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Celiac: The Trendy Disease For Rich White People - Science 2.0


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41 replies to this topic

#31 psawyer

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Posted 31 August 2012 - 04:19 PM

The posting of links to articles in this forum is automated. Certain keywords in the article, including "gluten" and "celiac," cause a link to be posted. There is no subjective analysis. Use the word--get a post here.

I do weed out some stuff that really has no relevance. But this does have some merit. It is about how some members of the general public, including this misinformed author, perceive the diet.

Tom, the mods are doing what we have been asked to do by Scott. If that troubles you, you can send your suggestions to him via a PM, or:
http://www.celiac.co.../contact_us.php
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#32 tom

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Posted 31 August 2012 - 04:53 PM

...
I do weed out some stuff that really has no relevance. But this does have some merit.
..

Ahhh thanks Peter. That answers my original question.

Don't most of us agree that this article deserves no mention here at all?
...

That's the 1st sentence of my 1st(oops 2nd) post in this thread. Trying to see what others thought. So thanks Peter & GottaSki

...
Upon more thought - I now believe that it is good for those within the Celiac Community to be aware of false information regarding Celiac Disease being posted on the net. It provides the opportunity to add facts to the conversation, rather than letting the false blogs/articles stand alone.

There's certainly no shortage of false info re celiac disease % gluten-free online.
It could almost be a subcategory in the Publications section, if such a thing existed.
Should we have *more* threads w/ links to false info articles? (In an awareness-promoting sense I mean. Please don't anyone take that wrong)
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>>>>>>> tom <<<<<<<

Celiac 1st diagnosed as a toddler, in the 60s. Docs then, between bloodletting & leech-tending, said "he'll grow out of it" & I was back on gluten & mostly fine for 30yrs.

Gluten-free since 12-03
Dairy-free since 10-04
Soy-free since 5-07

#33 Jestgar

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Posted 31 August 2012 - 09:57 PM

There's certainly no shortage of false info re celiac disease % gluten-free online.
It could almost be a subcategory in the Publications section, if such a thing existed.
Should we have *more* threads w/ links to false info articles? (In an awareness-promoting sense I mean. Please don't anyone take that wrong)

I think this site does end up with a lot of those. If they don't get posted through the auto system, then someone finds them and posts to ask about them.

And they may as well be fully discussed here, because ignoring them could easily be construed as supporting them.

But I also find them annoying, and can't be bothered to comment on them. B)
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#34 Takala

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Posted 01 September 2012 - 05:02 PM

I just found another one, but lost my first write up.

Science seen lacking for gluten free craze
http://www.foodbusin...k6p23A8.twitter
8/31/12 Josh Sosland, FoodBusinessNews

NEW YORK – “There is no evidence to suggest that following a gluten-free diet has any significant benefits in the general population.” That is the finding of a study published in the September 2012 issue of the Journal of the Academy of Nutrition and Dietetics. The study was written by Glenn A. Gaesser, a professor at Arizona State University, and Siddhartha S. Angadi, a postdoctoral scholar at the University of California, Los Angeles, School of Nursing. For those without celiac disease or gluten sensitivity, gluten-free dieting “may adversely affect gut health,” the authors concluded. Noting that gluten-free dieting has gained considerable popularity, they said additional research is needed to “clarify the health effects of gluten and potential consequences of avoiding gluten-containing grains.”

While no data have been published to support a weight loss claim for going gluten free, there are several studies of celiac patients that suggest body mass index status may deteriorate for those on a gluten-free diet.



So Glenn Gaesser, Consultant for "Grain Foods Foundation" (see link here: ) which is the wheat and baking milling and baking lobby, just published a "science" paper claiming that the gluten free diet is harmful to the general population. When I followed all the available links, it turns out that the wheat industry had paid for the "research" and that it will cost me $31.50 to download the actual paper, which has no abstract available for free on the internet, even though the "science" writers are quoting it.


Yes, there needs to be serious pushback on this.

Shelley Case, R.D. is listed on this Grain Foods Foundation board alongside with this Glenn Gaesser "PhD," who wrote the research paper. I cannot even find what Gaesser actually has his degrees in, other than it is implied there was a secondary major in exercise. He is a Professor in "Health Promotion" and the director of the "Heathy Lifestyles Research Center at Az State Univ. - link here: http://healthpromoti...rectory/1263739 Shelley Case R.D. aka registered dietician, promotes herself as the gluten free diet expert in North America. So what is she doing on a wheat and bakery industry board, as a nutrition consultant, that is pushing 6 servings of regular grains a day ? I don't care about that part, as much as if it is the goal of this Grain Foods Foundation board to claim that the gluten free diet is harmful to one's health, whether you are celiac, gluten intolerant, or normal, then she has quite a conflict of interest going, in terms of credibility and reputation.

Have a look: Grain Food Foundation Nutrition Experts http://www.gowiththe...out/experts.php There's Shelley Case next to Glenn Gaesser. Here is her website bio: http://www.glutenfreediet.ca/bio.php
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#35 IrishHeart

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Posted 01 September 2012 - 05:23 PM

Interesting, but as far as I know, there is no evidence that supports the theory that eliminating wheat from one's diet is detrimental in any way.

Many people do not consume whole wheat (or any grains for that matter) and they are neither celiacs nor gluten intolerants--and they live healthy lives.

I know many, but 2 examples are:
--- my friend who has MS and she has kept it at bay for 25 years by following a grain free diet (long before gluten-free was "faddish");

-----another is my husband who takes no meds, works out a gym 3x a week, walks 3 miles without breathing heavily, has no health issues and is in better shape than men half his age. (and he has great legs, too)


There are many "theories", many "agendas", many "opinions" out there--and right on here at c.com....but really,

in the end, whose business is it what people eat?

Your own.
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Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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#36 psawyer

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Posted 01 September 2012 - 05:28 PM

Well, Takala, I followed your links--all of them, but did not arrive at the same conclusion.

I have met Shelley Case. We talked at some length. I have read her writings. Gluten-free does not mean grain-free. Suggesting alternate grains as foods, such as rice, corn, quinoa, and others, is not in conflict with eating gluten-free. I found no evidence to suggest that she is promoting wheat. If you have a specific reference where she endorses wheat as a food, please provide the link.

I can put a link to anyone who has a website in any post I make. That does not mean that they agree with my position, or even know that the link exists.

Edited by psawyer, 01 September 2012 - 06:18 PM.
Irish posted while I was composing.

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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#37 come dance with me

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Posted 01 September 2012 - 06:13 PM

From everything I have read, and information from doctors and dieticians, there is really no harm in following a gluten free diet, which is why I decided to make the whole house gluten free instead of making different things for the 2 of us.

On the other hand, gluten is not harmful to those who can tolerate it, and there is no sense in following a gluten free diet for health reasons if a person can tolerate it. I just do it because it eliminates the risk of cross contamination, and means that I only have to make one lot of everything, instead of 2 lots of everything when only 2 of us live here.

I run a local fb group for people in our community, and someone posted a link to a business she is starting up which is making all gluten free goods. It started in a different town 4 hours away and has really taken off, so she is starting it up here. She wanted to guage support for such a business, and was surprised at the amount of people who are interested, and I have already ordered 1 dozen cupcakes from her to pick up in 2 weeks time. She does them vegan as well, but only by order, but everything is gluten free. One of the comments was asking why the government allows gluten in foods when it's proven to be harmful to people, and they can simply take it out. I had to then tactfully explain what gluten was, and that it was not harmful to everyone, only those who cannot tolerate it. Like lactose, only a small portion of the shelf/fridge is set aside for lactose free because the majority of the population don't require it, so more space is set up for regular milk which is not harmful to the majority of people.
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Lord please give me patience, because if you give me strength, I may just beat the living crap out of someone...

#38 lovegrov

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Posted 07 September 2012 - 06:25 AM

Takala, I see absolutely nothing wrong with Case, who has done a ton of good for our community, being on this board. In fact, I think it's an excellent idea to have a celiac expert on a grain board.

richard
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#39 Takala

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Posted 07 September 2012 - 02:32 PM

That "board" of directors is the one governing an organization that is lobbying against gluten free. Hellooooo. They are funding studies by "expert" "professors of xxx with pHd's" which conclude a diet based on wheat is better.

Case has also been quoted in the regular media more times than I can count, as the Registered Dietician Celiac Expert claiming this:

Besides the hassle, you can end up with serious nutritional deficiencies. "Gluten-free doesn't necessarily equal healthy, especially when people yank vitamin-enriched and wholegrain foods from their diets and replace them with gluten free brownies," says Case. In fact, research suggests that those who forgo gluten may be more likely to miss out on important nutrients such as iron, B vitamins, and fiber.

http://www.womenshea...luten-free-diet


another one

"Gluten-free doesn't automatically equal healthy," says Shelley Case, RD, author of Gluten-Free Diet: A Comprehensive Resource Guide. And these foods won't help you lose weight: They tend to be higher in calories and lower in fiber than regular grain products because they have to pack extra starch, fat, and sugar to make them palatable, Case says. Also, most are not enriched with iron and B vitamins as are other refined grain products, so you may miss out on key nutrients.

http://shine.yahoo.c...-160500128.html


There's that phrase, "research suggests.... " again.
And the "most are not enriched... so you may miss out on key nutrients"
I had never even paid much attention at all to Case, until she kept getting quoted in the media, implying that a gluten free diet using any sort of gluten free baked good was less nutritious than a regular diet.

Case getting quoted by another registered dietician, Lisa R Young, PhD:

GLUTEN FREE. Gluten free products are on the rise but not everyone needs to eat gluten free, and gluten free does not mean that a food is healthier. Gluten free diets are important for people with celiac disease or people who cannot tolerate gluten. Gluten free cookies, however, are still cookies and these foods DO have calories. In fact, many gluten free products often have more calories than their non-gluten free counterparts. As my expert colleague Shelley Case, RD, author of Gluten-Free Diet: A Comprehensive Resource Guide says “Gluten-free doesn’t automatically equal healthy.” And, as the journalist Michael Pollan succinctly wrote for a recent New York Times magazine article when asked about gluten free diets: “It’s hard to believe that the number of people suffering from these conditions has grown as fast as this product category. Gluten has become the bad nutrient of the moment…”

http://portionteller.com/


I and other gluten intolerants/celiacs have already critiqued Pollan, and his baked grain and tofu patties served on buns fetish. But let's get back to Young.

Here is Lisa Young, RD, PhD, again, on 10/11/11, recommending that "Chose my plate" to replace the hapless, horribly grain heavy USDA food pyramid. Incredibly, this woman is STILL PUSHING diabetics to eat more grains!!!! :ph34r:

“Protein is important for diabetics to have at each meal, but I would like to see a little more on grains. You want to accentuate diabetics having whole grains, grains of fiber, as opposed to processed grains. That is an important food group for diabetics – it’s not just having the grains, it’s having the healthy grains,” she said.
------

“Many type 2 diabetics may be overweight because they might have a problem with portion control. We don’t know that for sure, but helping them focus on their weight might really help them better manage their diabetes,” she said.

http://www.discussdi...ortion-control/


I think most diabetics who are overweight.... know that they are overweight! Putting the grain on a smaller plate is not going to fix the metabolic malfunctions and auto immune reactions to it !

They just won't give it up. They (RDs with no common sense but lots of degrees and media credentials) are still completely locked in this mindset that if only everybody else would eat just like they do, they would then be thinner, more pleasing to the eye, and healthier. And it just happens to dovetail so nicely with the United States Department of Agriculture, and the school lunch programs in the U.S. using the surplus grains that are subsidy grown.

Full disclosure: so far today, by mid afternoon, I have had one serving of a brown rice product.
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#40 psawyer

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Posted 07 September 2012 - 06:46 PM

I agree with this:

If you are eating a poor diet, with lots of donuts, pizza, bagels, and so forth, and switch to a diet with lots of gluten-free cookies, donuts, bagels and pizza, well, you now have an unhealthy gluten-free diet. In fact, in this case, it may be less healthy since many of the gluten-free substitutes have more fat and calories than the gluten ones.


A gluten-free diet can be better and more healthy, or not.

If you go gluten-free by changing your eating habits, not just by substituting poor gluten-free choices, you will have a healthier diet.

It is really about what types of foods you choose to eat, not whether the specific choices are gluten-free or not.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#41 IrishHeart

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Posted 08 September 2012 - 05:00 AM

If you go gluten-free by changing your eating habits, not just by substituting poor gluten-free choices, you will have a healthier diet.




That's the truth. Amen.
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#42 patz16

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Posted 31 December 2012 - 01:23 PM

Lately I say things like, "When I was diagnosed with celiac disease...", even though I never got tested by a doctor. I am SELF diagnosed, but if I say that no one takes me seriously. The way I say it, I'm not lying exactly, just heading off the misconceptions.


I do the same thing, and was very annoyed by this article. I'm on an island with doctors who seem to know nothing about celiac disease and have this misconception that celiac disease can only occur in white people. This kind of thing just makes it harder for me to get a proper diagnosis.
  • 0
Toughing it out on a 2 year doctor hiatus. I give up.


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