Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac: The Trendy Disease For Rich White People - Science 2.0
0

42 posts in this topic

Celiac.com

Celiac: The Trendy Disease For Rich White People

Science 2.0

Unfortunately, some people really do have Celiac disease, an actual immune disorder - gluten is like poison to them, not an 'I feel better if I don't eat a bagel' issue. Those sufferers are not the laughable 1% suddenly claiming they have Celiac ...

The Celiac Disease Confusion Celiac.com

What Is... Gluten-Free? The Daily meal

The National Foundation for Celiac Awareness Partners with Walmart for Gluten ... Equities.com

WOWT  - Baxter Bulletin  - Sunrise Senior Living Blog (blog)

all 17 news articles »

View the full article

0

Share this post


Link to post
Share on other sites


Ads by Google:

Oh, those people, again.

He hit all the pet lobbyist talking points, it's just a matter of whether I can determine he ("Hank Campbell") is a real or fake identity, and his relationship with the others in his pro - GMO "troll" group who get paid to do this. This is probably their response to the New York Times opinion piece that was published this weekend, about the auto immune theories - inflammation in the womb theory of causes of autism, and how the genes for celiac and diabetes are linked, and the increased incidence of autism rates.

While it is difficult to believe there is an organized "science bloggers" group that is tasked with doing this attack on celiac disease and gluten intolerant medical patients, by outright MOCKING them as neurotic food diletantes and dabblers in a lifestyle, this is a fine example of it.

So it would seem, at least according to trends about other beliefs. Along with believing more in UFOs, psychics and astrology than right-wing people, left-wing people also believe they are hyper-sensitive to food. That could be genetic and may lend credence to often-dismissed kooky claims that they can taste GMOs or are allergic to them. Same with vaccines. Anti-vaccine people are overwhelmingly left-wing; while a right-wing state such as Mississippi is almost at 100% vaccination, left-wing Washington State is sinking below herd immunity levels and kindergartens in Seattle report 25% non-vaccinated children. Maybe they don't need vaccines the way genetically inferior right-wing people do. It could be that left-wing people have co-evolved a much stronger immune system to go along with their super-smart brains. Well, except for celiac disease, they have a super-strong immune system.

I've seen solicitations on the internet for writers to write "science" blogs to bolster the vaccination industry, and this is what you get.

0

Share this post


Link to post
Share on other sites

This is the dumbest article I have read on celiac. That picture of the lady in food with the caption "she doesn't have a rash...she must be a republican!" was an insult. Obviously they didn't see me eating my gluten free brownie last night while watching the RNC convention. Haha. I can't believe people publish this junk.

0

Share this post


Link to post
Share on other sites

This is the dumbest article I have read on celiac. That picture of the lady in food with the caption "she doesn't have a rash...she must be a republican!" was an insult. Obviously they didn't see me eating my gluten free brownie last night while watching the RNC convention. Haha. I can't believe people publish this junk.

The whole article is an insult - especially since it's published on a 'science' website. The guy obviously has some weird political axe to grind. Not sure why, since both me (very liberal) and my aunt (evangelical conservative) suffer from it, lol.

But the part that really made me mad is that his scientific facts are just plain wrong. No testing for celiac disease? Um, since when? No difference between gluten intolerance and celiac? Again, since when? I don't understand why people choose to pick on this - it's like saying diabetics trying to eat low carb are just following that trendy Atkins diet.

0

Share this post


Link to post
Share on other sites

Glad to hear a housewife with teenagers in the middle of the country is trendy! Look for my pic on People magazine or the National Inquirer soon!

"Karen G Shocker! Is that really a gluten-free cupcake?"

2

Share this post


Link to post
Share on other sites




I think the author was trying to be really sarcastic here and it just kind of flew over most people's heads. I think his main point was that not all the people who are gluten-free need to be, and that it's an easy to claim as a self-diagnosis. Unfortunately the article wasn't written well enough to make that clear.

He does claim that more people than necessary are going gluten-free, which on an individual basis is sort of meaningless. If someone finds that if they do X (in this case a specific diet) and they feel better, then the results justify the methods, even if it's indirect, how can you argue that? He may have a point that people actively seek a reason to feel the way they do and then clamp on to it, whether it's gluten, ADD, vaccines, or radio waves from your cell phone. If gluten-free is the new way to get attention, we just have to bear it for now.

I think he was also trying to point out that all this causes a certain malaise to start creeping into society. Is Lady Gaga gluten-sensitive? Hell if I or anyone else knows, really. And maybe that's the problem.

As for the losing weight thing, a gluten-free diet is no better or worse for you in general than regular food, and that's the biggest misconception, but I see how it could come about.

"I stopped eating four donuts for breakfast and drinking a six pack of beer every night, and I lost 50 pounds! Must have been the gluten!"

You get my point...

0

Share this post


Link to post
Share on other sites

I think the author was trying to be really sarcastic here and it just kind of flew over most people's heads.

...

I take it you didn't also read the comments section, w/ the author's replies?

0

Share this post


Link to post
Share on other sites

The author's comments have gone from bad to worse. He and his sidekick are tag teaming with ridiculous answers that are not based in science. It seems as though they are intentionally stirring the pot with their responses. The author has been asked at least twice to provide information regarding where he is coming up with the multitudes of people that are faking Celiac Disease thus causing harm to those of us that are dx'd.

And I love this...the author called one of the responders to his article an "anti-scientific crank" so I had to open my big mouth:

"Pot-Kettle. It seems that you are the anti-scientific crank that is promoting nonsense that is not based on peer-reviewed scientific publications, but your own personal opinion."

To which the author responded:

"There is no peer reviewed evidence showing millions of people have Celiac disease. It is incredibly disrespectful of you, if you are one of the pretenders who resents being called out rather than a misguided person circling the wagons around faddish people who want attention, to demean people who have Celiac disease by making anyone who claims to have it seem legitimate."

Yay - turns out I must not have Celiac Disease because I dared to asked him to back up the premise of his article :P

0

Share this post


Link to post
Share on other sites

No, I didn't read all the posts and responses. Anyone who blogs and responds that much is probably trolling pretty hard. Also noted that he's trying to promote a book elsewhere so he's probably just trying to get as many hits as possible. See the previous idiotic blog about coffee from a few months ago.

I'm not sure where the author is seeing all these "fake Celiacs". I've heard of lots of celebs and such going gluten-free but can't name one that claims to be a Celiac without a diagnosis.

For a "scientist" this author doesn't seem to understand some basic principles, like that you can't disprove something by demanding evidence of it. A lot of people go gluten-free based on deductive (rather than objective) reasoning. "I feel better without gluten, ergo I should not eat it." Since there's no way to prove it objectively, you can't rule it out.

It seems any acutal points he may have had he totally voided in his comments.

1

Share this post


Link to post
Share on other sites

I need a shovel. There is a lot of $h!t here. I hope I don't get any on my boots.

DSCF0416.jpg

1

Share this post


Link to post
Share on other sites

He seems to be a bitter individual. i believe he was spurned by a gluten free individual. he has now chosen to lash out at others.

Does he expect every gluten free person to whip out doctor's notes to prove diagnoses? humans have free will to reject amorous advances and eat what we choose. LOL

0

Share this post


Link to post
Share on other sites

Trying to turn it into a right/eft thing was ridiculously stupid. I wanted to comment but can't read any of the CAPTCHA codes I got.

richard

0

Share this post


Link to post
Share on other sites

He made the first mistake by using the ridiculous title he did– and it went downhill from there. There’s that word “trendy” again.

I am not rich, buddy; we spent all our savings trying to figure out what was killing me for 3 years.

From what I gathered from his article and then,later in his comments defending himself from the bruhaha he instigated,

he honestly thinks he is doing us a favor by “calling out” people for proclaiming themselves a celiac? (when they have not been diagnosed)

and

he honestly believes that there is no such thing as NCGI.

He is not helping. He is wrong on so many levels— and I hope he continues to receive backlash for his asinine article.

Here is what I wish for most of all:

I am begging the blogging world, the journalists, the bimbos on the Today show and anyone else out there who thinks they are helping the cause for celiac awareness to please, please stop using the using the word “trendy” and celiac in the same sentence.

If you do not understand celiac disease, please, shut the hell up.

I have enough trouble getting someone to take me seriously (and not roll their eyes and sigh with frustration or scoff at me ) when I ask for a gluten free menu because I need it to keep myself alive and healthy.

I am still recovering from a rare outing at a restaurant–something I did because I was traveling and I wanted to trust this place– and here I am, 11 days later still in pain.

My guess is? That server could give two shytes about my need to be gluten-free because she did not take my request seriously— because it IS labeled a “trend”.

I am sick, suffering a major migraine for 3 days, severe increased muscle/bone & tendon pain, dizziness, ataxia, TMJ pain, heart palps, those lovely sores on my face and scalp, ITCHINESS , burning nerves, fatigue, NAUSEA, the big D and feeling really foggy and weak, short of breath, insomnia, yada yada, yada….

Meanwhile, I finally did something “productive” today besides

pat the cat and water my plants and wear sunglasses inside the house because my eyes hurt and the vertigo is awful and I wonder….

does anyone really care if one more celebrity goes gluten-free to “lose weight”.??

Stupid Beeyutches!–come over here and watch me lose weight as I live on the toilet and develop an indented red ring around my butt and have my legs go numb. You can hold the cold cloth on my head–

oh, and the heat pack on my back needs propping, too.

Don’t bother combing my hair–the strands will just fall out everywhere anyway….

yeah, that’s me–still the trendiest person alive.

2

Share this post


Link to post
Share on other sites

Oh Irish - so sorry you got hit - beyond frustrating and always unfair. Hope you are feeling better quickly!

Loved your post - yes we are indeed a trendy bunch ;)

0

Share this post


Link to post
Share on other sites

Lately I say things like, "When I was diagnosed with celiac disease...", even though I never got tested by a doctor. I am SELF diagnosed, but if I say that no one takes me seriously. The way I say it, I'm not lying exactly, just heading off the misconceptions.

3

Share this post


Link to post
Share on other sites

Lately I say things like, "When I was diagnosed with celiac disease...", even though I never got tested by a doctor. I am SELF diagnosed, but if I say that no one takes me seriously. The way I say it, I'm not lying exactly, just heading off the misconceptions.

Brilliant :)

You are exactly whom I thought of when I read his ridiculous rant. There are many folks like you with no doubt that gluten is the root of their health problems. If it looks like a duck and quacks like a duck is it faking being a duck? I think not.

Speaking as a mother of one diagnosed duckling along with a couple undiagnosed ducklings -- they are all gluten-free ducks and have improved health to show for it.

0

Share this post


Link to post
Share on other sites

http://www.science20.com/science_20/celiac_trendy_disease_rich_white_people-93422">

<font size="-1">Unfortunately, some people really do have <b>Celiac</b> disease, an actual immune disorder - gluten is like poison to them, not an 'I feel better if I don't eat a bagel' issue. Those sufferers are not the laughable 1% suddenly claiming they have <b>Celiac</b>

href="http://news.google.com/news/url?sa=t&fd=R&usg=AFQjCNGNOHo07YVCIc8xx2rQys1e34jvYw&url=

...

View the full article

Don't most of us agree that this article deserves no mention here at all?

Did it sneak in by pretending to be scientific via its hosting on a blog called Science2.0?

I'm thinking these 'Publications' posts are auto-generated, so its initial posting is a price paid for the convenience. But if something as ridiculous as this makes it through again, wouldn't we be better off if a mod or Scott edited out links to such articles? Nothing to learn there & no point in giving traffic to a nonsense site/article.

Or maybe it's just too late to delete it once ppl are commenting on it, I don't know. I see nearly all of the posts in the Publications section & now I'm ready to commend the many many posts w/OUT bs nonsense useless articles.

Surprised more haven't snuck through whatever path "Science"2.0 took.

1

Share this post


Link to post
Share on other sites

Don't most of us agree that this article deserves no mention here at all?

Did it sneak in by pretending to be scientific via its hosting on a blog called Science2.0?

I'm thinking these 'Publications' posts are auto-generated, so its initial posting is a price paid for the convenience. But if something as ridiculous as this makes it through again, wouldn't we be better off if a mod or Scott edited out links to such articles? Nothing to learn there & no point in giving traffic to a nonsense site/article.

Or maybe it's just too late to delete it once ppl are commenting on it, I don't know. I see nearly all of the posts in the Publications section & now I'm ready to commend the many many posts w/OUT bs nonsense useless articles.

Surprised more haven't snuck through whatever path "Science"2.0 took.

If you wish to recommend a way to make this site better, why don't you PM Scott with your suggestions?

0

Share this post


Link to post
Share on other sites

Moderators cannot edit out publications that are posted by admin.

I see ones like "Miley Cryus goes Gluten free" and think, yeah so?

This blog/article is making news all over twitter and the internet (according to the Gluten Dude today) and I think, is relevant to the celiac community. The "trendy" aspect is something we have to deal with, I'm afraid.

I suggest contacting Scott via PM with your concerns.

I suspect this guy is not the only one with a perverted idea of celiac, gluten intolerance and the so-called "trendiness" of a gluten-free diet in Hollywood.

I thought this article was worthy of comment. That's why I made one.

0

Share this post


Link to post
Share on other sites

I initially thought this guy's article wasn't worthy of a response, but then I read the first few comments where he was slamming those offering actual facts regarding Celiac.

I commented a few times because the more I thought about it, the more irritated I became that someone with zero experience regarding Celiac Disease or Gluten Intolerance may read and believe this garbage spinning around in hyperspace.

Should someone stumble upon his article now they have an opportunity to learn actual facts regarding Celiac Disease and Gluten Intolerance posted in the comments section.

That is the best we can do - as the idiots that post similar crap are not likely to change their opinion, at least their readers have the opportunity to decide for themselves if accurate information is added to the post.

0

Share this post


Link to post
Share on other sites

Hey I'm just saying there have been thousands of similarly moronic, useless articles about gluten-free on all sorts of blogs that WEREN'T given the publicity of a post here.

Why this one?

My googling of "science 2.0" & gluten doesn't support the idea that this article is making news all over the internet.

As far as my starting w/ a PM to Scott first instead of asking the forum community whether they agree w/ me, I'm not sure I understand the downside. If the majority of the community WANTS the Publications section to include inane misguidedly-political links, I'd accept it.

It's not like I'd be expecting Scott to act on my sole concerns in the first place. In contrast, the forum community's thoughts on the matter would be an actual factor.

0

Share this post


Link to post
Share on other sites

Gotta ski?...amen ;)

Tom,

I am not surprised that you disagree with anything I say. That's what always happens. So be it.

From the lack of responses to the number of publications that ARE posted on a daily basis, I would say that the majority of the members here do not read many of the publications as they are too busy, too sick or too busy still figuring out why they are sick.

Those of us who responded to this one --just felt like it.

If you have a problem with the article, just disregard it ---or take it up with Scott.

It's not the "Mods' job" to stop articles coming in.

0

Share this post


Link to post
Share on other sites

I think this is just one of those people who like to argue for fun. Correlating gluten problems with political leanings is just so silly it appears to be meant to incite arguments. I don't really get it but these people are on the internet. Sometimes they come on here. I remember two that openly admitted they were here because they liked to argue. Next week the guy will be saying kids have diabetes because there mothers ate too many sweets while pregnant and voting for a liberal! :o

0

Share this post


Link to post
Share on other sites

Hey I'm just saying there have been thousands of similarly moronic, useless articles about gluten-free on all sorts of blogs that WEREN'T given the publicity of a post here.

Why this one?

My googling of "science 2.0" & gluten doesn't support the idea that this article is making news all over the internet.

As far as my starting w/ a PM to Scott first instead of asking the forum community whether they agree w/ me, I'm not sure I understand the downside. If the majority of the community WANTS the Publications section to include inane misguidedly-political links, I'd accept it.

It's not like I'd be expecting Scott to act on my sole concerns in the first place. In contrast, the forum community's thoughts on the matter would be an actual factor.

I'm saying that if you have a problem with the "moronic, useless articles" that appear here, and you really want to improve the site, you would discuss this with the person who is in charge of what goes on this forum site.

0

Share this post


Link to post
Share on other sites

...

Should someone stumble upon his article now they have an opportunity to learn actual facts regarding Celiac Disease and Gluten Intolerance posted in the comments section.

...

Maybe I'm misreading this, but is it saying that the comments section there only has some fact-based commenters because of the link in this thread here?

That seems unlikely.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,642
    • Total Posts
      921,569
  • Topics

  • Posts

    • Hey there! Welcome to the club you never wanted to be a part of. Boy, you are certainly throwing yourself one heck of a bang up pity party aren't you? PLEASE do not take that as a put down! I don't think there is a single solitary one of us who hasn't thrown ourselves at least 1 pity party. I know I've thrown at least 3. Oh, & crying meltdowns in the grocery store? Every one has been there, done that one too. It's all part of the process just like cyclinglady said. Ravenwoodglass is right on too about how it can mess with your head. Boy! Can it ever mess with your head! You really have been given excellent info. by all who have answered. I want to touch on something that hasn't been addressed yet but you mentioned it and that is kissing. You might call me an old lady as I'm just shy of 60 but I'm also a child of the 60's so remember that when you read what I'm going to tell you. BTW, I'm married to the same person, my only marriage, for 43 years. Anyone who cuts & runs because they have to brush their teeth before kissing you is not worth 2 minutes of your time and you are well rid of them! Be thankful that you have this "screening tool" because it will save you a lot of wasted time. If they won't even give you a chance when they hear about the precautions you have to take then they aren't worth a damn! Imagine someone like that standing by your side when times get tough. You can't can you? That's because they won't and you want a true partner who will support you and hang in there through the challenges we face in life & believe me, you will both face many life challenges.  Cooking. You don't have to be a gourmet. Cook simple. You know how to boil & scramble & fry eggs right? Only takes a couple minutes. Veggies? Aw heck, nuke 'em OR throw them on a baking pan spritz them with olive oil & spices of your choice & stick them in the oven. Smoothies are easy. Fresh fruit is well, fresh fruit - easy - peel it & eat it or just pop it in your mouth. Sweet potatoes can be nuked too & are wonderful for you. Salads are easy. Nut butters are a great source of protein. Karen had some great examples in her post too. Her "attitude adjustment" tips are great as well.  
    • I was only asking because when ferritin is low that you can experience hair loss/fatigue etc. even if your other iron levels are in range. This just happened to me so I thought I would share just in case it helps you. Ferritin should be above 50 to be optimal, not just "in range."  I've been on iron supplements and much better now. This may not be your problem at all, but I would have them check your ferritin levels. Low iron or anemia is common with celiac. The ferritin test is measuring how much iron is stored in your body. FYi: Iron binding capacity is really telling you how much protein your liver is making in order to carry that iron around. Usually, iron binding capacity will be higher in the range when iron is low. Edit: Also my blood pressure was low when my ferritin level got very low.
    • Hello I'm happy to join, any help is greatly appreciated as it can be difficult by times for sure. Unfortunately, I have been told my doctor has definitely not been doing anything correctly and very backwards about Alot of things. I live in canada, and there are celiac support groups I have found but I am about 2 hours away from any. I live in a pretty rural area. Although,  I have still received some help from them , they prefer a diagnosis before helping out to much. My doctor has me on a waiting list to see a gastrointestinal specialist but whenever I called her office to inquire about an appointment time I was told there was a very long wait and that I was considered to be a non emergency. So I am waiting to get an appointment. I have seen a dermatoligist for some of my rashes and she said it was dermatitis and gave me different creams for them.  It is frustrating because I don't know how to go about getting a actual diagnosis besides this biopsy. I was told to request a different specialist, but supposedly there is a waiting period for most in our area. 
    • Thanks for all of the replies. I've just found out I'm not getting to see a dietician because of not having a definite diagnosis which is another blow. I've had loads of bloods done but they just say they're all normal. I did have low vitamin D and high parathyroid but it's sorted itself out after a course of high dose vitamin D and they're not checking it again for a year. No chance of getting referred to endocrinology, gastro won't do it and neither will my gp. I've tried giving up coffee and all fizzy juice and it hasn't made a difference. I'm exhausted and scared and still have no clue what to do next. My gp has zero experience dealing with this type of thing - last time I was there she said it could be because I've restricted my diet too much and I should eat more gluten-free replacement products - everything I've read online says this is the worst thing to do! I'm asking for a copy of the last blood results this week so I can go through them myself but other than that I'm pretty stuck. 
    • I really am iffy on talking about this side of my gluten issues, I think I am about to ruin my reputation on this forum coming about as some extreme crazy guy saying this but I wanted to get this off my chest and perhaps see if anyone else might share a similar trauma. I get emotional recalling it, this side of my reactions, as it is most ingrained and very traumatizing experience, and I am not proud of it as the mentality I have now disgust me but I am going to come out about it. One of the scariest things in this world is when your own mind turns against you, when you can not think about what you want to think about, when you can not do what you know you should be able to do. When I got glutened really bad these where things I felt with my own mind would start looping, and thoughts would not come together. I would loose comprehension, feel like I know I should be able to think about something but my mind was not working. The same thing looped over and over and over like a broken record, This led to anger, anxiety, depression, panic, top it off with loss of feeling in my hands and feet, and the pains in the gut......it was a nightmare. I would go as far as beating my head against walls and punching them out of frustration as to why my own body and mind where not working, I just wanted it to end the pain to stop. I still have scars on my fist from punching into a nail in a stud once and kept going.....I scared everyone and myself distanced my self from loved ones. And started running a bucket list accepting that I was going to die soon. Hell to this day parts of the brain damage seem to be permanent as I can no longer do computer programing or some forms of math, they just no longer make any sense or connect. Then we learned what was causing it, and once the symptoms started to fade, I would get very angry if someone in the shared house did something stupid and got me sick again. The fear of going back to that caused violent and drastic actions to get away from what was making me sick. The sheer fear of my own mind turning on me led me to drastic actions to prevent it, throwing everything away I thought could make me sick, making sure no one else used that kitchen, used freezer paper and gloves when fixing my foods and working in there. I really destroyed and burned all bridges I had then and alienated myself from others. In the end it motivated me to learn how to cook, to get and renovate my own apartment in a building downtown, and start a business to pay for my new diet, by selling safe food to others with this issues locally at farmer markets. But it changed me on a very deep level, that traumatic experience to this day I have a issue looking at others and dealing with other humans who eat that stuff.......the stuff that breaks my mind and body so horrifically. If I have to compare it to something its like watching aliens drinking antifreeze and eating poison.....it causes a subconscious level of disgust and slight envy. I really can not even look at the stuff without recall what it does and feeling a twitch. I know I am the alien here, but it feels vise versa, and I look down on the normal people as odd creatures.  I go to the store and find myself overly avoiding contamination, keeping stuff in my own bags, asking the cashier to scan and bag it as I pass it not letting it touch that flour I see on the belt. I am hyper sensitive to the stuff I know and that fear semi dominates my mind as crazy as it sounds.  I am recovering and am forcing myself to try to mingle with other humans overlooking that one thing, but that deep rooted trauma still flares up as a protective measure especially around foods.  I could talk on and on about the other side effects but this one is the hardest to talk about it, and I feel others might be able to relate to it.    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,648
    • Most Online
      3,093

    Newest Member
    Mileenabug
    Joined