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Will My Daughter Be Able To Have Children Of Her Own With This.disease.
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I have a daughter who just found out she has Celiac Disease. She is berg upset and is wanting to know if she will be able to have her own children one day, and if the baby will then carry the same Disease? I would love all the in put on this subject please and thank you so much.

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As long as she is following the gluten free diet, her fertility will not be impacted by having celiac.

It's genetic, so she can pass the genes on to her children, but that is not a guarantee they will develop celiac disease. It requires both the genes AND a trigger. And even if she does, it's not the end of the world to eat gluten free.

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I have celiac disease and am currently 29 1/2 weeks pregnant and very healthy, and there are lots of other moms on the board :) your daughter may or may not pass it on, but she can certainly have healthy children in her future if she so desires. There is a leaning curve, but living gluten-free is fairly easy once you get used to it. Good luck to you and your daughter!

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I just posted on another thread but my sister and I have kids and went through pregnancies without being diagnosed! We weren't gluten free while pregnant because we didn't know. Having children with Celiac disease is completely possible. My sister has 3 kids and I have 2. In both our cases, only one child has celiac (both boys).

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I have 2 beautiful children and one on the way. They were both born before I was diagnosed and both have celiacs as well.

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We spent 3 years going thru infertility treatment before we discovered the problem was my celiac's disease. After 30 days 100% gluten free, we conceived our first child NATURALLY! Not only can she get pregnant, many of us find it fixes our infertility :)

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I have two wonderful boys I conceived before being diagnosed, though I believe I've had celiac since I was at least six. I think as long as she stays healthy and on the diet she should have every reason to expect to be able to conceive and have healthy babies. My first born is celiac, which is how I came to my diagnosis, but I am thinking about having a third and the thought of having another child with celiac doesn't really phase me. Maybe I'm too early in my diagnosis to have it hit me very hard but I don't find the diet to be that big of a deal.

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I had one misccarriage and after that 5 healthy births when I had undiagnosed celiac. After that I had 12+ years of infertility. I think it is possible to have babies with celiac. You want healthy ones though, so follow the diet. I didn't know I had celiac at the time.

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I've been a celiac for 9 years and am 39 weeks pregnant today. As long as she follows her diet and stays healthy, she should have no problems having children. Also, there is no way of knowing if the child will have celiac...it's a trial and error process once they start eating solid foods.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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