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Interpret Results Please


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6 replies to this topic

#1 MMSS222

 
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Posted 22 August 2012 - 03:13 PM

My 25 year old daughter was told the following was a negative result. ( I have celiac disease.) I am so confused. Test results are as follows: Immunoglobulin A 184 mg/dL reference 46-287
Tissue Transglutaminase IgA 37 units Negative less than 20 Units,
Weak Positive 20-30,
Positive more than 30

If positive is more than 30, how is a 37 negative. Please help.
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#2 pricklypear1971

 
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Posted 22 August 2012 - 05:30 PM

It isn't.

Find a new doctor and show him/her the results and request a biopsy for confirmation. They also did not run a complete Celiac panel.
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Apparently there is nothing that cannot happen today. ~ Mark Twain

Probable Endometriosis, in remission from childbirth since 2002.
Hashimoto's DX 2005.
Gluten-Free since 6/2011.
DH (and therefore Celiac) dx from ND
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Responsive to iodine withdrawal for DH (see quote, above).

Genetic tests reveal half DQ2, half DQ8 - I'm a weird bird!

#3 squirmingitch

 
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Posted 22 August 2012 - 06:18 PM

This is the current FULL celiac panel:


Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

The DGP test was added recently to the full panel.


Also can be termed this way:

Endomysial Antibody IgA
Tissue Transglutaminase IgA
GLIADIN IgG
GLIADIN IgA
Total Serum IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG

And I agree with PricklyPear.
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#4 GottaSki

 
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Posted 22 August 2012 - 06:35 PM

I agree with the other posts. Yet - I'm curious if it was her doctor or perhaps a nurse or some other medical office personnel that told your daughter the results. If the result was typed the way you posted it - the first line has both her reading and the start of the ranges - thus putting the word "Negative" next to her result - which could have been misinterpreted - the test is DEFINITELY Positive. If it was a doctor that told her this was a negative result - I would find a new doctor immediately!

"Tissue Transglutaminase IgA 37 units Negative less than 20 Units"

In my 30s I ended up with cancer because someone incorrectly read my test results that indicated a pre-cancerous condition and told me ALL my tests were "normal" - ever since then I always get either hard or electronic copies of ALL medical testing for myself and my family.
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-Lisa

Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/25/13 - MCAD

Health history since celiac diagnosis became too long -- moved to the "about me" section of my profile

My children and I all have multiple copies of the genes for Celiac Disease, along with large variety of symptoms/resolution gluten-free

Current tally from me, three kids and two grands: 4 diagnosed with Celiac Disease, 2 NCGS

Get PROPERLY tested BEFORE REMOVING GLUTEN.

ALWAYS independently research health related information found on internet forums/blogs.

"LTES" a Gem :)


#5 squirmingitch

 
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Posted 22 August 2012 - 06:39 PM

Excellent point Lisa.
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Self diagnosed dh Sept. 2011~~~ confirmed dx July 18, 2012
Gluten free Dec. 2011
Soy free Dec. 2011
Hubs self diagnosed dh March 30, 2012
Hubs gluten free March 30, 2012

Summer 2013 We both have added back a little soy which is near unavoidable & we are doing okay with that small amount.

 


#6 MMSS222

 
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Posted 19 December 2012 - 07:36 AM

Thank you to those who responded to my posts. My daughter had the Full Celiac Panel and guess what....POSITIVE as we all knew it. Why is this such a batte to get a proper diagnosis. Even the gastro doctor told her prior to the test, she is almost certain it would be negative. If we had not pursued this issue she would still be causing damage. At least she finally feels vindicated, but what about those people who are not as diligent in their efforts. I waited 25+ years for my diagnosis, but I thought we had made progress on this front. Anyway...thank you so much for your support.
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#7 mommida

 
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Posted 20 December 2012 - 09:25 AM

Doctors are acting like this is a made up issue. I tried a new doctor, because of a gallbladder problem. (I had it removed.) The visit after having it removed he asked if I was going to try and eat gluten again. "Because it was probably your gallbladder causing the symptoms."

Needless to say I am looking for a new doctor.

Thank God you were diligent and looked over those test results. I don't understand why the second doctor was still expecting a negative result!!?
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Michigan




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