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Going Back To The Doctor
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Thanks to everyone who replied to the "How to trust doctors" question. The different viewpoints help put a lot of things in perspective.

I made a doctors appointment for next Thursday. Basically, when I get glutened I have anxiety that really disrupts my life and take Xanax to overcome the really bad times. This doctor last prescribed that drug for me over a year and a half ago, so she refused to give me a refill until I go back to see her again.

We've never discussed the possibility of celiacs before, but I want to go into that appointment armed to the teeth with information that she will actually listen to. Other than my own observations (feeling better without gluten, getting sick with CC), what else can I take with me? What are the best articles/resources to print out and take?

Last time I saw her she was convinced that my anxiety was the cause of all of my stomach problems, because I told her that I feel the anxiety coming from my mid-section, and not my brain. She didn't have a reason for the anxiety though, nor did she bother to follow up on anything.

Cavernio mentioned crying after a doctors appointment, and I get exactly the same way. I feel so intimidated when I'm in the exam room, that my mind turns to mush and I can't remember any of the things I intended to talk about. I usually cry after appointments, because I was just so desperate for answers that never came. This time I want to be prepared and have physical documents with me so I don't forget anything.

Thanks for any help you can give. This forum is SO helpful and reassuring.

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Write down all of your questions ahead of the appointment. If you get emotional, hand them to the doc. Can you bring someone with you? They could take notes and ask the questions if you get too upset.

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At recent celiac conferences, speakers have emphasized that celiac disease may be classified as a neurological disease and not just a disease of the gut. You might use a keyword search on celiac and neurological symptoms to come up with some recent medical articles to show your doctor. Anxiety is definitely a symptom of celiac disease, as are depression, migraines, seizures, etc. Many doctors are unaware of the most recent studies and literature on how celiac can be the cause of neurological conditions.

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Thanks. I'm definitely going to write some things down, and also ask my husband to give me his perspective of how different I am off gluten.

I'll google around for some of those articles. I had migraines for years, and they were getting more frequent all the time. Since I stopped eating gluten they went away within THREE DAYS! That was my first clue that this was the problem. Also, my first symptom of being CC'd was a migraine - the bathroom issues came later.

EDIT: Doctor called in a prescription for me anyway, because I'm planning to see her next week. That's a relief!

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All went fine with the doctor. She ordered blood testing (which I talked about in another thread), and she seemed legitimately interested in hearing about my gluten free journey, and was happy that I felt better.

They also have a neat new system at her office where you can logon to a website and see information from past medical appointments and blood work. I'd never seen the actual results of blood work before, but always had a call from the nurse who said everything looked okay without going into detail. Well, I noticed that some of my levels were low (only just below the normal range) on some of tests that were done a few years ago.

For example, my A/G ratio was low. So I googled A/G ratio to find out what that meant, and came across this from the first result:

Low total protein levels can suggest a liver disorder, a kidney disorder, or a disorder in which protein is not digested or absorbed properly. Low levels may be seen in severe malnutrition and with conditions that cause malabsorption, such as Celiac disease or inflammatory bowel disease (IBD).

It was right there in front of my face the whole time. Sigh...

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All went fine with the doctor. She ordered blood testing (which I talked about in another thread), and she seemed legitimately interested in hearing about my gluten free journey, and was happy that I felt better.

They also have a neat new system at her office where you can logon to a website and see information from past medical appointments and blood work. I'd never seen the actual results of blood work before, but always had a call from the nurse who said everything looked okay without going into detail. Well, I noticed that some of my levels were low (only just below the normal range) on some of tests that were done a few years ago.

For example, my A/G ratio was low. So I googled A/G ratio to find out what that meant, and came across this from the first result:

Low total protein levels can suggest a liver disorder, a kidney disorder, or a disorder in which protein is not digested or absorbed properly. Low levels may be seen in severe malnutrition and with conditions that cause malabsorption, such as Celiac disease or inflammatory bowel disease (IBD).

It was right there in front of my face the whole time. Sigh...

do not take the blame! you are not the medical prof. here she is. She should have noticed! Please gently point this out to her, it may benefit her next patient.

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do not take the blame! you are not the medical prof. here she is. She should have noticed! Please gently point this out to her, it may benefit her next patient.

I'll bring it up with her at my next appointment. I remember at the time she just told me to eat more protein and less carbs - which was along the right lines. I just don't think the levels were low enough to raise any alarm.

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Just remember that if the blood tests being ordered include a celiac panel, that you need to be consuming glutton for some period of time for the blood test (or an endoscopy) to be valid.

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    • pablito, here is the full serum (blood) panel. Make sure your doc runs ALL of the tests on it, not just 1 or 2. Insist!!!!! YOU are in charge. Remember that. Some people test negative on the most common 1 or 2 tests they run so it's always better to have the full panel run. Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG Remember that celiac disease is a genetically inherited disease so it's important for you to find out if you have it and if so, then your kids & all first degree relatives (siblings, parents) need to be tested every 2 years in the absence of symptoms but right away if symptoms present. Do not go gluten free after the blood work as if you get positive blood work, you will need an endoscopy which you'll need to continue eating gluten for. The pimple things may or may not be the celiac rash as there are many skin problems associated with celiacs.
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    • Thank you very much for the reply and advice I assume doctors didn't know or check into this disease too much back in the early 80's or my family doctor would have easily seen these symptoms and discussed this with me then. If I do have this disease it would explain a lot about my health and overall physical discomfort all my life. Pretty sad if it is the case and it could have been prevented but thankful I know about it now. I have made an apt with my doctor so shouldn't be long before I know for sure. Thanks again for your help
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