount the possibility just because you don't react severely to gluten. As a 30+ year un diagnosed Celiac, I had what would be considered mild reactions. I ate gluten regularly, and had some digestive issues, but nothing that could be directly attributed to what I ate. My biggest complaint was chronic fatigue. After being gluten free for several monnths, my reactions changed however, and became severe and immediate. When you eat gluten all the time, your immune system becomes so wore down it often can't muster more than a weak response. Once you are gluten free and it recovers, it will let you know loud and clear if gluten is the problem. That is the case for most of us anyway. There are a few "silent celiacs" who never get a noticeable reaction, but that is the minority.

4

Share this post


Link to post
Share on other sites




I was fully functional on gluten just some annoying symptoms but never enough to call in sick. I did a 2 week challenge prior to my blood test and it was enough to get positive results.

1

Share this post


Link to post
Share on other sites

Hi Peppa-minto,

Symptoms don't usually start out at the worst stage, just like cars don't go from 0 to 100 in zero seconds. But ongoing inflammation and damage does take a toll and most likely your symptoms would worsen after awhile. How soon that would happens is anybody's guess though. Some people develop additional auto-immune diseases and go to the doctor for that and then they get diagnosed for celiac.

Whether or not your doctor will diagnose you after a week challenge is for him/her to answer, we can't tell you what the doctor will do.

1

Share this post


Link to post
Share on other sites

I was fully functional on gluten just some annoying symptoms but never enough to call in sick. I did a 2 week challenge prior to my blood test and it was enough to get positive results.

Ahh Christine, glad you posted.

Do I remember correctly that the 2 week challenge was after 7 weeks gluten-free?

0

Share this post


Link to post
Share on other sites

I just realized I never checked to see if my elmiron prescription was gluten free... Did a google search and got mixed results.... Maybe I was never gluten free after all?

0

Share this post


Link to post
Share on other sites

I'm just starting to doubt I even have celiacs because my symptoms are not as bad as other people on this forum, for most people here the idea of eating gluten is terrifying. If my results come back negative I'll be even more in dpubt

My gastro symptoms were mild - it's the long term neuro things that got to me.

0

Share this post


Link to post
Share on other sites

Well my symptoms are worsening a little again. I don't know if there is gluten in the elmiron capsules... But if there is, maybe the fact that I didnt stop taking them when I thought I was gluten free will help the accuracy of my bloodwork. Of course, idk what I will do when I go gluten free again. Maybe empty the capsules into water and take them that way?

0

Share this post


Link to post
Share on other sites

Well my symptoms are worsening a little again. I don't know if there is gluten in the elmiron capsules... But if there is, maybe the fact that I didnt stop taking them when I thought I was gluten free will help the accuracy of my bloodwork. Of course, idk what I will do when I go gluten free again. Maybe empty the capsules into water and take them that way?

I don't know about the elmiron capsules. It would be better to get some that are known to be gluten-free. Regarding your symptoms not being too severe. Most people in the USA who have celiac don't know that they have it. There are many reasons for that but some are:

Most people with celiac do not have digestive symptoms.

Most people with celiac are not tested by their doctors.

etc

Judging your possible celiac by your digestive symptoms is not a good idea. If you have digestive symptoms and they improve on the gluten-free diet, that is a reasonable thing to assume you have a gluten reaction.

But since most people with celiac don't have digestive symptoms, assuming your GI symptoms are mild and that means you don't have celiac is incorrect. Celiac is not an instant change for most people. The damage can build up over years and get worse and worse. And it may be symptoms in your joints, or skin, or liver, or brain to first be noticed, not your your GI tract. That's one of the reasons it is hard to diagnose celiac disease, the symptoms aren't always in the gut. So doctors don't even think to test people for it. Unless you come in to the doctor with a "classic" GI case, they don't see the connection.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Topics

  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined