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Interstitial Cystitis And Elmiron


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5 replies to this topic

#1 Peppa_minto

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Posted 17 August 2012 - 08:35 PM

Okay so I recently realized I never actually checked to make sure that elmiron was gluten free (I have IC). I've seen some conflicting posts on the matter. Some say the medication inside the capsule is gluten-free but the capsule itself is not. Does anyone know?
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#2 archaeo in FL

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Posted 25 September 2012 - 04:03 AM

Peppa_minto, I don't know. I do remember having GI issues when I took it, but I think they warn about that even for "normal" folks. I didn't know I had Celiac then, so I wasn't researching my meds. Elmiron was not good for me, though - I had the side effects. I also am not sure whether I have IC, so I didn't appreciate taking it! (It didn't help me, but since I may not have IC that might be why! I do hope it helps you!)

I know I read on an IC board about some people putting the pill's contents into water and drinking it. I'd talk to your pharmacist, they should be able to help you.
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#3 Judyin Philly

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Posted 02 December 2012 - 10:39 AM

Long time member needs some help.
Since this was a old post I hope some new posts on how this med worked for them.
The diet they handed me was so limiting and all foods I was eating SO need to find replacerments.
Have had 3 bouts of C-DIFF, a trip to hospital over Thanksgiving and just starting anti-depressent Pristiq so who know what is causing the cramping and mucus D.
any help so appreciated as just too tired and weak to search
Thanks in advance Judy
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Judy in Southern CA

#4 Judyin Philly

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Posted 09 December 2012 - 09:54 AM


Thanks for the input
infectious disease specialist said that that drug caused diarrhea and a reocurance of c diff
Of course urologist just denied it
So now I'm struggling with the pain of both I C and C-Diff.
Any ideas welcome done waiting for
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Judy in Southern CA

#5 sunsetsunrise

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Posted 09 December 2012 - 11:35 AM

Long time member needs some help.
Since this was a old post I hope some new posts on how this med worked for them.
The diet they handed me was so limiting and all foods I was eating SO need to find replacerments.
Have had 3 bouts of C-DIFF, a trip to hospital over Thanksgiving and just starting anti-depressent Pristiq so who know what is causing the cramping and mucus D.
any help so appreciated as just too tired and weak to search
Thanks in advance Judy


So sorry to hear you are not feeling well. I do not have IC, but regarding the C diff and your diet restrictions--I've had to restrict some foods in my diet in addition to gluten containing foods due to (my interpretation) inflammatory reaction. I've had low WBC counts occasionally which I believe is adding to more susceptibility to infection. I have found The New Yorker, October 22, 2012 article, Germs Are Us, very interesting and helpful (there is reference to C. diff infection, and basically that we are eroding our gut flora and probiotics help maintain it). I have found that the diet restrictions (in addition to gluten) very narrow, but the increased health really negates any difficulty. I truly hope you feel better and wish you a very happy holiday season.

Edited by sunsetsunrise, 09 December 2012 - 11:40 AM.

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#6 Judyin Philly

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Posted 14 December 2012 - 06:05 PM

Thanks for your reply and the time it took to do it
Learning all I can about this drug

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Judy in Southern CA


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