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Severe Chronic Constipation


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#1 FruitEnthusiast

 
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Posted 18 August 2012 - 08:37 PM

I've seen some really brave posts on here recently, so I am going to talk about my worst symptom. Severe Chronic Constipation. More people seem to have D on this site, and I never do, so I've been embarrassed to bring up my problem. I've been having severe constipation for three years, trying to figure out why. Then I found out about my gluten intolerance, and started eating gluten free. I start to have normal bm's then get "glutened" again when I try a new food because of leaky gut, and my body has to start over and hasn't really had time to heal enough to see good results long term, even though I've technically been gluten free almost five months.

I occasionally I have a bm on my own, but mostly I am dependent on plain water enemas and occasional colonics. Please no comments from people concerned about that. It's not dangerous or habit forming like docs will tell you. It's perfectly fine to do as long as I need to. I'm also not looking for constipation remedies. I've tried everything that helps most people. Walking, more water, fiber, medications, you name it, I've tried it. It doesn't work for me. I'm not careful about always eating organic though because I can't believe that could be enough to cause this.I take probiotics. I eat nothing other than fresh fruit, raw vegetables, beans, nuts, and water. That's all I can eat with having a horrible gluten like reaction. I use evap cane juice in my smoothies and salad dressing, sea salt, pepper, olive oil. Right now I'm drinking Kangen water to see if that helps.

What I would like to know is has anyone else experienced this symptom like I have from an intolerance to gluten or leaky gut? Did it get better? Can anyone relate? I'd like to know I'm not alone, and it would be encouraging to hear any comments about anyone who's recovered from this. Between the constipation and gluten symptoms, I'm sick so much, I have no life to speak of. I'm happy if I can make it to work.
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Sara  :)   "This life is a test. It is only a test. If it had been an actual life, you would

                             have received further instructions on where to go and what to do"

 

"If you're going through hell, keep going" :) Winston Churchill
************************************
Histamine Intolerant  Apr 2014

N C Gluten Intolerant dx Feb 2012  Also Intolerant to Rice, Eggs, Nightshades.
Gluten-Free/ Grain-free/ only whole foods prepared at home since  March 2012
Dairy, Soy, Chocolate free since Jan 2012   Sensitive to Corn and Mold since 1995
 


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#2 GottaSki

 
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Posted 18 August 2012 - 09:28 PM

Hi Sara-

You are not alone in having chronic constipation rather than diarrhea with celiac. I've battled different degrees of constipation my entire life. My celiac doctor was the first doctor that ever wanted to have a detailed discussion with regard to constipation - very frustrating to get docs to understand. Many doctors still don't know that constipation is a symptom of Celiac Disease.

When I first went gluten free I did have a brief period of perfect - every day regular - no problems - that only lasted a couple months. Then progressively got worse again. I was fairly regular for nine months last year when I removed all possible food intolerance, but had another horrible fibromyalgia/celiac flare in March with no explanation (was still on very restricted diet) -- became extremely constipated once again. Did find out that I had extremely slow/sluggish bowels - my doc finally understood when the bowel prep for a colonoscopy took 8 hours to start working for me - if you've never had the pleasure -- bowel prep usually clears you out rather quickly ;). After that I had a test where you swallow a pill with markers and then they x-ray 5 days later to see how far the markers have traveled (normal folks would not have any left - I had a lot). Doctor could only suggest possible SIBO as the cause of many of my unresolved digestive problems.

In July I took a course of antibiotic in case SIBO (Small Intestine Bacteria Overgrowth) is the culprit. Since finishing with the antibiotic I have continued with probiotic along with pepperment and oregano oil supplements...have had improvement over the past month - but am no where near regular. I am hopeful this trend with continue to improve.

I'm also looking into Thyroid -- many of my lifelong symptoms have been those of hypothyroid -- docs have run TSH every year or so because symptoms have always been there. My TSH is always in the "normal" range. I did some research and asked that they run Free T3 and Free T4 along with Thyroid Antibody tests. I do have very low thyroid hormones which can indeed indicate hypothyroid (constipation is a symptom of hypothyroid) -- so I'm looking into Thyroid Hormones.

So while I can't tell you when or how it will get better - I can tell you it can get better and you are not alone with this problem. Maybe some others that have improved completely will have other suggestions.

Ever hopeful :)
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#3 GottaSki

 
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Posted 18 August 2012 - 09:38 PM

p.s.
Also noticed that you went gluten-free in March of this year...it is possible that you simply haven't had enough time to heal. Depending on the damage to your intestines it can take a very long time to heal completely.
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#4 eatmeat4good

 
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Posted 18 August 2012 - 11:54 PM

What about increasing healthy fats like olive oil, flax oil and avocado? I did some checking on causes of constipation in vegetarians (from your list I assume you are) and it appears to be a fairly common problem if you don't consume enough of the good fats along with your high fiber diet. It would be an easy thing to try anyway.
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Healing is a matter of time, but it is sometimes also a matter of opportunity.
--Hippocrates

#5 FruitEnthusiast

 
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Posted 19 August 2012 - 07:30 AM

I eat two avocados and and a tablespoon of olive oil every day. Increasing my olive oil consumption daily is one thing I haven't tried consistently. My weight has been consistent, but lately my scale will show I've gained 5-10 lbs, but I think I'm retaining water. Maybe I should have one avocado a day and increase my olive oil. Once I tried drinking 1/4 cup of olive oil - I read that it should produce a bowel movement within hours, but nothing happened.

I had the test where you swallow the markers and the x-ray 5 days later showed that the majority of them passed, indicating my motility isn't too bad. I had a colonoscopy and cat scan. No functional abnormalities or obstructions. When I was first diagnosed gluten intolerant, I tried several things to clear out the stuff that was stuck inside but even a colonoscopy prep kit didn't work! The only thing that did start to clear out the old stuff stuck inside was starting a raw food diet along with regular colonics.

Ten years ago I was diagnosed with slow transit constipation and prescribed Miralax daily, which worked for seven years, then stopped working at all. I stopped it when I went on the raw food diet, in case it was irritating my intestinal lining.

My doc is testing me for hypothyroid including Hashimotos this week, but I don't have any other low thyroid symptoms other than constipation.
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Sara  :)   "This life is a test. It is only a test. If it had been an actual life, you would

                             have received further instructions on where to go and what to do"

 

"If you're going through hell, keep going" :) Winston Churchill
************************************
Histamine Intolerant  Apr 2014

N C Gluten Intolerant dx Feb 2012  Also Intolerant to Rice, Eggs, Nightshades.
Gluten-Free/ Grain-free/ only whole foods prepared at home since  March 2012
Dairy, Soy, Chocolate free since Jan 2012   Sensitive to Corn and Mold since 1995
 


#6 Gfreeatx

 
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Posted 19 August 2012 - 07:43 AM

Have you had all of your vitamin levels checked? Many vitamin deficiencies can cause constipation. I was severely constipated for several months when I had never had any issues before...in fact I always had the opposite issue. After checking my levels it turned out I was B12 deficient. Since starting treatment I am back to normal. Hope you find something that works. Constipation is miserable. :(
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#7 FruitEnthusiast

 
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Posted 19 August 2012 - 09:00 AM

Hope you find something that works. Constipation is miserable. :(

Thanks for saying that, because it is miserable, and discouraging. When my bowels don't move, I feel depressed, then when they move again, it's like a dark cloud has lifted and I'm back to my optimistic self again. The psychological and physiological parts go hand in hand.

I am having blood work next week to check all my vitamin and mineral levels and all the usual things. I've taken 1000 mcg of B12 daily ever since I was also found to be deficient years ago.
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Sara  :)   "This life is a test. It is only a test. If it had been an actual life, you would

                             have received further instructions on where to go and what to do"

 

"If you're going through hell, keep going" :) Winston Churchill
************************************
Histamine Intolerant  Apr 2014

N C Gluten Intolerant dx Feb 2012  Also Intolerant to Rice, Eggs, Nightshades.
Gluten-Free/ Grain-free/ only whole foods prepared at home since  March 2012
Dairy, Soy, Chocolate free since Jan 2012   Sensitive to Corn and Mold since 1995
 


#8 GottaSki

 
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Posted 19 August 2012 - 09:20 AM

Raw food diet can be tough on a healing gut. I'm not suggesting it is the cause of the constipation - just it can be tough for your body to handle all raw vegies right now.

In your first post you said between constipation and gluten symptoms - are other symptoms improving on your current diet?
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#9 mamaw

 
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Posted 19 August 2012 - 09:38 AM

I don't have much to add only that I've had this problem most of my life as well as my Dad...So for fifty years plus I've had this problem. Some days are better than others but I do have a a routine that helps but it has never went away...
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#10 FruitEnthusiast

 
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Posted 19 August 2012 - 10:42 AM

Raw food diet can be tough on a healing gut. I'm not suggesting it is the cause of the constipation - just it can be tough for your body to handle all raw vegies right now.

In your first post you said between constipation and gluten symptoms - are other symptoms improving on your current diet?

After about 8 colonics over 2 months, then a colonoscopy prep, magnesium citrate, nothing would move. A cat scan showed there was still an impaction, so my doc said if it wouldn't move after all that, a liquid diet would be necessary.

At that point I was on my third colonic technician and she suggested the 30 day raw food diet, because there are more digestive enzymes retained in the food which would be destroyed when cooked. The second day on the diet the old buildup finally started to dislodge! It was like a miracle. As I continued on the diet, all the old fecal matter came out, little by little. After 2-3 weeks on only raw fruit and vegetables, I needed protein, so I added nuts, then beans. I started to really improve. My body really liked the diet.

Then I tried to add new sources of protein and the problems started again. I started to get the same symptoms as when I had eaten gluten from several new foods. Over the 5 months gluten free, each month I would try to add a new food, and be sick again for a month with all the same symptoms. So, I have only been reaction free for a week now technically, after identifying the last problem food.

The raw food diet as I originally started it, with nuts and beans included still makes me feel really good. My body likes it. I can't tolerate anything else. I'm not going to try any new foods for the next six months, and I hope my gut will finally have time to heal enough for the constipation to improve.

Before my first constipation symptoms started 10 years ago, then worsened 3 years ago, I was as regular as can be. I don't know if it was may age, I'm 47 now, but they could never find a reason why it started. Now I wonder if it was gluten all along.
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Sara  :)   "This life is a test. It is only a test. If it had been an actual life, you would

                             have received further instructions on where to go and what to do"

 

"If you're going through hell, keep going" :) Winston Churchill
************************************
Histamine Intolerant  Apr 2014

N C Gluten Intolerant dx Feb 2012  Also Intolerant to Rice, Eggs, Nightshades.
Gluten-Free/ Grain-free/ only whole foods prepared at home since  March 2012
Dairy, Soy, Chocolate free since Jan 2012   Sensitive to Corn and Mold since 1995
 


#11 Skittles

 
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Posted 19 August 2012 - 10:45 AM

Hello FruitEnthusiast, Just writing to let you know that you are not alone. I have the exact same problem and my mother says it has been since birth. I am now 25 years old. I have only been diagnosed this year and have been only on the orad to recovery for a little over 3 months. I am on a similar diet as you, I have eliminated a lot of foods and I am still constipated. I take RestoraLAX which I am pretty sure is the same as Malirax that smoe people on here take. That did help but lately I find that I have to up my dose to keep it working. Unfortunatly that is all I have to offer right now. I am in the same boat as you and really hope to fine a better solution
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Diagnosed with celiac by blood test in the beginning of April 2012 and confirmed with endoscopy April 20th 2012.
Gluten free since May 2012 (for 5 months.. relapsed for about a month and have been gluten free again since Nov 2012)
Corn & corn syrup free since May 2012
Dairy limited since Aug 2012
Nightshades limited since Aug 2012

Fructose limited since Nov 2012

#12 Bubba's Mom

 
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Posted 19 August 2012 - 11:00 AM

At one time a few years ago I had alternating C and D. Then it slowly changed to C, all of the time. When I was DXed with Celiac about a year ago, the GI said the C should clear up on it's own over time, but I should be sure to drink plenty of water.

I've struggled to regain my health since my Dx. I eat non processed foods. My only gluten-free item is cereal. My only grain is brown rice. I had some tests at Mayo this spring. It was determined that I had SIBO, and it's suspected that it's a severe case.

I went on several different anti-biotics with no noticeable change. I was told there are many strains of bacteria, and the anti-biotic should be geared towards whichever one they are trying to fight. In my case it would just be guesswork, so after 3 failed I was told to just take probiotics along with digestive enzymes. Both of those help to knock out the bad bacteria, and the digestive enzymes help break down your foods so they're more easily digested and move along better.

I was told this would be a slow process to rebalance my system, but I have been noticing a bit more regularity and not as much firmness. Dare I say..I'm almost becoming normal? B)
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#13 GottaSki

 
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Posted 19 August 2012 - 11:29 AM

The raw food diet as I originally started it, with nuts and beans included still makes me feel really good. My body likes it. I can't tolerate anything else. I'm not going to try any new foods for the next six months, and I hope my gut will finally have time to heal enough for the constipation to improve.

Before my first constipation symptoms started 10 years ago, then worsened 3 years ago, I was as regular as can be. I don't know if it was may age, I'm 47 now, but they could never find a reason why it started. Now I wonder if it was gluten all along.

Sounds like a good plan to stick with the diet that is making you feel good and not challenge anything for at least six months.

I am 47 too - the constipation definitely got worse the 5-10 years before I was diagnosed at 43. I have no doubt that undiagnosed celiac / gluten ingestion was the problem for me all along.

Hang in there - sounds like you are on the way to healing :)
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#14 FruitEnthusiast

 
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Posted 19 August 2012 - 12:01 PM

Thanks so much everyone. I do feel cheered up hearing that it's not just me.

My switch to Kangen water a week ago might be making a difference. Given what my bm looks like now, I would usually be feeling sick today, but I feel pretty good. It's possible that reg tap water after it's gone through the Kangen filtering machine, making it alkaline, antioxidant, w/ smaller molecule clusters, really is more easily absorbed and is helping my body cleanse faster and more completely than before. Some don't believe in it, but I met someone recently who swears by it, so she's been giving it to me from her home machine. She says she would only have a bm once a month before this water, and nothing helped. Now she goes every day! If anyone would like more info on it, I can post more.

I've learned not to count my chickens before they've hatched, so when I've been using the water longer, I will post more on my progress with it.
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Sara  :)   "This life is a test. It is only a test. If it had been an actual life, you would

                             have received further instructions on where to go and what to do"

 

"If you're going through hell, keep going" :) Winston Churchill
************************************
Histamine Intolerant  Apr 2014

N C Gluten Intolerant dx Feb 2012  Also Intolerant to Rice, Eggs, Nightshades.
Gluten-Free/ Grain-free/ only whole foods prepared at home since  March 2012
Dairy, Soy, Chocolate free since Jan 2012   Sensitive to Corn and Mold since 1995
 


#15 RonSchon

 
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Posted 19 August 2012 - 12:51 PM

What I would like to know is has anyone else experienced this symptom like I have from an intolerance to gluten or leaky gut? Did it get better? Can anyone relate? I'd like to know I'm not alone, and it would be encouraging to hear any comments about anyone who's recovered from this. Between the constipation and gluten symptoms, I'm sick so much, I have no life to speak of. I'm happy if I can make it to work.


Sara,

You are not alone. I rarely have diarrhea, my norm is chronic constipation. I went to my Dr. with that for years, and he just advised stool softeners and laxatives after having me do a colonoscopy (never mentioned celiac, or tested me).

When I get poisoned, I will generally be affected for 48-72 hours, then another 24 hours to recover. Most of the time I will spend 2-3 hours a day on the toilet for the 3-4 days trying to "go".

What I'm trying now - well, besides trying to not get poisoned - is when I do have a reaction, is to just acknowledge what is happening and skip the toilet until I can't skip the toilet.

It is amazing when healthy - going in sitting down, "going", and being done in like 2 minutes? It seemed freaky at first, getting something that most of the population takes 100% for granted. It was such a treat to get back 2-3 waking hours a day.
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