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Celiac Teens :d
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7 posts in this topic

I am new and would love tips. I would like to here what other people did when they first found out too.

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I felt desperate. I was sick for a couple of weeks when I put the pieces together and went to a doctor, and my diet was only liquids, not to mention I was rail thin. How was I supposed to reach a healthy weight again, if I am not supposed to eat anything with wheat? My diet was basically cookies, bread and juice, back then.

So I sat down and started to list foods I liked and could eat. Then I went on trying new ones when I got better, and my food list has expanded greatly ever since. Processed foods around where I live hardly are gluten free, so I had to look before leap.

And that's about it. Thinking about what you can eat safely for the time being until well enough to try out other things seems to be the reasonable thing to do.

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I felt desperate. I was sick for a couple of weeks when I put the pieces together and went to a doctor, and my diet was only liquids, not to mention I was rail thin. How was I supposed to reach a healthy weight again, if I am not supposed to eat anything with wheat? My diet was basically cookies, bread and juice, back then.

So I sat down and started to list foods I liked and could eat. Then I went on trying new ones when I got better, and my food list has expanded greatly ever since. Processed foods around where I live hardly are gluten free, so I had to look before leap.

And that's about it. Thinking about what you can eat safely for the time being until well enough to try out other things seems to be the reasonable thing to do.

Thanks and i have been trying new foods. I have also found new ones to replace what i cant eat anymore. I cant really get anything at restaurants anymore :P. Sandwiches on gluten free bread is about the only thing i have been eating now though and that is getting old quick lol. What would you recommend?

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I completely feel you. This weekend, I had to be rushed to the ER cause I had an anaphylactic reaction to wheat and milk. Now I can't eat wheat (gluten) or milk (cheese, butter, ice cream, yogurt, rtc). It's hard but I HAVE to stick to it. The next time i accidentally consume it, I could die.

I've been scared to eat now too, after all had happened. But like the other user said, you just need to sit down and write what you CAN eat. I'm making cheese less Mexican pizza tonight (refried beans, salsa , corn) with a dairy free wheat free crust I found at whole foods. You can manage. Here are some ideas for you:

Chicken/fish/meat and veggie

Rice and meat

Tacos

Corn tortillas with stuff inside

What did you eat before you found out you had celiac??? You can pretty much eat the same things. Now you just have to substitue pasta and bread for Gluten free pasta and bread

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I completely feel you. This weekend, I had to be rushed to the ER cause I had an anaphylactic reaction to wheat and milk. Now I can't eat wheat (gluten) or milk (cheese, butter, ice cream, yogurt, rtc). It's hard but I HAVE to stick to it. The next time i accidentally consume it, I could die.

I've been scared to eat now too, after all had happened. But like the other user said, you just need to sit down and write what you CAN eat. I'm making cheese less Mexican pizza tonight (refried beans, salsa , corn) with a dairy free wheat free crust I found at whole foods. You can manage. Here are some ideas for you:

Chicken/fish/meat and veggie

Rice and meat

Tacos

Corn tortillas with stuff inside

What did you eat before you found out you had celiac??? You can pretty much eat the same things. Now you just have to substitue pasta and bread for Gluten free pasta and bread

Thanks for your reply and im sorry that happened to you. I have never had any really bad reactions, i just felt sick and really tired all the time. But i cant have wheat or dairy either now. I have found substitutes for most things like they have dairy free cheese which would go great with your pizza lol and i have been drinking rice milk instead.

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That seems hard. Have you gone to whole foods? They have tons of gluten free and dairy free stuff

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That seems hard. Have you gone to whole foods? They have tons of gluten free and dairy free stuff

I want to go to one but the closest is more than an hour away i believe. But ingles has a bunch of gluten free and dairy free. There is also an Earth Fare near here.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
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      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
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