Just A Little Vent But Advice Would Be Apprciated
Posted 22 August 2012 - 12:57 AM
Posted 22 August 2012 - 03:55 AM
A lot of people are jerks, it's true. They are so self-absorbed and self-focused that little inconveniences about the way other people have to live can cause them to push even slightly challenging situations away. But... this really isn't everyone.
I know it is hard at times, but I would really encourage you to keep putting yourself out there and taking the risk of relationship. I've had a few marvelous friends really support me in the fact that my diet is now fairly high maintenance. And I have been really surprised by who those amazing people have been. Believe me, supportive people are out there. And finding those people is worth all the risk of being snubbed again.
You might want to get involved with a local gluten intollerance group or something like that if there is one near you. Being able to relate with people who have been there and really understand is refreshing.
Anyway... that's my two cents. Sorry you've encountered so many quitters and jerks.
Posted 22 August 2012 - 05:58 AM
For me it is easy to see that eating gluten is not worth it, but for them they don't feel the pain. In a way they do, since I am irritable toward them at times.
I don't understand how eating gluten could be considered more important than a person one knows. I don't think many would admit to a conscience decision like that. It does seem like what you have experienced that very thing. I have felt isolation. I have felt unloveable. But I have a friend that sticks closer than a brother. I can keep going. But sometimes I need to be carried.
All people will fail. You need to find The Someone who won't.
Posted 22 August 2012 - 06:10 AM
At first I thought I was too sensitive. Then I thought, maybe I focus on it too much. But to be honest, I only focus on it as much as everyone else focuses on food. I've taken the first tentative step with my local support group, which is getting their monthly email. I keep almost going to the meeting, but then end up not going. Now that all my other friendships but one have imploded I worry about it. What if they don't like me? What if they're already a tight-knit little group without room for a weirdo like me? What if I have nothing in common with a single one of them there? I also know I'm being paranoid for no reason and really should just head out to a meeting of of these months.
Another thing I may suggest, because it is something my dad did and he really seemed to love it, is a singles group. Not as in, for the sake of meeting other people as potential mates although that can happen. But instead it's a group of people who happen to be single and simply are enjoying life and do so together as a large group of adults doing fun activities together. Sometimes it involves food as things inevitably do, my dad's group seemed to have lots of pot lucks. Anyway, this would be a great way to meet people and maybe you'll click with a few and become fast friends.
For me the answer has been online gaming, not for everyone but it is for me. I wear out easily so I still can't go out a whole lot. (And I'm married and everyone my age in my area married has a half dozen kids, no thanks, nothing in common with them.) I've formed some long term and meaningful friendships over my favorite game. These friendships will probably last my lifetime, and while I may not ever actually meet these people I care for them as I care for my dear best friend who lives a few miles away. They aren't just some paladin, priest, etc, there are real people behind every online avatar and if you're into that sort of thing online gaming can be a rewarding and meaningful experience.
"You don't look sick or anything"
"Well you don't look stupid, looks can be deceiving."
Celiac DX Dec 2012
CRPS DX March 2014
Posted 22 August 2012 - 06:29 AM
We're also in that "married with no intention of having kids" situation, and EVERYONE around us is either single or married with kids. Or, we find a married couple like us and within a year or two they have a baby, and then that friendship goes out the window. It's amazing how much having kids can change a couple, and how much it alienates them from their former friends without kids.
Posted 22 August 2012 - 07:09 AM
How does everyone else deal with this? Am I just being to sensitive? Should I just accept that people are jerks? I already isolate myself quite a bit because I'm shy but I'm not sure how many times I can be told I'm an inconvinence before I just give up and not form any new relationships at all.
I don't think you're being sensitive. It hurts.
I react to coffee, even inhaled coffee, so that severely limits places I can go. It made it very clear who my close friend's were vs. those who don't really care enough for it to be worth the effort for them.
My close friends have done things like turn off their coffee makers and drink Starbucks for the day before I come to visit, so there is no residual coffee smell left in their house by the time I drop by. They've met me at parks so I can avoid restaurants, they've had their coffee breaks after I leave and drank tea when we're together, and they've done all this without my even asking. It made me feel loved, and thought of, and was truly wonderful. And they do this EVERY time we get together. They care, and it shows. I am constantly in awe of how much they have been willing to do so that we can have some time together. I try really hard to make sure they know how much I appreciate what they do for me, and try to give back in other ways, you know?
My not-so-close friends, some of whom I thought were much closer, don't do this. They'll want to get together but are unwilling to meet places that I can go, so we hardly see each other anymore. There's an event every year that we travel to and attend with these folks and everyone has coffee in the mornings in the house. I have to go out in the yard or stay away until the smell dissipates, usually about half the day. I have one friend who comes out to visit and say hi when I'm stuck in the yard, and the rest of them stay in the house and enjoy themselves and I don't see them until I'm the one who can come inside.
I'm not asking them to give up something for me, truly. I'm not bitter about it, either. They are not obligated to entertain me or do something different on my behalf, not at all. But having some good friends who approach the entire thing so differently has made me realize what a difference true caring makes in how people treat you. The fact that your boyfriend quit on you over this just indicates he didn't care enough to try. Which HURTS. That can't not hurt. But not everyone will be that way.
When trying to meet new people, that's harder, because it IS a bit of an effort, and people may be less willing to go to that effort for people they don't even know. I've been trying to join groups of people who would be more understanding, or be in a similar situation, these days. Groups for activities that don't involve food, like rock climbing, biking, or jogging clubs (not that I do these yet, but I'm getting there, LOL). Or groups for people with allergies or celiac disease. Or you could check if there are any gluten free groups, or groups for people who have other diets like vegetarianism.
Any group for people who with special dietary needs is going to have people who understand when you need special foods. In my experience, people in groups involving health - like the jogging - may have a higher percentage of people who understand doing something that is necessary to be healthy, diet or otherwise.
And people who don't understand? Well, that just says something about their compassion, understanding, and level of self-interest. It HURTS to realize that someone we care about is unable to be giving or thoughtful when you need them, but truly, there are people out there who CAN be giving and thoughtful. You can find them. :-)
Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease
23 years with undiagnosed sulfite sensitivity
25 years with undiagnosed mast cell activation disorder (MCAD)
Daughter: celiac and MCAD positive
Son: gluten intolerant
Father, brother: celiac positive
Posted 22 August 2012 - 07:34 AM
There is a group near me, but they require all participants to bring a gluten free dish and recipe card to each meeting. From reading their newsletter, it sounds like more of a cooking club than a real support group.
I do think it's rude to not make allowances for people with food allergies/sensitivities if you know someone with that condition is going to be present at an event. If a friend in a wheelchair arrived at a party it would be rude not to provide some way for them to enter the house. It may not be exactly the same, but if something is preventing you from being present, whether a physical disability or a food sensitivity, then you are being told that you aren't welcome. It's a slap in the face.
Green peppers have always upset my stomach - even just the smell of them in the grocery store. My mom thought she would fix that by deliberately preparing green peppers and serving them to me to try and "break" me of my "mental" dislike of them. Thank god I live nowhere near my parents, or she'd be trying to hide wheat in everything to prove a point.
Posted 22 August 2012 - 07:55 AM
- James Watson
My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant
Leap, and the net will appear.
Posted 22 August 2012 - 08:13 AM
And then there is the woman who comes into my shop. Her husband is a dear friend to all of us and quite a good guitarist. I had told her before that I am allergic to perfume but she continued to wear it when she came in.One day when she came in, I was all choked up. As they were leaving she went to give me a hug. I pulled back and told her again that I am allergic to her perfume. She got so mad she clucked her tongue, rolled her eyes, and left without a word! Her husband told me later that she took it as a personal insult. I told him that *I* take it as a personal insult that her perfume is more important to her than my health, that as a NURSE, she should know that asthma kills, and that if she hates me enough to try to KILL me, I was better off not having her come to my shop anymore.
He still comes in on occasion, but not as often as before. It's too bad her selfish, blind behavior has ruined HIS good times too.
I know none of this helps YOU, Moose, but there it is. The world is FULL of self-centered, thoughtless, rude, downright MEAN people. But there are also a lot of caring and wonderful people. When you meet a guy who treats you right, you will appreciate him all the more because you have seen the other side.
gluten-free since June, 2011
Can't eat soy, corn, or foods high in salicylates.
Nightshades now seem to bother me too.
BUT I CAN STILL PLAY MY GUITAR AND THAT"S ALL THAT MATTERS!
Posted 22 August 2012 - 08:19 AM
Everyone is inconvenient to someone else, one of your inconveniences happens to be food. My bf takes forever to decide things - very inconvenient, and drives me up the wall. Would I dump him because of it? No. Only a lame-@$$ jerk would tell you that what you eat is causing him problems.
I agree with this!
Tell you what my 16 yr old son just said to me. He and some of his friends switch schools half day. Wed is a day that they have a 2 hour break in the middle, between schools. I suggested he take his friend "Annie" out to lunch. He said he wouldn't know where to take her as she has a lot of allergies. But its Ok, because some days she is going to bring a lunch and he will stay at the first school to eat with her. He didn't mind the inconvience, he just enjoys her platonic ? company.
Celiac.com - Celiac Disease Board Moderator
"Darkness cannot drive out darkness: only light can do that. Hate cannot drive out hate: only love can do that."
Dr. Martin Luther King, Jr
Posted 22 August 2012 - 08:39 AM
I pulled back and told her again that I am allergic to her perfume. She got so mad she clucked her tongue, rolled her eyes, and left without a word! Her husband told me later that she took it as a personal insult.
Wow. That's a whole different level of rudeness! I'm so glad that we have a "smells" policy where I work. Strong perfume = instant migraine + nausea for me, so I feel your pain. Wearing too much perfume is just as rude as loud music bleeding through earbuds - if the whole room is aware of it, you overdid it.
Posted 22 August 2012 - 09:11 AM
A sad fact is that there are more selfish people in the world than selfless. Cherish the true friends you have. One true friend is worth more than a hundred selfish false friends.
Posted 22 August 2012 - 12:11 PM
But (there just HAD to be a "but" )
I have a bit different perspective... And, well, I hope you're not offended and will listen with an open mind...
Yes, there are jacka$$es out there...and, sadly, we all too often will find them amongst our friends and loved ones... Sad but true.
However... Sometimes people (some of "us") really are pains in the a$$. I know some of them, personally...
Now, you have to understand...I am quite sick...so I know that I am not as easy to accommodate as I used to be. Well, that's just the way it is. Now, if I have a friend or family member who is an outright a$$ then I have no trouble letting them know that, but if they are just innocently clueless I take that into account, too.
The truth is..."I" got sick... I absolutely expect love/kindness/consideration but it's not all about me...and it would be unfair of me to think that it is... Yes, I need assistance walking...yes, I have special dietary needs. But, my friends and family didn't stop being human beings with needs and feelings just because "I" got sick.
While I do have my moments where I need to vent or whine or just have a good cry, I try not to overwhelm them with it. If they, really, want to go somewhere that doesn't fit with "my" needs, I don't get worked up...I deal with it...sometimes I go...sometimes I don't.
I'm responsible for myself...and that, also, means that I, too, have to be a good friend. That means, to me, that I will make concessions that are necessary. Sometimes that's a gathering where "I" am not going to find it "easy"...sometimes I might have to sit and watch my hubby scarf down a big plate of poison (gluten) with a smile on my face, engaged in the moment (it's time "out" with the hubby...it's supposed to be enjoyable...for BOTH OF US.
For those of you with children (sons, daughters, nieces, nephews) whom you love...dearly... Do you ever like a little "easy time", "date night", trip to the store without temper tantrums and the never ending list of "needs"??? If you're honest, of course you do... It doesn't mean you don't love them...you're human.
If I've had a friend who didn't invite or include me...I ask "why". You see, those are the types of friendships I nurture. The answer will provide the next step...keeping the bond or pulling away. I, also, make sure to continue my friendships as they were "before Lisa got sick"...in other words, I'm still "me".
Please don't take this as an indictment of anyone here! I don't even know you... I just wanted to give something to think about.
All I'm trying to say is... Don't take any crap, but don't be the one giving it either. Know your worth...
Posted 22 August 2012 - 12:31 PM
Posted 22 August 2012 - 12:52 PM
Justlisa, I really appreciate your point of view. It is a hard lesson, but we all have to learn "It's not all about me". Of course there are jerks out there. Some people don't care for me because of my politics, some because of my personality, some for rreasons unknown to me. Cross them off and go on with the non-jerks. Oak trees may look strong, but a hard wind can take them down. Willows bend and snap back. Be a willow.
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