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Celiac: The Trendy Disease For Rich White People - Science 2.0


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#16 GottaSki

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Posted 31 August 2012 - 11:43 AM

Lately I say things like, "When I was diagnosed with celiac disease...", even though I never got tested by a doctor. I am SELF diagnosed, but if I say that no one takes me seriously. The way I say it, I'm not lying exactly, just heading off the misconceptions.

Brilliant :)

You are exactly whom I thought of when I read his ridiculous rant. There are many folks like you with no doubt that gluten is the root of their health problems. If it looks like a duck and quacks like a duck is it faking being a duck? I think not.

Speaking as a mother of one diagnosed duckling along with a couple undiagnosed ducklings -- they are all gluten-free ducks and have improved health to show for it.
  • 0

-Lisa



Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration

maybe one good hour per day for ~17 months

8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods

only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE

3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.

11/15/12 - Improving once again - Almonds back - Eggs gone

12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...

...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.

If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!

This stubbornly tenacious feisty optimist is vertical once again.

Celiac.com - Celiac Disease Board Moderator


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#17 tom

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Posted 31 August 2012 - 02:07 PM

http://www.science20.com/science_20/celiac_trendy_disease_rich_white_people-93422">

<font size="-1">Unfortunately, some people really do have <b>Celiac</b> disease, an actual immune disorder - gluten is like poison to them, not an 'I feel better if I don't eat a bagel' issue. Those sufferers are not the laughable 1% suddenly claiming they have <b>Celiac</b>
href="http://news.google.c...ys1e34jvYw&url=
...
View the full article

Don't most of us agree that this article deserves no mention here at all?
Did it sneak in by pretending to be scientific via its hosting on a blog called Science2.0?
I'm thinking these 'Publications' posts are auto-generated, so its initial posting is a price paid for the convenience. But if something as ridiculous as this makes it through again, wouldn't we be better off if a mod or Scott edited out links to such articles? Nothing to learn there & no point in giving traffic to a nonsense site/article.
Or maybe it's just too late to delete it once ppl are commenting on it, I don't know. I see nearly all of the posts in the Publications section & now I'm ready to commend the many many posts w/OUT bs nonsense useless articles.
Surprised more haven't snuck through whatever path "Science"2.0 took.
  • 0
>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#18 kareng

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Posted 31 August 2012 - 02:17 PM

Don't most of us agree that this article deserves no mention here at all?
Did it sneak in by pretending to be scientific via its hosting on a blog called Science2.0?
I'm thinking these 'Publications' posts are auto-generated, so its initial posting is a price paid for the convenience. But if something as ridiculous as this makes it through again, wouldn't we be better off if a mod or Scott edited out links to such articles? Nothing to learn there & no point in giving traffic to a nonsense site/article.
Or maybe it's just too late to delete it once ppl are commenting on it, I don't know. I see nearly all of the posts in the Publications section & now I'm ready to commend the many many posts w/OUT bs nonsense useless articles.
Surprised more haven't snuck through whatever path "Science"2.0 took.



If you wish to recommend a way to make this site better, why don't you PM Scott with your suggestions?
  • 0

Celiac.com - Celiac Disease Board Moderator

"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party"  - Ron White
 

""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy

 

 

“Life may not be the party that we hoped for…But while we’re here, we should dance.”

 

 

 

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#19 IrishHeart

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Posted 31 August 2012 - 02:28 PM

Moderators cannot edit out publications that are posted by admin.

I see ones like "Miley Cryus goes Gluten free" and think, yeah so?

This blog/article is making news all over twitter and the internet (according to the Gluten Dude today) and I think, is relevant to the celiac community. The "trendy" aspect is something we have to deal with, I'm afraid.

I suggest contacting Scott via PM with your concerns.

I suspect this guy is not the only one with a perverted idea of celiac, gluten intolerance and the so-called "trendiness" of a gluten-free diet in Hollywood.

I thought this article was worthy of comment. That's why I made one.
  • 0

 "Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

 

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

 

 

 

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.  bliss-smiley-emoticon.gif

 

Celiac.com - Celiac Disease Board Moderator


#20 GottaSki

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Posted 31 August 2012 - 03:20 PM

I initially thought this guy's article wasn't worthy of a response, but then I read the first few comments where he was slamming those offering actual facts regarding Celiac.

I commented a few times because the more I thought about it, the more irritated I became that someone with zero experience regarding Celiac Disease or Gluten Intolerance may read and believe this garbage spinning around in hyperspace.

Should someone stumble upon his article now they have an opportunity to learn actual facts regarding Celiac Disease and Gluten Intolerance posted in the comments section.

That is the best we can do - as the idiots that post similar crap are not likely to change their opinion, at least their readers have the opportunity to decide for themselves if accurate information is added to the post.
  • 0

-Lisa



Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration

maybe one good hour per day for ~17 months

8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods

only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE

3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.

11/15/12 - Improving once again - Almonds back - Eggs gone

12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...

...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.

If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!

This stubbornly tenacious feisty optimist is vertical once again.

Celiac.com - Celiac Disease Board Moderator


#21 tom

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Posted 31 August 2012 - 03:28 PM

Hey I'm just saying there have been thousands of similarly moronic, useless articles about gluten-free on all sorts of blogs that WEREN'T given the publicity of a post here.
Why this one?

My googling of "science 2.0" & gluten doesn't support the idea that this article is making news all over the internet.

As far as my starting w/ a PM to Scott first instead of asking the forum community whether they agree w/ me, I'm not sure I understand the downside. If the majority of the community WANTS the Publications section to include inane misguidedly-political links, I'd accept it.
It's not like I'd be expecting Scott to act on my sole concerns in the first place. In contrast, the forum community's thoughts on the matter would be an actual factor.
  • 0
>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#22 IrishHeart

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Posted 31 August 2012 - 03:29 PM

Gotta ski?...amen ;)

Tom,

I am not surprised that you disagree with anything I say. That's what always happens. So be it.

From the lack of responses to the number of publications that ARE posted on a daily basis, I would say that the majority of the members here do not read many of the publications as they are too busy, too sick or too busy still figuring out why they are sick.

Those of us who responded to this one --just felt like it.

If you have a problem with the article, just disregard it ---or take it up with Scott.

It's not the "Mods' job" to stop articles coming in.
  • 0

 "Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

 

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

 

 

 

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.  bliss-smiley-emoticon.gif

 

Celiac.com - Celiac Disease Board Moderator


#23 kareng

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    Let them eat gluten-free cake!

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Posted 31 August 2012 - 03:32 PM

I think this is just one of those people who like to argue for fun. Correlating gluten problems with political leanings is just so silly it appears to be meant to incite arguments. I don't really get it but these people are on the internet. Sometimes they come on here. I remember two that openly admitted they were here because they liked to argue. Next week the guy will be saying kids have diabetes because there mothers ate too many sweets while pregnant and voting for a liberal! :o
  • 0

Celiac.com - Celiac Disease Board Moderator

"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party"  - Ron White
 

""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy

 

 

“Life may not be the party that we hoped for…But while we’re here, we should dance.”

 

 

 

smiley-dance006.gif

 

 


#24 kareng

kareng

    Let them eat gluten-free cake!

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Posted 31 August 2012 - 03:35 PM

Hey I'm just saying there have been thousands of similarly moronic, useless articles about gluten-free on all sorts of blogs that WEREN'T given the publicity of a post here.
Why this one?

My googling of "science 2.0" & gluten doesn't support the idea that this article is making news all over the internet.

As far as my starting w/ a PM to Scott first instead of asking the forum community whether they agree w/ me, I'm not sure I understand the downside. If the majority of the community WANTS the Publications section to include inane misguidedly-political links, I'd accept it.
It's not like I'd be expecting Scott to act on my sole concerns in the first place. In contrast, the forum community's thoughts on the matter would be an actual factor.



I'm saying that if you have a problem with the "moronic, useless articles" that appear here, and you really want to improve the site, you would discuss this with the person who is in charge of what goes on this forum site.
  • 0

Celiac.com - Celiac Disease Board Moderator

"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party"  - Ron White
 

""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy

 

 

“Life may not be the party that we hoped for…But while we’re here, we should dance.”

 

 

 

smiley-dance006.gif

 

 


#25 tom

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Posted 31 August 2012 - 03:36 PM

...
Should someone stumble upon his article now they have an opportunity to learn actual facts regarding Celiac Disease and Gluten Intolerance posted in the comments section.
...

Maybe I'm misreading this, but is it saying that the comments section there only has some fact-based commenters because of the link in this thread here?
That seems unlikely.
  • 0
>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#26 tom

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Posted 31 August 2012 - 03:48 PM

I'm saying that if you have a problem with the "moronic, useless articles" that appear here, and you really want to improve the site, you would discuss this with the person who is in charge of what goes on this forum site.

There's the misunderstanding again. I'm not at all looking to press for changes that I alone believe would benefit everyone. I'd like that IF everyone (well, most everyone) wanted a change, it'd be considered. 1st step has to be raising the question.

BTW, I don't appreciate the disingenous misuse of my "moronic, useless articles" phrase as if it applied to anything here. I was quite obviously referring to articles throughout the internet which were NOT linked to.

Hey I'm just saying there have been thousands of similarly moronic, useless articles about gluten-free on all sorts of blogs that WEREN'T given the publicity of a post here.


  • 0
>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#27 GottaSki

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    "Migratory flight complete."

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Posted 31 August 2012 - 04:08 PM

Perhaps I wasn't clear with regard to my thoughts regarding Tom's proposal that Scott not post links to certain types of information.

I originally thought a link for the "Science 2.0" blog/article should not have a link posted on this site.

Upon more thought - I now believe that it is good for those within the Celiac Community to be aware of false information regarding Celiac Disease being posted on the net. It provides the opportunity to add facts to the conversation, rather than letting the false blogs/articles stand alone.
  • 1

-Lisa



Undiagnosed Celiac Disease ~ 43 years

3/26/09 gluten-free - dignosed celiac - blood 3/3/09, biopsy 3/26/09, double DQ2 / single DQ8 positive

10/27/09 diagnosed fibromyalgia - supplemented with amino acids - improvement followed by substantial deterioration

maybe one good hour per day for ~17 months

8/10/11 - Elimination Diet for Autoimmune Disease - incredible improvement along with clear reactions to most high lectin foods

only remaining symptom - severe heat intolerance / reaction to heat, humidity and exercise
Tomato, Pepper, Potato, Peanut, Soy, Bean, Pea, Citrus, Pineapple, Avocado, Shellfish, Dairy, Grain, Nut and Seed FREE

3/1/12 - Horrible flare -- same ol' symptoms but worse ~ 7/1/12 - Endo: Active Celiac 3+ years - as gluten-free as humanly possible.

11/15/12 - Improving once again - Almonds back - Eggs gone

12/1/12 - Histamine containing and inducing foods FREE - finally the last piece of the puzzle (I hope) -- the cause of my heat/exercise "allergy"...

...this was one of my earliest symptoms as a child -- the enzyme (DAO) needed to regulate histamine is created in the small intestine.

If you have read this far - hang in there - obtaining health with any AI is a marathon, not a sprint!

This stubbornly tenacious feisty optimist is vertical once again.

Celiac.com - Celiac Disease Board Moderator


#28 kareng

kareng

    Let them eat gluten-free cake!

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Posted 31 August 2012 - 04:10 PM

There's the misunderstanding again. I'm not at all looking to press for changes that I alone believe would benefit everyone. I'd like that IF everyone (well, most everyone) wanted a change, it'd be considered. 1st step has to be raising the question.

BTW, I don't appreciate the disingenous misuse of my "moronic, useless articles" phrase as if it applied to anything here. I was quite obviously referring to articles throughout the internet which were NOT linked to.


what I'm am trying to suggest to you is that : if you have issues with this website,, rather than make comments in a post that a mod should do somethng, offer to help this be a better place. Talk to the person who makes the rules & purchases the press clipping service and offer to help.

I'm done arguing for tonight.
  • 0

Celiac.com - Celiac Disease Board Moderator

"I believe that if life gives you lemons, you should make lemonade... And try to find somebody whose life has given them vodka, and have a party"  - Ron White
 

""I like the cover," he said. "Don't Panic. It's the first helpful or intelligible thing anybody's said to me all day."
― Douglas Adams, The Hitchhiker's Guide to the Galaxy

 

 

“Life may not be the party that we hoped for…But while we’re here, we should dance.”

 

 

 

smiley-dance006.gif

 

 


#29 IrishHeart

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Posted 31 August 2012 - 04:13 PM

There's the misunderstanding again. I'm not at all looking to press for changes that I alone believe would benefit everyone. I'd like that IF everyone (well, most everyone) wanted a change, it'd be considered. 1st step has to be raising the question.




Then you should ask.
  • 0

 "Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

 

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

 

 

 

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.  bliss-smiley-emoticon.gif

 

Celiac.com - Celiac Disease Board Moderator


#30 IrishHeart

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Posted 31 August 2012 - 04:16 PM

I now believe that it is good for those within the Celiac Community to be aware of false information regarding Celiac Disease being posted on the net. It provides the opportunity to add facts to the conversation, rather than letting the false blogs/articles stand alone.


Makes sense to me.
  • 0

 "Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

 

"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh

"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
Lao Tzu

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

 

 

 

Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.

I. Win.  bliss-smiley-emoticon.gif

 

Celiac.com - Celiac Disease Board Moderator



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