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Western Pennsylvania Celiacs


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12 replies to this topic

#1 Chris Anne

 
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Posted 28 August 2012 - 09:26 AM

My name is Chris. I am 10 months diagnosed. Looking for people in my area to chat with.
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Chris Burrelli

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#2 mamaw

 
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Posted 28 August 2012 - 06:06 PM

Hi Chris

I'm close to the Pittsburgh area...been gluten-free for about ten years now. I'm the founder of a independent support group....run a mini coop & do gluten-free testing.... for a few companies...





blessings


mamaw
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#3 a1956chill

 
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Posted 29 August 2012 - 01:12 AM

Hi Chris,

I am in Northwestern Pa, Nice to "meet" you :)
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Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#4 mamaw

 
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Posted 29 August 2012 - 10:20 AM

Hi Chill



How are you? Better I hope!!!!
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#5 a1956chill

 
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Posted 29 August 2012 - 10:44 AM

Hi Chill



How are you? Better I hope!!!!

Much better Mamaw :D How about you, How have you been??
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Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#6 mamaw

 
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Posted 29 August 2012 - 10:57 AM

I'm good having some thyroid med issues but it is a endo problem not giving enough since I have no gland left... Been busy canning a ton of veggies.. Getting ready for two gluten-free events in Ohio in Sept then at end of Sept we head to Baltimore for four days for the food expo & then to Philly for the Appetite For Awareness gluten-free event... It is soooo ooo much fun.. If you never attended you should its worth the trip...

Then in October a few more events to attend....Fall is my busy time.....events & doing the gluten-free food orders.....
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#7 a1956chill

 
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Posted 29 August 2012 - 11:35 AM

Fall is my most favorite time of year in western Pa :D
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Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#8 mamaw

 
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Posted 29 August 2012 - 11:40 AM

Me too! & early spring. I don't like the hot, humid summers...
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#9 Chris Anne

 
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Posted 29 August 2012 - 08:52 PM

I'm good having some thyroid med issues but it is a endo problem not giving enough since I have no gland left... Been busy canning a ton of veggies.. Getting ready for two gluten-free events in Ohio in Sept then at end of Sept we head to Baltimore for four days for the food expo & then to Philly for the Appetite For Awareness gluten-free event... It is soooo ooo much fun.. If you never attended you should its worth the trip...

Then in October a few more events to attend....Fall is my busy time.....events & doing the gluten-free food orders.....

Hi! I am and hour and a half north of Pittsburgh, originally from near Monroeville. Do you do any of these events in Pgh. area? I would love to attend but not sure about travelling to Philly. Hope your thyroid issue gets to be better for you! Look forward to chatting with both of you!
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Chris Burrelli

#10 mamaw

 
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Posted 30 August 2012 - 05:23 AM

Chris

I just sent you a private e-mail.
Yes, there are closer events. The Raisin Rack in Canton isn't that far away. That is where I shop... Sept 8 is when this store has a small sampling day, nothing big but a great store..Then on Sept 9th in Solon, Ohio ( near Cleveland area) there is a event with speakers , vendors/bakers & gluten-free product to purchase....this is my first time at this event as a baker/vendor...

Then in October ther is an event in Cranberry Twp , very close. I will be working that event as well. Oct 27th from 8:30 to well sorry I just forgot!...This is a new one so not all details are worked out yet...Four Points Sheridan.........

This area is not very popular with events....I learned a long time ago that we need to be a road runner to stock up on gluten-free... There are four of us gluten-free & more that needs to be!!!!

I can give you a heads up on everything around here & then other states too....

There's is so much new gluten-free foods these days but still the nasty stuff is still out there too... years ago we had no choices so these days are wonderful for us older celiac faces....

By the way Gaint Eagle is now carrying Goodbye Gluten Bread for $5..49 a loaf, good moist bread that needs no heating!!!!



mamaw
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#11 a1956chill

 
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Posted 30 August 2012 - 06:35 AM

Hi! I am and hour and a half north of Pittsburgh,

You are pretty close to me then, sent you a PM :)
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Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#12 ohio nanny

 
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Posted 28 September 2012 - 04:28 AM

If you are near the Hermitage area, there is a support group that I belong to. We meet the second Thursday of each month at 6:30 PM. I was diagnosed 3 months ago, and everyone has been fantastic at this group. It's so comforting to talk to someone else who is going through the same issues. We'd love to have you at our meetings.
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#13 jaynekellimusic

 
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Posted 02 October 2012 - 07:01 PM

Can anyone suggest some great Gluten Free restaurants near Jim Thorpe, PA and Bethlehem, PA?
I'll be on tour there mid-October and run into trouble finding gluten-free places on the road sometimes.

Thanks so much,
Jayne
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