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What Is Normal Now?
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I have only been diagnosed four years but have had diarrhea for 40 years with no known cause. ( lots of doctors guessed at a cause, stress, cancer, etc. !!!!!!!) However, I have never been depressed , although was very anemic and was very thin,. I think the fact that I have always taken lots of vitamins and supplements was what kept me alive and kicking. I usually have a lot of energy when awake but can sleep 9 hours at night.

I never left the house for work, etc without taking two emodium or a generic anti-diarrheal. It kept me from feeling anxious about being too far from a bathroom!!! You might see if this helps you.

Since I retired from teaching art, I stay very busy with my crafts, etc, which I sell at shows and this keeps me totally occupied and I really never worry about myself.

The last time I visited my mother, I asked her if she would be offended if I took over her kitchen and she said that she would be offended it I didn't. No problem!!!

Think happy thoughts and stay busy.

Rose

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Several weeks after I went gluten-free, my bowel movements got normal with a rear exception. And I used to have such severe diarrhea that sometimes I failed to reach the bathroom in my apartment (3 to 4 yard distance!). This expectation that you won't make it is such an embarrasment! I also used to be depressed for many years, when I had no knowledge of existance of such a disease as gluten intolerance, many years on meds. Now, it's OK, though from time to time I have very mild relapses. Generally, now I feel really good (I don't cheat on my diet at all). I don't consider myself as a sick person. I just have a special diet. Who does not now? Everybody is on some kind of diet. Mine is gluten-free. So what? Well, I still have a problem. I'm single, 54, it is a problem to find a boyfriend at this age, especially when you are looking for a serious long-term relationship. On several occasions, when men were about to take me out on the first date and I told them about my gluten-free problem, I never heard from them again. In all the other aspects my life is as good as never before.

Alexa

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Alexa, If you never heard from them again, it's their loss. You probably wouldn't want a relationship with them anyway. :P Shirley

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    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
    • While in Boston I found Cheer's  Bloody Mary mix that says gluten-free on the bottle and have had no issues and  tastes pretty good 
    • I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.
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