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What Is Normal Now?
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I have only been diagnosed four years but have had diarrhea for 40 years with no known cause. ( lots of doctors guessed at a cause, stress, cancer, etc. !!!!!!!) However, I have never been depressed , although was very anemic and was very thin,. I think the fact that I have always taken lots of vitamins and supplements was what kept me alive and kicking. I usually have a lot of energy when awake but can sleep 9 hours at night.

I never left the house for work, etc without taking two emodium or a generic anti-diarrheal. It kept me from feeling anxious about being too far from a bathroom!!! You might see if this helps you.

Since I retired from teaching art, I stay very busy with my crafts, etc, which I sell at shows and this keeps me totally occupied and I really never worry about myself.

The last time I visited my mother, I asked her if she would be offended if I took over her kitchen and she said that she would be offended it I didn't. No problem!!!

Think happy thoughts and stay busy.

Rose

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Several weeks after I went gluten-free, my bowel movements got normal with a rear exception. And I used to have such severe diarrhea that sometimes I failed to reach the bathroom in my apartment (3 to 4 yard distance!). This expectation that you won't make it is such an embarrasment! I also used to be depressed for many years, when I had no knowledge of existance of such a disease as gluten intolerance, many years on meds. Now, it's OK, though from time to time I have very mild relapses. Generally, now I feel really good (I don't cheat on my diet at all). I don't consider myself as a sick person. I just have a special diet. Who does not now? Everybody is on some kind of diet. Mine is gluten-free. So what? Well, I still have a problem. I'm single, 54, it is a problem to find a boyfriend at this age, especially when you are looking for a serious long-term relationship. On several occasions, when men were about to take me out on the first date and I told them about my gluten-free problem, I never heard from them again. In all the other aspects my life is as good as never before.

Alexa

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Alexa, If you never heard from them again, it's their loss. You probably wouldn't want a relationship with them anyway. :P Shirley

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    • Congratuations!   You and 30% of the population carries the genes to potentially develop celiac disease.  A gene test just excludes celiac disease but can not diagnose it.   Have you been on a gluten free diet?  Is that why you were not able to take the standard celiac blood test?  
    • Back to Dr. Google for you!   A histamine intolerance is not a true IGE mediated allergic reaction.  Read up!  It does often (like many intolerances) occur with celiac disease because the small intestine is damaged.  It can resolve once the gut has healed.   celiac disease antibodies can take time to build up (in your blood stream for the test or skin).   That's why the gluten challenge is 8 to 12 weeks.  In the case of DH, you can eat something and days or weeks later, the DH rash will appear and you'll go crazy trying to figure out when you got "glutened" (but don't take any serious gluten advice from me because I don't have it).   You can have several things wrong with you and a wheat allergy and celiac disease can occur at the same time.  Add on something like Mast Cell Activation, Autoimmune Hives, Histamine Intolerance.......the list can be endless (at least that is how some of us feel.)  Of course your high school could be making you ill.  Think of all that stress!  Who knows what lurks in your building, but let's face it, you ate some gluten.  Best of luck to you on your challenge!  
    • Hi, I need help understanding these results please. Can anyone help me.  DQ2.5 (HLA1*05 DQB1*0201 AND OTHER NON-RISK ALLELES CATEGORY# 4 DQ GENOTYPE: DQ2 HETEROZYGEOUS INCREASED RISK: 10X RELATIVE RISK: HIGH My doctor is out on vacation from now until the end of August and I couldn't get an appointment until the end of September.  
    • Ugh!  So, you have early stages of celiac disease and that was after being gluten light?  It is a shame that your doctor is not comfortable about giving you a formal diagnosis because you don't have enough damage!  Time for a new GI.  You can also as for another pathologist to read your biopsies, but seriously....... Have a conversation with your current doctor about the reasons why he is hesitating.  He would rather you continue to become more ill or improve your health?   Are you going to be scarred for life with a celiac disease diagnosis? Maybe he is one of those people who think it is impossible to live with wheat, rye or barley!   I don't get it! 
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