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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Interpret Results Please
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7 posts in this topic

My 25 year old daughter was told the following was a negative result. ( I have celiac disease.) I am so confused. Test results are as follows: Immunoglobulin A 184 mg/dL reference 46-287

Tissue Transglutaminase IgA 37 units Negative less than 20 Units,

Weak Positive 20-30,

Positive more than 30

If positive is more than 30, how is a 37 negative. Please help.

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It isn't.

Find a new doctor and show him/her the results and request a biopsy for confirmation. They also did not run a complete Celiac panel.

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This is the current FULL celiac panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

Also can be termed this way:

Endomysial Antibody IgA

Tissue Transglutaminase IgA

GLIADIN IgG

GLIADIN IgA

Total Serum IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

And I agree with PricklyPear.

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I agree with the other posts. Yet - I'm curious if it was her doctor or perhaps a nurse or some other medical office personnel that told your daughter the results. If the result was typed the way you posted it - the first line has both her reading and the start of the ranges - thus putting the word "Negative" next to her result - which could have been misinterpreted - the test is DEFINITELY Positive. If it was a doctor that told her this was a negative result - I would find a new doctor immediately!

"Tissue Transglutaminase IgA 37 units Negative less than 20 Units"

In my 30s I ended up with cancer because someone incorrectly read my test results that indicated a pre-cancerous condition and told me ALL my tests were "normal" - ever since then I always get either hard or electronic copies of ALL medical testing for myself and my family.

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Excellent point Lisa.

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Thank you to those who responded to my posts. My daughter had the Full Celiac Panel and guess what....POSITIVE as we all knew it. Why is this such a batte to get a proper diagnosis. Even the gastro doctor told her prior to the test, she is almost certain it would be negative. If we had not pursued this issue she would still be causing damage. At least she finally feels vindicated, but what about those people who are not as diligent in their efforts. I waited 25+ years for my diagnosis, but I thought we had made progress on this front. Anyway...thank you so much for your support.

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Doctors are acting like this is a made up issue. I tried a new doctor, because of a gallbladder problem. (I had it removed.) The visit after having it removed he asked if I was going to try and eat gluten again. "Because it was probably your gallbladder causing the symptoms."

Needless to say I am looking for a new doctor.

Thank God you were diligent and looked over those test results. I don't understand why the second doctor was still expecting a negative result!!?

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    • Weird Reaction
      Hi Cristiana, You are quite right, there could be something wrong with the batch. I have often wondered this myself when I've had symptoms. A lot of manufacturers recall products when they find contamination issues, I often wonder though, how many products 'sneak' under the radar and no-one knows for sure; it could be the reason why so many of us wonder what we did to get 'glutened'. 
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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
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