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What Is Normal Now?

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I have only been diagnosed four years but have had diarrhea for 40 years with no known cause. ( lots of doctors guessed at a cause, stress, cancer, etc. !!!!!!!) However, I have never been depressed , although was very anemic and was very thin,. I think the fact that I have always taken lots of vitamins and supplements was what kept me alive and kicking. I usually have a lot of energy when awake but can sleep 9 hours at night.

I never left the house for work, etc without taking two emodium or a generic anti-diarrheal. It kept me from feeling anxious about being too far from a bathroom!!! You might see if this helps you.

Since I retired from teaching art, I stay very busy with my crafts, etc, which I sell at shows and this keeps me totally occupied and I really never worry about myself.

The last time I visited my mother, I asked her if she would be offended if I took over her kitchen and she said that she would be offended it I didn't. No problem!!!

Think happy thoughts and stay busy.



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Several weeks after I went gluten-free, my bowel movements got normal with a rear exception. And I used to have such severe diarrhea that sometimes I failed to reach the bathroom in my apartment (3 to 4 yard distance!). This expectation that you won't make it is such an embarrasment! I also used to be depressed for many years, when I had no knowledge of existance of such a disease as gluten intolerance, many years on meds. Now, it's OK, though from time to time I have very mild relapses. Generally, now I feel really good (I don't cheat on my diet at all). I don't consider myself as a sick person. I just have a special diet. Who does not now? Everybody is on some kind of diet. Mine is gluten-free. So what? Well, I still have a problem. I'm single, 54, it is a problem to find a boyfriend at this age, especially when you are looking for a serious long-term relationship. On several occasions, when men were about to take me out on the first date and I told them about my gluten-free problem, I never heard from them again. In all the other aspects my life is as good as never before.



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Alexa, If you never heard from them again, it's their loss. You probably wouldn't want a relationship with them anyway. :P Shirley


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    • It really can be anywhere or any random source, Few tips, as mentioned eat whole foods only nothing processed, Use Freezer paper on your prep surfaces to fix your foods, perhaps gloves in case your touching something else (door to fridge, pantry, computer keyboard, etc) that might have trace gluten residue. Have dedicated gluten-free cooking utensils, pots, and pans. Check your soaps, shampoos, make up and other hygiene products, these might also contain gluten that could be cross contaminating.  I personally had this exact issue and broke down sold everything I had and started new in a new apartment, new appliances, new everything since I was getting sick at least twice a week and could not hold a job. I will link you to the list of gluten ingredients to look out for. Hopefully you can find the cause and not have to go as radical as I did to get relief. It might be something as simple as a spice, or a random product in you house.
    • Thanks for your replies...!  Thanks for all the tips, I am indeed on a caveman diet and trying to figure out what works best. I had rice on Friday and unfortunately did get a reaction (bloating/nervousness), which for now makes carbs a thing of the past. I do indeed do very well on protein and am becoming picky about the ingredients in foods as well. For example I had asparagus the other day but they were packed in citric acid. Little did I know citric acid had sugar. Suffered a severe reaction. All-natural indeed is the only way to go when it comes to curing this thing..  Well, it's a valuable lesson. I never drank enough during my childhood but I'm trying to drink at least a bottle nowadays. It probably contributed to my gut issues.  I'll do my best and see how it goes.  Thanks again, Ken
    • I was in Zambia, Zimbabwe, Botswana & South Africa this summer, with very few problems.  I brought a ton of Kind bars, Justin's peanut butter packets and Costco beef jerky just in case!  I get the Kind Bars and Justin's on Amazon Prime.  Africans eat a lot of meat (try the Kudu, it's awesome!) and veggies.  Stay away from sauces.  I don't recommend eating the Mopane tree worms, even though they are gluten-free.  I tried to get out of it, but my tour leader said they were gluten-free and I had to try it as part of the experience....ewwwww!  lol  gluten-free is quite popular in South Africa...they call in the Banting diet.  Maybe they know it up north as well?  I would definitely stay away from chips because you have no idea what else has been in the same fryer oil.  One chicken nugget and you're toast.  I've never had a problem with rice.  Have a great trip...Africa is amazing!  
    • Hi Jan, Have you had any allergy testing? Could be you are allergic to something else. My daughter is Celiac and was still getting ill & feeling awful after going gluten-free. Found out through several blood tests that she is allergic to shrimp, wheat, yeast & sesame seeds. Many GlutenFree foods contain the things she is allergic too so her food choices just had to change. But she was recently diagnosed with EoE from her lastest endoscopy after being  sick with horrible acid.  Go have more testing with a GI doctor that is current with celiac disease and it's many different symptoms. Knowledge is a powerful weapon and you need to try and stay positive. You have many people who you can turn to and a big Celiac family that is always ready to listen & help where they can! Welcome to the forum 👍🏻
    • Hi Janst, It might help to simplify your diet.  Eliminate possibilities of gluten sneaking into your diet.  It's pretty easy to make mistakes with your diet when transitioning to gluten-free eating.  I suggest eating only whole foods for a 6 month period until you get used to things.  Cross contamination is another thing to look out for.  Shared peanut butter, butter, or other condiments can spread gluten in small amounts and make us sick.  Sometimes medicines or vitamins can have gluten, even teas and spices are possibilities.  Kissing a person who has eaten gluten recently can cause problems too. Keep trying because every time you make a mistake you learn something. You might want to try stopping all dairy for a while to see if that helps also. And welcome to the forum
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