This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Food products like hot dogs, cookies and bread all have multiple ingredients which can play hell on a gut that is still struggling to heal. Stick with fresh, whole, clean foods for at least 6 months and then slowly introduce one of your favorite goodies, like a hot dog, and see how you do. If a food product has ingredients, then it is not a whole clean food. Bake a piece of chicken with some spices, roast or steam some veggies, bake a sweet potato & pour a little coconut oil on it. Yummy, good for you and ingredient free! Help for your healing gut!
This happened to me last week. Last time I was glutened was 2 years ago and I was so sick I wanted to curl up & die. Last week we ate out at out usual restaurant, I had my usual pasta dish and down at the bottom of the bowl was a wheat noodle. I looked at that & felt the cold chills of fear! Of course the manager was beside himself over how it could have happened, but long story short....I did not get sick. I was a little extra tired and blah feeling the next day, but nothing I could point my finger at and say glutened!! My only thought here is that maybe (I hope, I hope) my guts are finally healing. Not that I would ever knowingly cheat, just, hooray that I am healing.
Actually, St. Pete is where I was when I became so sick from Celiac that I lost my ability to work! Yep. Lost my job, my profession. I tried everything to get a diagnosis. I heard lots of "That's very interesting; but I don't know what it means." Gosh, I hope I never hear that again! Took me another 10 years and moving to another state to get properly diagnosed. Still unable to work.
I tell you this not to freak you out; but to impress upon you that Celiac and being gluten free are very, very serious things. Given your age, I'm certain your outcome will be much brighter. Much, much brighter.