Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Depressed Cause I Can't Eat Anything
0

16 posts in this topic

I'm 14 and just found out that I'll go into severe anaphylactic shock if I eat wheat or milk. I found this out on Sunday. I have no idea what to eat :( I've eaten like nothing since Sunday and lost like 8 pounds cause I'm scared to eat. A couple questions:

1) ok so I can't have wheat. I'd have to call 911 and go to the ER if I consumed it. Does that mean I should avoid rye, barley, and oats too (I've heard they can be cross contaminated)?

2) what can I eat for breakfast? No more honey bunches of oats cereal :(

3) school lunch ideas???? I have no idea whatsoever for this

4) if a product says: "made in a facility that produces milk an wheat products," should I still eat it?

5) how can I eat out at restaurants? Friends houses?

6) what can I put on pizza? I don't wanna try lactose free cheese...it's gross.

0

Share this post


Link to post
Share on other sites


Ads by Google:

So for the longest time I thought I was gluten and lactose intolerant. That all changed sunday when I consumed a granola bar with milk in it. I got into severe anaphylactic shock. Had to be rushed to the ER.

Turns out I'm severely allergic to milk and wheat now. I'm upset. I haven't eaten anything since Sunday cause there's nothing to eat. No more cereal or frozen yogurt or pizza. I'm crying right now. I've lose like 6 pounds since Sunday. I had a couple questions.

1) ok so I can't eat wheat. Should I avoid oats, barely, and rye now too (since they can be cross contaminated)?

2) if a product says "made in a facility that processes wheat and milk" should I still eat it or not? (cause my reaction is so severe)

3) what can I eat for breakfast? Coconut yogurt is good but expensive so my mom doesn't wanna buy it everyday. I don't like soy cheese or soy milk or soy yogurt

4) what can I put on top of pizza?? How can I make cheese less pizza taste good?

5) school lunch ideas??? I have no clue what to bring

6) can i still eat out at restaurants or friends houses? How can I explain to them????

Sorry for the rant. I'm 14 and kinda depressed right now

0

Share this post


Link to post
Share on other sites

Hi kiddo,

We had to be on a gluten free, all top 8 allergen, and pea free diet for about 2 years.

This is frustrating, but managable.

Pricey but an awesome treat, www.lizlovely.com has gluten free vegan cookies

Enjoy Life specialty products (the Best chocolate chips!)

Namaste meal mixes

Craving place baking mixes (haven't been able to find these for a while)

Cherrybrook Farms also has an awesome pancake mix.

My favorite cookbook is The Allergen-Free Baker's Handbook (How to Bake Without Gluten, Wheat, DAiry, Eggs, Soy Peanuts, Tree nuts, and Sesame by Cybele Pascal

Good substitues for a rich and creamy texture are hummus and avocados.

Sorbet is my favorite freezer snack

I found it was cheaper to replace butter with lard for cooking and baking. Honestly we needed to bump up some calories too.

Do a search for "crazy cake" or depression era chocolate and rplace the flour for gluten free flour mix.

You don't have any restrictions on fruits, vegetable or meats? Concentrate on what you can eat.

:)

0

Share this post


Link to post
Share on other sites

So for the longest time I thought I was gluten and lactose intolerant. That all changed sunday when I consumed a granola bar with milk in it. I got into severe anaphylactic shock. Had to be rushed to the ER.

Turns out I'm severely allergic to milk and wheat now. I'm upset. I haven't eaten anything since Sunday cause there's nothing to eat. No more cereal or frozen yogurt or pizza. I'm crying right now. I've lose like 6 pounds since Sunday. I had a couple questions.

1) ok so I can't eat wheat. Should I avoid oats, barely, and rye now too (since they can be cross contaminated)?

2) if a product says "made in a facility that processes wheat and milk" should I still eat it or not? (cause my reaction is so severe)

3) what can I eat for breakfast? Coconut yogurt is good but expensive so my mom doesn't wanna buy it everyday. I don't like soy cheese or soy milk or soy yogurt

4) what can I put on top of pizza?? How can I make cheese less pizza taste good?

5) school lunch ideas??? I have no clue what to bring

6) can i still eat out at restaurants or friends houses? How can I explain to them????

Sorry for the rant. I'm 14 and kinda depressed right now

The anaphalactic shock is really scary! :o It would be best if you stay away from foods that can be cc and foods made on shared lines and factories *could* have enough of your allergens to cause you trouble. Be safe..and don't take the chance on eating them.

For breakfasts..there are gluten-free cereals available. I like to eat them with the vanilla flavored SO Delicious brand coconut milk. It's in a carton in the cooler of the store usually( Kroger's here has it in the special section set aside for organic and allergen-free foods, but some stores carry it on the shelf.

Bananas or other fruits are good..eggs, bacon! :D

I don't eat pizza. I don't eat any grains other than brown rice, so I'm no help there..so I hope others can give you some ideas on that?

Lunches..hummus or refried beans with corn chips, gluten-free lunch meat, tuna, or egg salad in romain lettuce wraps, left overs from last night's supper, fruits, veggies, how about celery with peanut butter? There are canned stews..Dinty Moore is one I believe? Read the labels though!

I make Salmon patties once a week or so, and they make a good lunch. They're good cold too.

Rice Krispy Treats made with a nice coconut oil( I love Nutivia and buy it online) and gluten free Rice Krispies, (I always have a pan of them in the house.)

Potato chips, Fritos(plain), hard boiled eggs. You can have popcorn(read the package to check for dairy butter).

There are gluten-free pretzels, muffins, cake mixes, etc. which you can have if they are free from your allegens. I don't use them because they often have soy added and I can't tolerate even traces of it.

Eating out at restaurants can be iffy. The higher end ones are usually a bit safer, but you must speak up about your allergies! Eating with friends can be done, but you're best off eating things right from the package, rather than eating things they've cooked. Even if they haven't used your allergens, there could be cc..just like eating foods from a shared facility.

I'm sure this is all a bit overwhelming at first? We've all had to adjust. You must read labels. You can do this! :D

0

Share this post


Link to post
Share on other sites

I'm 14 and just found out that I'll go into severe anaphylactic shock if I eat wheat or milk. I found this out on Sunday. I have no idea what to eat :( I've eaten like nothing since Sunday and lost like 8 pounds cause I'm scared to eat. A couple questions:

1) ok so I can't have wheat. I'd have to call 911 and go to the ER if I consumed it. Does that mean I should avoid rye, barley, and oats too (I've heard they can be cross contaminated)?

2) what can I eat for breakfast? No more honey bunches of oats cereal :(

3) school lunch ideas???? I have no idea whatsoever for this

4) if a product says: "made in a facility that produces milk an wheat products," should I still eat it?

5) how can I eat out at restaurants? Friends houses?

6) what can I put on pizza? I don't wanna try lactose free cheese...it's gross.

Hi Avid, welcome and a big hug to you. I am allergic to wheat too. I know it can be very hard at first. I had to quit my job in a bakery. I was pretty down for a while too but remember it is really not so bad once you get adjusted. You will be eating healthier than ever. :)

You came to the right place, there are a lot of helpful, knowledgeable people here.

I would suggest for now stick with whole foods, fruit, veg and meat. Take some time to read here on the forum.

1) Hopefully you have an EPI pen. It's very important. There are cc issues with oats and barley, not sure about rye though. I am 100% gluten free, it's easier :)

2) There are many breakfast/meal ideas on the board and also Gluten free cereals at grocery stores. I like hot cereals and eat Bob's Red Mill Mighty Tasty Hot Cereal. Gluten free breads, muffins, bagels etc.

3) I think there is a thread on here for school lunch ideas too.

4) I would not eat it, too risky for me.

5) I am a super sensitive so I can never eat at a restaurant again unless it was 100% gluten free. Where I live there is only one and it is high end/expensive. I also do not eat at friends homes. Do a lot of reading here, there are many ideas for dealing with these situations, like bringing your own food.

I always carry a Kind bar with my Epi pen in my purse/bag in case I end up in a last minute situation where I can't eat.

6) I'll leave this to others on here who know more about this. There are some lactose free cheeses that are not so bad.

Hang in there

0

Share this post


Link to post
Share on other sites




No need to be depressed! Seriously, there are plenty of foods to eat and enjoy. You can make your own non-dairy milks too, which can save a lot of money. Homemade non-dairy yogurt is also relatively easy to make.

How careful you need to be with CC depends on your sensitivity. But also, if you are allergic to something in wheat which is also present in other gluten-containing grains, then you'd still have to avoid them. Were you tested for other grains?

As for cheese, there are non-dairy cheeses. Some are rice-based.

For school lunches, do you like peanut butter sandwiches? Meatloaf/meatball sandwiches? If you have access to a microwave, there are also a number of things which can be heated, such as soups, stews, casseroles, mashed potatoes, etc, etc.

Eating out may be a bit risky. Your friends may be able to grasp the severity if you compare it to peanut allergies.

HTH

0

Share this post


Link to post
Share on other sites

I'm sorry- it is hard! Since you have an anaphalactic reaction now, you should not take a chance on products that are processed alongside wheat. Too easy for a little bit to sneak in there. Anaphalaxis tends to increase in severity with repeated exposures- please be sure to carry an Epi Pen at all times!

Pizza is doable...but it is going to have to be homemade most likely. Avoid the packaged gluten free ones unless you are positive they are made in an allergen free facility.

Daiya cheese shreds make a decent pizza cheese. They aren't the real thing, but they melt and have identical texture to real cheese. Tastewise...they don't really have much taste at all..but you get the gooey mouth texture that is so important with pizza!

There are myriads of gluten and dairy free pizza crust recipes- you may have to experiment to find one you like.

Your life has changed, and it isn't going to be the same for you ever again. Its ok to be upset and grieve that! But you have a lot of things ahead of you to enjoy, so try to focus on the "cans" instead of the "cants."

You need to learn to cook and cook well. It will make your life much better if you do! Usually not high on a teenagers priorities I know, but I promise you can learn to enjoy it.

You aren't alone. Many kids and adults like you who have to deal with this, many on this board. We are here to help however we can!

0

Share this post


Link to post
Share on other sites

I'm not nearly as experienced as other folks on here but in terms of eating products produced in facilities that also produce wheat - DONT DO IT! I didn't think it was a big deal and two weeks ago got gummy bears that claimed to be gluten free but clearly said that its made in a facility that produces wheat. I thought "No big deal, I'm not that sensitive." Two hours later I felt like absolute crap and my stomach bloated like no other....I will NEVER do that again and I'm only moderately sensitive, so I would suggest that you stay away from it! Good luck!!

0

Share this post


Link to post
Share on other sites

Everyone is so so helpful!!! Thanks so much :)

I found a frozen wheat and dairy free pizza crust at whole foods. Would refried beans, mushrooms, and tomato sauce taste good together on it do you think??

Ah I love ya guys!! This forum might just be my life saver

0

Share this post


Link to post
Share on other sites

You got some good ideas coming your way.....

I have f riends who use the Daiya cheeses & they enjoy them... Since you ha whole foods near you it will be an easy find. Sandwich petals make a nice wrap for breakfast, lunches... For pizza you could do a veggie pizza since you found a crust you like... We use Pacific gluten-free cream of mushroom soup, frozen spinach ( drain very well) & real bacon bits, & cheese.. It makes an alternative to the classic pizza....Tacos, canned salmon & gluten-free crackers, Homemade chicken salad,hormel has chicken & rice in micro cups , dinty moore beef stew but not the chicken one gluten-free.....

Jerky, protein bars are good..

We use Almond vanilla Breeze for cereal....

The only bad thing is that much in gluten-free needs to be ordered online...

My grandkids are 11 1/2 & 14 1/2 both have been gluten-free for about nine years now... We match school lunches & the older one eats tons of salads daily...

Good Luck

0

Share this post


Link to post
Share on other sites

Everyone is so so helpful!!! Thanks so much :)

I found a frozen wheat and dairy free pizza crust at whole foods. Would refried beans, mushrooms, and tomato sauce taste good together on it do you think??

Ah I love ya guys!! This forum might just be my life saver

Mmmm..sounds like you have the start to a Mexican pizza? McCormick brand makes a gluten and dairy free taco seasoning..but read the package, as they make several and some have dairy ingredients. Brown some hamburger... add the taco seasoning and mix with those toppings and you'll have a great meal. I think it would be yummy even without cheese?

0

Share this post


Link to post
Share on other sites

uh oh...

We have the almost same post running.

The other post is from sage, it was posted just before yours and has @5 replies already. Everyone's post is important but i have to run out for a family emergency ~ and don't have time to retype my reply.

0

Share this post


Link to post
Share on other sites

Why is this post almost exactly like the other one from a different OP... Very odd...

0

Share this post


Link to post
Share on other sites

Not sure what is going on here. This person and Sage are the same person. I will try to combine them. Please respond on the Sage one. I'm having some computer issues with combining.

Edited: They are combined

0

Share this post


Link to post
Share on other sites

Hi there,

There is a really good cookbook that I've found which is all gluten and dairy free, called Cooking for Isaiah, by Silvana Nardone. It was written for her son who has dairy and gluten intolerance. I've tried tons of her recipes and they are yummy! Best Chocolate chip cookie recipe I've found so far also the best doughnuts I've had gluten free. Also, she has a blog if you do not want to buy the book, In Silvana's Kitchen. :)

0

Share this post


Link to post
Share on other sites

I know how you feel! I have been so depressed lately because I'm vegetarian and then got the positive anti-body test for gluten. It's NOT always as bad as it seems, though. There is still a lot you can eat.. All the fruit, veggies, rice, Quinoa, gluten-free oats, all kinds of gluten free flours, you can learn to cook, and if you have a New Seasons or Whole Foods nearby, they have a big gluten free section, a lot of which is also vegan so you won't have to worry about milk. It IS depressing though, sometimes, I won't lie or sugar coat it.. But just think, it's not worth getting sick if you eat that stuff and there's more to life than food, anyway. There's vegan cheese, though, so you can still have pizza. :)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,876
    • Total Posts
      919,429
  • Topics

  • Posts

    • Anyone experience brain fog like this?
      Brain fog is a common symptom.  I had a hamburger patty from a local restaurant and am suffering the effects.  Sometimes mine is bad and sometimes it is mild.  This one feels mild, provided I am not "glutened" again.  I have the exact same feelings when I am contaminated.  I actually had 2 good days this week to ony have to go back through this again.  The first day is just tired and want to sleep, but as each day goes on it seems like all I can do to concentrate and do anything.  TV is OK but for me just standing up or moving sometimes makes me dizzy.  Luckily I don't have the nausea but even sitting still I feel like I am in a swimming pool moving.  You know kind of like when you were a kid and you got in the pool or went roller skating but then got out and and you still felt like you in the pool or skating?  The anxiety and the depression is the worst.  I am taking things to help with it but it doesn't always help.  Only thing that seems to help sometimes is just going in to my room and laying there and not moving and just going to sleep.   It will pass.  Just be cautious about everything.  I have opted to let my family know that I will bring my OWN food when we have gatherings.  I don't mind being the odd man out because I am already the odd ball.  One thing I have learned and that is people mean well but mistakes happen and we are the ones who have to pay the price.   Hope you feel better soon.
    • gluten intolerance, dairy intolerance and fructose
      Look into The Paleo Approach by Sara Ballentyne, PhD.  Great resource and will probably answer your questions.  I have the same problem. You have to really read labels.  The only coconut milk I can use is an organic canned one.  Others have too many ingredients that are problematic.  For now, stay with meat and vegetables as someone else has recommended.  If rice works for you, great.  If not, winter squash is good.  The diet change is overwhelming at first but then it starts to make sense.  The one good thing about an intolerance versus allergy is the possibility of someday being able to add it back into your diet once your gut has healed.
    • Anyone experience brain fog like this?
      I went gluten free about a month ago, and was finally feeling *great* last week when wham -- my well-meaning Dad cooked me dinner and forgot to check the ingredients on the fish sauce he used. The upside of being glutened for the first time is that, after a couple weeks of feeling good, I feel like I can discern the symptoms a lot better now. I've noticed that the worst part, aside from the nausea, is the "brain fog," but I'm curious if my experience of brain fog is the same as or similar to what other people are feeling. For me, it becomes almost physically painful to concentrate on anything. If I try to read a book, or watch a TV show, it makes me feel dizzy, overwhelmed, and nauseous. For a couple days, I feel like all I can do is try to stay still and do as little as possible while I wait it out. It feels similar to anxiety, but not quite the same, and none of the usual tricks for getting through a panic attack help. Do any of you experience brain fog in a similar way? Where it basically makes you feel sick to try and concentrate on anything, even fun and relaxing things?
    • gluten intolerance, dairy intolerance and fructose
      I've never gone fructose free so can't help much with that.  But any fruit is probably a problem.  If you are serious about avoiding fructose you could do a search and print out a list of foods to avoid. http://www.mayoclinic.org/fructose-intolerance/expert-answers/faq-20058097 Yes, it very possible to have multiple food intolerance issues.  Many people have multiple food intolerances.  It might help to avoid any foods that are sweet for now.  Meat and most veggies are probably the way to go.  You may want to get some jerky to eat for snacks.  Peanuts might be ok but you'll need to verify that.  Boiled eggs are probably ok.  Most soda would be a no-no.      
    • Help
      Hi Courtney, You asked about dairy, and RMJ got it right.  Celiac disease destroys the villi lining of the small intestine.  Those villi make the lactase enzyme we need to digest dairy. Sigmoid colon thickening could be related to diverticulitis.  Which according to Wiki is a fairly common condition but doesn't always cause symptoms.  Diverticulitis can cause a problem if there is an infection though.  The sigmoid colon is part of the large intestine.  Celiac disease affects the small intestine, so celiac isn't likely involved.  I am not sure why the resident suggested celiac, unless there were some other reason to do so.  Possibly the weight loss, which could be explained by celiac disease.  Thickening of the colon may happen with Crohn's disease also.  And I'm not sure about UCD (ulcerative colitis disease) but it might cause that also, not sure https://en.wikipedia.org/wiki/Diverticulosis https://en.wikipedia.org/wiki/Sigmoid_colon http://biology-pages.info/G/GITract.html#pancreas http://www.ccfa.org/what-are-crohns-and-colitis/what-is-ulcerative-colitis/
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,912
    • Most Online
      1,763

    Newest Member
    Mamalarge
    Joined