Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac Teens :d
0

7 posts in this topic

I am new and would love tips. I would like to here what other people did when they first found out too.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I felt desperate. I was sick for a couple of weeks when I put the pieces together and went to a doctor, and my diet was only liquids, not to mention I was rail thin. How was I supposed to reach a healthy weight again, if I am not supposed to eat anything with wheat? My diet was basically cookies, bread and juice, back then.

So I sat down and started to list foods I liked and could eat. Then I went on trying new ones when I got better, and my food list has expanded greatly ever since. Processed foods around where I live hardly are gluten free, so I had to look before leap.

And that's about it. Thinking about what you can eat safely for the time being until well enough to try out other things seems to be the reasonable thing to do.

0

Share this post


Link to post
Share on other sites

I felt desperate. I was sick for a couple of weeks when I put the pieces together and went to a doctor, and my diet was only liquids, not to mention I was rail thin. How was I supposed to reach a healthy weight again, if I am not supposed to eat anything with wheat? My diet was basically cookies, bread and juice, back then.

So I sat down and started to list foods I liked and could eat. Then I went on trying new ones when I got better, and my food list has expanded greatly ever since. Processed foods around where I live hardly are gluten free, so I had to look before leap.

And that's about it. Thinking about what you can eat safely for the time being until well enough to try out other things seems to be the reasonable thing to do.

Thanks and i have been trying new foods. I have also found new ones to replace what i cant eat anymore. I cant really get anything at restaurants anymore :P. Sandwiches on gluten free bread is about the only thing i have been eating now though and that is getting old quick lol. What would you recommend?

0

Share this post


Link to post
Share on other sites

I completely feel you. This weekend, I had to be rushed to the ER cause I had an anaphylactic reaction to wheat and milk. Now I can't eat wheat (gluten) or milk (cheese, butter, ice cream, yogurt, rtc). It's hard but I HAVE to stick to it. The next time i accidentally consume it, I could die.

I've been scared to eat now too, after all had happened. But like the other user said, you just need to sit down and write what you CAN eat. I'm making cheese less Mexican pizza tonight (refried beans, salsa , corn) with a dairy free wheat free crust I found at whole foods. You can manage. Here are some ideas for you:

Chicken/fish/meat and veggie

Rice and meat

Tacos

Corn tortillas with stuff inside

What did you eat before you found out you had celiac??? You can pretty much eat the same things. Now you just have to substitue pasta and bread for Gluten free pasta and bread

0

Share this post


Link to post
Share on other sites

I completely feel you. This weekend, I had to be rushed to the ER cause I had an anaphylactic reaction to wheat and milk. Now I can't eat wheat (gluten) or milk (cheese, butter, ice cream, yogurt, rtc). It's hard but I HAVE to stick to it. The next time i accidentally consume it, I could die.

I've been scared to eat now too, after all had happened. But like the other user said, you just need to sit down and write what you CAN eat. I'm making cheese less Mexican pizza tonight (refried beans, salsa , corn) with a dairy free wheat free crust I found at whole foods. You can manage. Here are some ideas for you:

Chicken/fish/meat and veggie

Rice and meat

Tacos

Corn tortillas with stuff inside

What did you eat before you found out you had celiac??? You can pretty much eat the same things. Now you just have to substitue pasta and bread for Gluten free pasta and bread

Thanks for your reply and im sorry that happened to you. I have never had any really bad reactions, i just felt sick and really tired all the time. But i cant have wheat or dairy either now. I have found substitutes for most things like they have dairy free cheese which would go great with your pizza lol and i have been drinking rice milk instead.

0

Share this post


Link to post
Share on other sites




That seems hard. Have you gone to whole foods? They have tons of gluten free and dairy free stuff

0

Share this post


Link to post
Share on other sites

That seems hard. Have you gone to whole foods? They have tons of gluten free and dairy free stuff

I want to go to one but the closest is more than an hour away i believe. But ingles has a bunch of gluten free and dairy free. There is also an Earth Fare near here.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Topics

  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined