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Interpret Results Please
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7 posts in this topic

My 25 year old daughter was told the following was a negative result. ( I have celiac disease.) I am so confused. Test results are as follows: Immunoglobulin A 184 mg/dL reference 46-287

Tissue Transglutaminase IgA 37 units Negative less than 20 Units,

Weak Positive 20-30,

Positive more than 30

If positive is more than 30, how is a 37 negative. Please help.

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It isn't.

Find a new doctor and show him/her the results and request a biopsy for confirmation. They also did not run a complete Celiac panel.

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This is the current FULL celiac panel:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

The DGP test was added recently to the full panel.

Also can be termed this way:

Endomysial Antibody IgA

Tissue Transglutaminase IgA

GLIADIN IgG

GLIADIN IgA

Total Serum IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

And I agree with PricklyPear.

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I agree with the other posts. Yet - I'm curious if it was her doctor or perhaps a nurse or some other medical office personnel that told your daughter the results. If the result was typed the way you posted it - the first line has both her reading and the start of the ranges - thus putting the word "Negative" next to her result - which could have been misinterpreted - the test is DEFINITELY Positive. If it was a doctor that told her this was a negative result - I would find a new doctor immediately!

"Tissue Transglutaminase IgA 37 units Negative less than 20 Units"

In my 30s I ended up with cancer because someone incorrectly read my test results that indicated a pre-cancerous condition and told me ALL my tests were "normal" - ever since then I always get either hard or electronic copies of ALL medical testing for myself and my family.

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Excellent point Lisa.

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Thank you to those who responded to my posts. My daughter had the Full Celiac Panel and guess what....POSITIVE as we all knew it. Why is this such a batte to get a proper diagnosis. Even the gastro doctor told her prior to the test, she is almost certain it would be negative. If we had not pursued this issue she would still be causing damage. At least she finally feels vindicated, but what about those people who are not as diligent in their efforts. I waited 25+ years for my diagnosis, but I thought we had made progress on this front. Anyway...thank you so much for your support.

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Doctors are acting like this is a made up issue. I tried a new doctor, because of a gallbladder problem. (I had it removed.) The visit after having it removed he asked if I was going to try and eat gluten again. "Because it was probably your gallbladder causing the symptoms."

Needless to say I am looking for a new doctor.

Thank God you were diligent and looked over those test results. I don't understand why the second doctor was still expecting a negative result!!?

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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